I don't know what to do anymore
Hiya. I'm 16 years old and I have no idea how to cope with this. On some days, I can't help but cry sometimes because my clothes are burning me and because I can't eat this and that and because everything hurts.
I don't have no one to talk to about it, because apparently its rare and some doctors have never heard of it... :[ We've been everywhere. I've kind of just lost hope now. The rest of my life is just going to be pain full...
I am so lost... everything just kind of seems hopeless. :( x