"I don't know how to be happy"

by Donna
(Warren,RI)

SPD is so real. My 8 year old son has no idea why he is so unhappy. "Mom, why don't I like food, why does the water hurt my skin, why can't I catch a ball, why do I get so mad, why, why, why...................!!!!


I just want to cry some days (ok, most days). Everything is a chore for my son, (and a breeze for his twin sister). He has been going to a psychologist for 3 years and only now we have moved from an "adjustment disorder" to my own dx of SPD. After reading "Out of Sync" and the "Sensory sensitive Child" I have come to the decision this is what my child has. he has gone from being a happy child with the above issues to a very unhappy little boy. I think that as he is getting older he is noticing how different he is from other kids. It breaks my heart! I am waiting for the OT at school to give his teacher a Sensory profile to fill out. I just see him getting more frustrated and I'm afraid we have been wasting precious time.

Will he ever feel good about himself? It is so tiring to coddle him so he doesn't get upset. i know he cannot control this disorder but because he looks like any other little boy, people look at him like ...what a spoiled brat, control him, I wouldn't let my son get away with that'

It is so exhausting !!

Thanks for letting me just get it off my chest.

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Nov 05, 2009
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I feel for you both
by: Anonymous

My 3-yr old SPD son cries so much one would think he is physically abused by his parents. As our sons are so adversed to their surroundings, meltdowns are part of their lives. Like you, there were times I got so turned off by his tantrums I wanted to throw in the towel and disappear. Hugging and coddling him were the last thing I wanted to do.But our boys are not brats. They are born with a disadvantage. God gave them to us because we are the best moms for them. We stumble along the way but we pick ourselves up to go on with our sons. I enjoy every good moment, look into son's eye and tell him he's loved. Keeping you in my prayer.

Nov 03, 2009
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SPD è reale.
by: Anonymous

ciao Donna, sono spiacente per te .questo tuo racconto è simile a quello di molte mamme di bambini con SPD. ciò che è più triste il non essere compresi da medici familiari ed amici. poichè è poca o nulla a secondo dei PAESI, la conoscenza su Sensory processing Disorder.io conosco questo problema da vicino e so quanto sia reale.la nostra speranza è la dott Miller e la fondazioneSPD,affinche tramite mezzi di comunicazione possano divulgare la conoscenza su SPD. ti auguro buona fortuna.

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