How do I get my doctor or doctors to take me seriously?
by Ursula Gates
(Hampton, AR United States of America)
My daughter's name is Haley and she is 9 years old. She has had problems since birth that are similar to what I have read.
After begging the school for over a year to have her evaluated for sensory disorders I finally got the results. She scored -2 below the mean on almost all of her Sensory Profile. Below average on fine motor precision, fine motor integration, and manual dexterity. Well below average on upper limb coordination. Her visual perception is below average in basic and complex processes.
Her assessment was that Haley exhibits visual motor, coordination delay, visual perception delay, sensory processing difficulty, and motor coordination delay. She is getting 60 minutes a week now for occupational therapy. She has been in speech and language therapy since pre-school for 60 minutes a week. Her speech therapist said she has an articulation disorder.
Does this mean she has been diagnosed or will a doctor have to do this? I sent the results to my doctor and he has not got back to me. She is supposed to be evaluated by a developmental pediatrician. I sent off the paper work in mid-January. They said it would take about two months to get an appointment. It has now been almost three months.
I do not know what to do anymore. I am so frustrated! It seems her sensory problems are getting worse. She has also developed tics (rapid blinking and neck twitching) since last summer. She is progressively using hand-flapping and running from one room to the next over and over even after I make her stop. Her doctor says she will outgrow this, but it seems to be getting worse. All the private occupational therapists around here (which are very, very few) have a waiting list a page long. What to do? What to do?
Also could this be a sign of mild autism or mild cerebral palsy? I also wanted to add that when she was born she was not breathing for a couple of minutes. Could this have caused her problems? Could this be diagnosed as traumatic brain injury? She was born at 37 weeks 6 days.