Every other day fatigue, extremely low stamina=SPD?

by Debbi

My 13 y.o. daughter was diagnosed with SPD at age 6, and also has epilepsy, which complicates things. However, after numerous tests and visits to specialists, no one can figure out why she has such low stamina. For example, in the past few years, she has only been able to attend school for 4-5 hours per day, and only every other day! The school has been very accommodating, luckily, but as this leads to living what I call "half a life," I'm hoping to get some answers. The neurologist does not believe this is due to ongoing seizures or the meds, since that would cause the fatigue to be every day.

I'm wondering if anyone else has seen this in their SPD kids? Maybe they get overloaded with sensory input on one day and need to rest the next? And if so, what the heck do I do about this? She's getting to high-school age soon, and I don't know how she'll be able to make it in life on an every-other-day schedule. :-(

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Oct 01, 2009
genetic disease?
by: Debbi

What genetic disease do you have, if I'm not being too nosy? I only ask because the doctors have checked her for all the "regular" things: low iron, rheumatoid arthritis, lupus, mitochondrial diseases, but everything always comes back normal. Except she's NOT normal! The latest specialist is saying maybe this is just the way she's made, and she'll just have to adjust to living life "every other day." That's unacceptable to me!

Aug 01, 2009
Poor stamina
by: Val

I like you have a son (8) who fatigues very easily. He was diagnosed as having a genetic syndrome that I have which fatigue does go with but i am not sure if SPD can cause it too. He does attend school full time but is always tired and often his behavior is worsened by this. He will often refuse to leave the house for long periods at a time and needs to vegetating mainly at weekends. It is very restricting.He has a wheelchair for if we need to travel a moderate distance because he gets aching joints and tires so easily. I put this mainly down to the genetic syndrome but perhaps it is SPD too. Has your daughter been checked for other reasons?

Jul 18, 2009
by: Angie

My son is 9 and if he gets a sensory overload on one day he does have to rest the next. He hasn't had to leave school early but it is always a battle in the morning just to get him there. There is alot of thing we can not do as a family because of this. We also can't just do what we want everything needs to be planned and we have to make sure he gets home not too late of he bawls his head off. I too would like to hear what others do about this.

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