Getting therapy

by Cyndi
(Brighton, CO)

My 4 yr old daughter was diagnosed w/SPD. She also has speech problems (apraxia), she is lactose intolerant, & her airway narrows approx 30%. We have insurance, but they refuse to treat her stating, not a medical/physical problem.We can barely afford the speech therapy, we've had to cut her back by 1/2. The pre-school won't treat her as she has not had a major melt down. Small ones yes, major no.


My husband got laid off after 18 yrs at his job & has only been employed for 2 1/2 months in the past year. I've tried medicaid, we make $400.00 too much a month, so that was no. They don't take into consideration that we spend more than that on speech therapy. I give up! We've tried treating on our own, but she is going backwards not forward.

She's never slept thru the night, which is crazy since she won't go to sleep until 10-11pm. She's up by six. I'm on the verge of a breakdown. Crying daily cause I feel like I can't get assistance even though we know what her problems are. We have papers from doctors, etc. Where can I go? Any suggestions.

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Aug 05, 2009
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Sleep
by: Angie

I don't know advice about everything that you have wrote but I do about the sleeping problem. Also, just so you know I'm not telling you to do this or if you do check with your doctor first.

But my son has had trouble sleeping his whole life and he is 6 and weighs 43lbs. His doctor told me to buy Melatonin 3 or 5 mg tablets.It's by the vitamins. She said to give it to him 2hrs before bed.If they Won't swallow pill, you can crush it up and give it to them with some food.

He would be up til about midnight now he is asleep by 8 or 9. Again I am not telling you to do this but I wish his doctor would have told me to do this sooner.He has much better days with a good nights sleep.

Aug 05, 2009
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help
by: Anonymous

Have you tried your local school district? In our area you can have your child tested with Parents As Teachers and if they find any areas of delay they will contact the Early Childhood Special Ed. Program and they are great about working with these areas. My son started when he was 3 years old in their preschool program and received speech therapy, OT, fine and gross motor help and it has made a big difference. Also check and see if you have any free programs in you area that will help with the speech. My pediatrician put us in contact with Scottish Rite and they were great help with my son's speech. And if your insurance won't cover it its free. I also know of some instances where people have continued to apply for Medicaid and eventually they will pick up coverage for you. These are just some ideas I hope they will be helpful!

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