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The SPD Companion, Issue #003 -- The Gift Of Support, Research, and Understanding
May 04, 2006
New SPD Book Is Released!First we begin with the much anticipated release of Dr. Lucy Miller's book entitled "Sensational Kids". I am so fortunate to have gotten the opportunity to read her book already, and I will say this... if you are involved in working with or parenting a child with SPD, this book is a "MUST-HAVE"!
Below you will find a link to my in depth review of the book, but I also wanted to personally tell you some additional things I learned.
There is currently a group, including Lucy Miller, who is working on the insurance reimbursement codes and sensory processing disorder classifications to be proposed for the next edition of the DSM.
Insurance reimbursement will ONLY be official and guaranteed at the time in which the codes for SPD are recognized in the DSM. Based on the progress we are making, this is expected to happen. But until it does, insurance reimbursement may continue to be problematic.
A list of diagnostic codes which are being proposed to help families and therapists receive insurance reimbursement can be found in Lucy's new book, "Sensational Kids". Currently, these codes are only for ages 0-3 and listed in ONE diagnostic manual, The Diagnostic Manual for Infancy and Early Childhood published by the ICDL. )...they are the first diagnostic manual to accept and code an SPD diagnosis. And THAT is a HUGE step in the right direction.
But remember, so far, these codes will not apply to older children, and they may not guarantee insurance reimbursement (yet).
For a list of more "commonly accepted" insurance codes therapists are using right now, you can visit: http://www.spdnetwork.org/aboutspd/insurance.codes.html
So, if you are a parent or a therapist and are having difficulty with insurance reimbursement, these codes may help.
You can find information about the new codes and/or purchase the diagnostic manual at: www.icdl.com I believe we will be advanced enough for it to finally be accepted into the DSM V when it comes out! This will FINALLY make it real and make OT evaluations and treatment affordable!
Would YOU like a peek into the Lucy Miller's new book? Then
click here to read my review of Sensational Kids.
(The book can also be purchased from the book review page.)
Since putting up our SPD Parent SHARE website last month (which I told you about in the last newsletter) we have had two more volunteer hosts join! This is so exciting!
One of the two is Kari Kassir who is a physician in California. She is also a mom of an SPD child. She just wrote to me today to tell me:
"I am so thankful I have so much support from you guys. What a wonderful community! I wish this group had existed when I was just starting out with my son. But Iím glad Iíve been led to you now. Already Iím learning so much from all of you!"
But, wait, that isn't even the "good news". She has decided she will write a book about SPD specifically FOR PHYSICIANS! She too is frustrated with the lack of understanding and education in the medical community...to the point where her own colleagues couldn't even help her with her son when she was seeking answers! (although I do need to note there ARE physicians that have been educated and have helped some families find the proper resources)
But, can you believe this? How blessed we all are! Finally, the world of SPD is shaking up our very culture and knowledge base right before our eyes. YOU are all a part of it!!
We will finally be heard! Hold on tight everyone...between Lucy's new book that just came out, and a PHYSICIAN'S BOOK??!! It's happening, it really is! Thank you everyone who is, and has been, a part of this!
A New, AMAZING
Are YOU looking for AFFORDABLE sensory products?
Times are changing and the information is becoming more precise. I will get it up there as soon as possible! All of these will be part of the near future. So, just a reminder that the RSS feed and SPD Companion Blog will keep you up-to-date on the changes I will be making. Even if you see a page listed on the blog that you are sure you have read before, you may want to check it out again for anything new.
YOUR needs matter...
I want to make my site better for YOU. As part of doing this, I would love to hear your input so I know I am meeting, and continue to meet your needs! I want YOU to have a voice. I want to know what YOU think I can do to improve my site, and what information you feel is lacking, or that you want me to go more in-depth about. I certainly have all kinds of ideas, but I want to make sure they jive with yours.
So, if you have a few moments, I would love for you to share some of your thoughts with me using the survey below. For me, this would truly be a gift!
Make it as simple as you want. Answer all or some of the
questions... it's up to you. Two words, two sentences, two paragraphs...
whatever is most comfortable for you. And remember, this survey is
anonymous (even for me!) so be as candid as you want. I surely appreciate
anything you share with me. Thank you, in advance.
All you need to do is click on the link below (or copy and paste the URL it into your browser) and the survey will be there waiting for you. Here's the link:
No matter WHEN you are reading this particular issue of the newsletter, months or years from when it originally posted, I still NEED your input!! Fill out the survey form ANY TIME!
I am currently working on two more sections for my site... "Frequently Asked Questions" and "Adult/Teen SPD". If you have any input for either please let me know via the above survey, or by contacting me through the "Contact Us" page. (Again, no matter when you are reading this, I can always use input and suggestions!)
It has additionally come to my attention that we have some wonderful writers out there who have some GREAT stories about some of their experiences (some of whom have already shared with me...check out guest articles" to read them). If you want to share your story, I would be honored to put it on my site! If you are interested, you can contact me via the "contact us" page:
Let's continue to build this site together. Let's make this site, these newsletters interactive...YOU matter so much to me. I want to KNOW you; your experiences, your needs, your concerns, and what we can do to continue educating and supporting SPD families everywhere!
Thank you so much for your time!
Together we WILL make a difference!
Until next time my friends...
Take good care.