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The SPD Companion, Issue # 012-- SPD Services In School...How To Get What You Need
March 01, 2007
Whether you are a parent, a teacher, a professional who works with children, an Occupational/Physical/Speech Therapist... I hope you will find this month's discussion, and resources of great value to you!
This month's topic? One MANY of us have struggled with and had questions about... SPD In The Schools; Getting The Services You Need!
Note: You are going to want to have some full ink cartridges and plenty of paper ready to print the resources I recommend today. Some are long, but they are the "Special Education Maze Bible" ...you'll probably want to refer to them over and over, trust me!
Our kids spend 6 hours every day, 36 hours every week in a setting that IS their job... it is their occupation, just as you have yours. That IS a full time job.
Now... imagine if you had a 40 hour a week job that required you to talk on the phone selling a specific product to customers. It was a job that was picked for you... you couldn't choose it, and it was YOUR responsibility to get it done, no matter what. Now imagine you had several undiagnosed conditions...a speech impediment that made you hard to understand, or dyslexia which made reading the "pitch" to the potential customer difficult, labor intensive, and too time consuming. Or, you had social phobia issues which made talking on the phone an anxiety ridden endeavor. BUT, you nor your boss had ANY idea WHY you couldn't perform like the others. They weren't interested in finding out, in fact, many thought you were "faking it", pretending ... no testing, no analyzing, no thinking about things that interfered with your performance, no modifications. No support, no validation, no help. Tough luck kiddo!
Now also imagine, your success at this job depended on commissions only. How many sales you made per day. No sales...no pay. Your value as an employee was solely based on those commissions, and if you didn't hit the bar, no matter what the reason, your work history/record was permanently scarred. Even worse, imagine if the people you talked to made fun of you every day. Imagine if there were no other jobs available to you, this was it... the one and only job and you were expected to perform at your peak (actually, beyond YOUR peak... because it was based solely on THEIR expectations).
You faithfully went to work every day because you HAD to... no exceptions. You cried silently to yourself through the whole darn day. You felt "stupid". You felt inadequate. You compared yourself to others. You didn't understand why you couldn't get the job done... all you knew was that you must stink at it, and your self-esteem went right out the window. Gone. You'll never be good at anything you think. You stop trying. You emotionally give up.
Wouldn't YOU need some accommodations/modifications to this job and/or job description? Doesn't it seem reasonable that you would need, and should get some extra help?
Of course you would!
So, why aren't we doing this for our SPD kids? Several parents have written to me about this...it is a great question. It goes something like this...
Are schools under obligation to test students for SPD under the No Child Left Behind Act? Just wondering because my daughter's school refuses to test her for SPD.
My friend and respected colleague, Michelle Morris (see credentials and contact info below) writes:
The simple answer is NO... ONLY because it is not yet (we're working
on that!) in the DSM (Diagnostic and Statistic Manual for Doctors
and Insurance Companies). To find out more about this, read...
Issue #9 of The SPD Companion Newsletter
However, in many public school districts, you can still get evaluations performed for your child under the SYMPTOMS of SPD. For instance, if you feel your child is having difficulties that are impacting his learning....you can ask for a full evaluation of all areas, including fine motor, coordination, and those that are processing related; Visual Processing Disorder, Auditory Processing Disorder, Dyslexia, Dysgraphia, ADHD and many others. You can ask for an evaluation from the school OT department, on the basis that his symptoms/behaviors/performance may be negatively impacting his ability to learn.
Some schools are going ahead and doing this, because it's the right thing, the moral thing to do, if they truly care and want to help these kids. Unfortunately, until it is included in the DSM V - next edition published, hopefully - the schools do not get additional funding for this disorder known as SPD, the way they already get additional monies when they have a diagnosed ADHD child. Another way some families are getting services is under the heading "Other Health Impaired". This relies more on finding what symptoms are actually impacting the child and is not so rigid in diagnostic criteria.
One IMPORTANT word of caution, in many cases I see that even when a family can get services through the public school system, the school may specifically only allow services for symptoms or behaviors that directly impact the child's education, and not treat "the whole body"... which is the very BEST approach to helping the SPD child. The most ideal therapy for the child is usually through a private OT, who is SIPT Certified and has a strong background in SPD theory. If possible and financially feasible...I recommend getting the evaluation and treatment privately, then asking the school for accommodations based on the evaluation results and treatment plans from your private OT.
Before doing ANY of this, I would recommend beginning with a
tutorial that guides a you step by step through the process.
It is an awesome resource...you DON'T want to miss THIS one!
It is called
Education Advocacy: A Self-Help Tutorial For Parents
written by Leslie E. Packer... a parent who KNOWS
the system.... What a GIFT this resource is!
She has a comprehensive website you may want to spend some time
in as well...
www.tourettesyndrome.net where you will find articles, materials, and resources pertaining to Tourette's Syndrome, Obsessive-Compulsive Disorder, Attention Deficit Hyperactivity Disorder, Executive Dysfunction, Asperger's Disorder, depression, Bipolar Disorder, sleep disorders, "rage attacks" or "storms," infection-triggered OCD or tics ("PANDAS"), sensory integration, and more.
Also, you will want to read and print THIS wonderful 2 part resource to help understand and guide you through the system...
Exceptional Education: Getting Parents Involved (Part 1)
Exceptional Education: Getting Parents Involved (Part 2)
Next, you WILL need to become familiar with your rights, and what laws may apply if you choose to pursue efforts in getting school based services. Remember, when they try to tell you, that their district or state doesn't provide services for, or has no funding for your child - FEDERAL Law supercedes local and state law. For all current laws, you will want to check out www.wrightslaw.com They also provide a tremendous amount of resources, trainings, and up to date information that you will need as you begin to learn the system and what you and your child have the right to ask for and receive.
My personal advice? If homeschooling, or a more appropriate private school is not an option? Be a pain. Be that squeaky wheel who just won't go away, until they relent. Do not feel that you need to be their friend at the cost of your child. Your child comes first, not their friendship, and your child doesn't have years to waste not getting what he needs. You can still be POLITE, smile and nod...then insist. At the very least, your child is probably entitled to classroom accommodations, under the 504 Act.
Besides the "Education Advocacy Tutorial", I also recommend two other publications that may help...
Now, you will be well on your way to understanding your rights and getting the services you need!
Remember, those who choose to join us as SPD Parent S.H.A.R.E. Hosts have access to many articles and much information to help their own and other children obtain services. As parents, we have the right to besiege them with articles, research results and information, until you quite frankly wear them down. Once one parent does this, and services are approved for one child, those that come after may be more accepted.
On a hopeful note, more school districts are recognizing SPD and offering services, and it is just a matter of time until this is standard procedure. So keep on fighting the good fight.
I wish you all the luck in the world, and if there is any thing I might be able to help you with, please don't hesitate to contact me. We are ALL fighting to help our kids, and thank heaven's your child has YOU on his side. : )
I know these resources will keep you busy for a while, so set aside some time for yourself to really get into the heart of it all. Go to the library for some quiet time for yourself if you need to, hire a babysitter, let the kids play with relatives, etc. while you take the time to read this information. It will be so worth your time!
Thank you for being the BEST advocate you know how to be. Your children will thank you one day!
Until next time my friends...
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