Forum

I really believe this site should have a forum for parents to realllly get to talk with each other. This question section is helpful, but the questions seem to just get one or two replies and then go unnoticed after that. A forum with categories would be wonderful. It would open up ongoing conversations and be a place where parents could come for ideas from other parents. They could share what has worked for them also.


Any chance?

Leeanne M.

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Hi Leeanne,

Here is a link to Yahoo groups about SPD broken down by state and by country. SPD Parent Share Host Groups

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Jan 26, 2011
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There is hope!
by: Anonymous

Just a note of hope to those looking for SPD resources. My son is 7 1/2, was diagnosed at age 2, and he is doing so well. We've been doing OT for 5 years now and it has made a huge difference in our lives. This website provides a lot of valuable info and resources. Arm yourself with as much info as you can, seek help as soon as you can, and believe in your kids!

http://katherinealan.blogspot.com/

May 14, 2010
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Killer klothes
by: Broseph

I'm 18. I have Asperges syndrome and like so many others here have tactile integration.
The reason i'm writing is because I'm having an incredably difficult time finding any clothes that I can tolerate!
I've only been able to find one Cotten shirt that I can wear, and very little in the way of pants.
I wear shorts all the time! At the moment its impossible to have a social life, and even life with some of my family is extreamly akward!
I can't wear most clothes. No man made fibers and so far no silk
I can't even wear most cotten, regardless of tags and seems. My covers are the softest Cotten I have stocked at my house but even they make me uncomfortable and dehydrate me. I bought some soft Cotten casual legware and they didn't work either.
I do have one Cotten shirt that miraculusly works though, which gives me hope! It's a black 100% Cotten puma sports shirt. .
This is my question/s, does anyone know of any type of shirt and pair of pants that have a high probability of working for me?! I've spent hours looking in a load of shops with no joy!
Could there be a certian quality of Cotten and a specific weave that makes the fabric even less tactilly offensive? And does anyone know of it?! Perhaps clothes that don't produce static electricity would be much more tolerable..? Any helpful information would be greatly appreicated!



Feb 27, 2009
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Sensory Street
by: Ericka Morgan

Hi,
I'm in a good yahoo group on SPD-it's called Sensory Street. I am not sure but I think the people who run that group have some connection to this website. Either way, it's a good group and the parents in it are VERY helpful. You might try looking it up.

I am not saying it wouldn't be good to have a forum on here, just trying to share some info.

Feb 27, 2009
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I agree
by: Anonymous

I do agree with you. You could also join the groups they have on CafeMom.com. They have 2: SPD Moms and their Sensational Kids and the other one is Making Sense of Sensory Processing Disorder. They both have message boards where moms can chat with each other and there are some wonderful and helpful topics.

Feb 27, 2009
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Forum
by: Anonymous

I agree that there should be forum for parents who have children with SPD. I wrote my comment about my daughter who have sleeping problem. No one got back to me on that one. So, I really needs some advice my daughter sleeping problem as she is getting worst.

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