Has anyone tried neurofeedback?

I am wondering if anyone has tried neurofeedback for SPD. I have a 5 year old sensory seeker who is often aggressive-sometimes because he is angry, and sometimes because his wild movements cause him to crash into us, our pets, walls, and other children at school. We always thought he was normal, just high energy, but his behavior rapidly deteriorated at 4 years 10 months, especially at preschool.


After months of waiting lists, he began therapy this Feb. It seemed to be going well at first, but 5 weeks into therapy, his preschool teacher kicked him out of school with no notice and said that she felt that things had gotten worse since therapy started. Then about 8 weeks into therapy, he started being more aggressive and emotionally volatile at home, as well as throwing more tantrums in therapy. The therapist said that things usually get worse before they get better because we are addressing issues and asking him to change, so he is resistant. While this makes sense, I have become frustrated and depressed, and have no idea how long things will take to get better.


A family therapist at work recommended neurofeedback and gave us the name of a local practitioner. The therapist is familiar with SPD but not a specialist and recommended it due to its benefits with other behavioral problems, not SPD. I called the center he referred me to, and the woman who works there said that she thought it would work for the symptoms I described, she said that she had treated children and is currently working with a 6 year old. However, she was not aware of any specific studies that had addressed the success of neurofeedback with SPD. I know that neurofeedback has well documented success with ADHD. My son has all of the hyperactivity symptoms of ADHD, but none of the concentration problems, and three different OTs have said that he doesn't have ADHD.

I'm eager to try neurofeedback, since it makes sense that training the brain would help someone cope with SPD. However, it is not covered by insurance, and will probably cost $3000-$4000 maybe more or less depending upon how many sessions he needs. We could afford it and I am desperate, but if we try it and it does not work, that means we couldn't spend the money on something else, like hiring a private therapist to work on his social interactions in his new preschool (something I'm also considering).

Please, please, let me know if you know of any case studies, personal experience, or references that address this.

THANKS!

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Jul 21, 2016
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YES!! Do it!!
by: Anonymous

I have five kids. My oldest was diagnosed with ADD (not ADHD) in 6th grade. Went through hell and back with him to get him through high school. Tried medication in 6th & 7th grade. Didn't like the side effects. Sr. Year tried EEG. It was a miracle. He is now a Marine...coping very well. It helped tremendously. Second child - anxiety disorder. She would have horrible panic attacks at school & was being sent home & missing a lot of school. Again, medication side effects were horrible. Tried EEG. Again, it was a miracle. She is panic attack free - no medication. On to child 3. He is 3 1/2 & being evaluated for sensory issues. I am on the waiting list to try the EEG. I am convinced with the therapy AND the EEG, it will significantly improve his tolerance! My 5 year old could be next. She has the same issues as your son. She is starting school. So, we shall see. But, I have a feeling, she'll be suspended & told she needs to be evaluated as well. EEG has been a life saver for our family!!

Mar 05, 2016
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highly recomend qeeg by neuro psychologist
by: #nochildleftbehind

we just started lens neurofeedback for my 10yr old daughter. qeeg by neuro psychologist says bipolar, ocd and adhd. eye doc who does vision therapy says oculomotor apraxia and school is suppose to pay for vision therapy however they disregarded that dx 7 yrs ago and provided constant punishments for not paying attenion and understanding work which has left her with severe gerd that will not go away. they've left my child behind and ruined her emotional health. school provides ST & OT and vision therapy is no different they are just too cheap to pay. i am insisting at this point they pay for vision therapy. do not trust your regular doctors to be honest about what is really wrong with your child i have found some to be liar's. some don't want to dx bipolar in a child until they are sucidal which is total hog wash. i would suggest you demand full evualations from your school including the FULL woodcock johnson test. take your child to an Ophthalmologist and look for one who does vision therapy. your child is not dumb nor bad but rather has been left behind by the school system. know your rights and fight for them.

Feb 28, 2016
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same experiences-need advice!
by: Angie

We are having the same issues. My seven year old has severe PTSD and hates all sensory input. He was stabilized using regular neurofeedback and just started LORETA. It has an amazingly strong effect on him and his muscle control has improved, but, in his words, "it's making me feel too much!" He is laying on the ground right now with his eyes shut, saying he doesn't want to go anymore. Is this normal? Is there a way I can support him better during this time? Spread out treatments? I'm talking with his neurofeedback therapist about all this, but I thought I'd check the internet to see if anyone had anything worked for them.

Nov 06, 2015
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ADHD SPD 6 yr old LENS
by: Anonymous

My son son got his 1st LENS treatment when he was 5 and it was amazing! It worked beautifully. The 2nd time we took him he was treated for a whole hour and he didn't respond well. His impulsiveness went back to how it was before the 1st treatment and he had several fits of anger overload, which he hadn't had in several months. The Board Certified Doctor told us this was normal behavior.

Despite his assurance that it was fine, I did not feel comfortable taking him back for another LENS. I felt that he was overstimulated. Once he got back to how he was before the treatment, I decided to go again. I waited a total of 8 weeks. He mapped his brain and did the LENS on the appropriate areas. This treatment worked beautifully, we were all very happy. Even his teacher was pleased with his improved behavior. BUT, the doctor strongly recommended another treatment in 2 weeks or else I would not see a true improvement.

Even though I felt uncomfortable doing so, I took my son 2 weeks later for a LENS treatment. I deeply regret listening to the doctor. He is now worse than what he has EVER been. I feel that we lost all the progress we have made. I expressed my feelings to the doctor but he's convinced that it's normal. My son is in 1st grade and since his last treatment he has been suspended 5 times. His last treatment was 3 weeks ago. I feel terrible that I didn't listen to my gut feelings. My son says to me "mommy I need help. I feel like I can't control myself. I'm a bad boy mommy". It breaks my heart.

The treatment DOES work. Not everyone responds the same. I think getting treatments every 2 weeks is too much for a child. You know your child best.

Dec 05, 2013
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5 yr old
by: Anonymous

I have 5 yr old also. We are having the same issue. He started therapy and seemed as though things were going very well. However, in the last few weeks, it is like he is getting back to old behavior issues. I am not sure if this is because things can get worse before they get better like they say or if there are other issues also. His worse behaviors are at preschool. He begs me everyday not to make him go there and he doesn't like it there. He has also broke is leg in last few weeks. I am not sure if this is cause of the regression or if something else. I am beginning to wonder if behavior getting worse because he trying to get our attention so that he can get out of preschool. I wonder if he just trying to say I don't belong here...i can't cope. Leg will be healed in few more days. I am hoping this will help out tremendously.....I am looking for any answers or help I can give him and his teacher. I am at a loss of what to next for him. We are starting a music thereapy after the first of the year to go along with OT. I am reading alot about taking dairy and wheat gluten out of diet but am afraid to try because he is picky eater and will take most of our options out of his diet. To top everything else off, he has had 8 ear infections this year and is going to have surgery to remove adenoids and put tubes in ears after 1st of year....I could use any help and suggestions you might have.

Dec 03, 2013
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Neurofeedback and SPD
by: Linda Marshall-Kramer

I am a pediatric OT board certified in EEG Neurofeedback through BCIA, the only certifying body. I use a brain map or a 19 channel quantitative EEG (qEEG) in order to develop an individualized program using Z scores to identify areas that are most deficient. I then link these symptoms to networks in the brain and treat all 19 sites with a full cap using z score neurofeedback. Recently I have added LORETA or low resolution electro magnetic tomagraphy which treats deep brain structures. I use Robert Thatcher's, PhD data base for the qEEG and LORETA. Combining sensory integration therapy with evidenced based NFB (using a qEEG 19 channel) the changes are dramatic. But because the field of NFB is not regulated it is important to find a therapist through BCIA that is board certified. The next step is to have a qEEG. The final step is to use the results of the qEEG in either surface 19 channel z score NFB or LORETA. I have been doing this several years, am in my Doctorate and will be using this as my research thesis to support this level of NFB in the treatment of SPD.

Oct 26, 2013
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Success with neurofeedback
by: Emily

Hi there,

I know this was posted ages ago but I stumbled across it when looking for information on neurofeedback and sensory processing and thought I'd add something in case anybody else is looking for this kind of info.

There are a lot of different approaches to neurofeedback out there - I would recommend reading as much as you can first, so you can ask any prospective therapists the "right" questions and work out where they sit in the spectrum of providers, which starts with quacks at one end.

Neurofeedback has been very helpful for my son. He is on the autism spectrum (at the time he was diagnosed his "condition" was described as PDD-NOS) but he has a lot of ADHD and sensory-seeking behaviours. He is still "different" but he is much easier to live with, if you know what I mean! He's not so set in his ways, he stopped mouthing EVERYTHING, he listens better, stopped whacking other kids, yadda yadda. I remember in pre-NFB times he would have a meltdown if we were driving somewhere and we took a different route ... hard to imagine what that was like now). Although there is some evidence that the benefits of NFB are long-lasting, we have found it necessary to go back on it. We ended up getting a home system - much cheaper in the long-run (and hey, it is kind of fun to hook yourself up to it and see what your brain activity is like in comparison). I recommend that anybody with these kinds of issues give it a go - no drugs, minimal risks - it can make the world of difference to your child and your sanity.


Oct 15, 2012
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BEHAVIORS
by: Anonymous

I AM CURRENTLY GOING THRU THE SAME THINGS YOU HAVE TALKED ABOUT ABOVE WITH MY 3 YR OLD SON AND I FEEL LOST AND NOT SURE HOW TO HELP HIM OR THE REST OF MY FAMILY COPE. HIS BEHAVIORS ARE GETTING OUT OF CONTROL AND IM REALLY CONCERNED

Apr 14, 2012
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neurofeedback
by: marjory glasgoe scotland

my son was similar but no aggresion. Has been diagnosed with reduced proprioception and aspergers syndrome. He is now 8yrs. I keep him calm but know how quickly he may snap. He has oversensitive hearing,{fascinating when you look into it} We have completed TOMATIs programe and what a difference it has made. He now talks instead of shouting. I cant say if you should go with this idea , only you know your child best. You know best, believe in your own opinion and best of luck.

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