Help for my daughter....
(Mundelein, Il (northern Chicago area))
Hello my name is Stacy Horcher My daughter Gianna (4) was diagnosed with Sensory Processing Disorder when she was two. Right away we got involved with helping Gianna. Everything my husband and I do revolves around helping Gianna but we feel like we are out in left field all alone waving with no one to help.
Here is a little of what's going on and maybe you can help or point us in the right direction... Right now Gianna is getting great help from her school district but we all know that only treats problems dealing with the class room... So we had her in private OT and waiting to pick up private speech. She started at a new place in January and now they have just informed us our insurance does not believe Gianna needs OT that she will "grow" out of her disability. We cannot afford to pay out of pocket for these services and I hate to think of the regression that will happen if we can no longer help her to recover. I feel like her OT should have been a great resource for us I was hoping that once we got her in to this program we would be with people who could guide us in the right direction as far as resources and support groups but they seem as much in the dark as I feel. So I have taken it upon myself to find out as much as I can on my own.
There has to be help out there for families like us... There has to be schools and groups out there for children like mine... What my daughter has is real and I refuse to sit by and let her suffer because insurance companies are ignorant! So I am not sure if there is anything you can do but ANYTHING would be appreciated!