I need help

by marsha
(wilmington, nc)

My son is 2 years old and was recently diagnosed with severe spd. he gets very anxious when around even a small group of people. He receives ot once a week. he recently started biting his tongue to the point of making it turn blue. The therapist says that his body just yurns for the sensations that comes from inflicting pain on himself. He screams at just about everything you can think of, but when he gets hurt or hurts himself he doesn't shed a single tear. My therapist says that i shouldn't be worried about it, but as an over-caring mother i can't help but worry about him hurting himself.


At church he will go in and be fine if there are only 2-3 kids in the nursery but no sooner it gets to be 5-6 kids he goes into a complete and utter breakdown. I do the weight training and deep hugs with him, but it doesn't seem to help. He cant calm himself, and no matter how hard i try to help he pushes me away. It breaks my heart to know that i cant help my son especially when he needs it the most. He cant say many words or express to me how he feels which makes the whole thing harder on me and him. Ive gotten to the point where i don't take him in public due to all the stares and whispering. I cant stand how people just stare and tell me that all he needs is a little bit of discipline. My son gets disciplined when he needs it, but i refuse to discipline him for something he cant control.

To top of the spd he has adhd as well. Any thoughts or comments as to what else i can do to help my son and myself through these hard times? I really appreciate the fact that im not alone in this. it brings me great comfort knowing that there are other moms going through the same things as me. Thanks for your time to let me vent and get a few answers. marsha

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Apr 06, 2010
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Something to take into consideration
by: Anonymous

You may want to make sure your child is SPD or ADHD or is there a neuropathy that is not being taken into consideration. Generally if a child in not responding to ADHD medication....you are not looking at ADHD but SPD or another neurological disorder. Also, find out what specifically is your child's sensory deficits and focus on tx'ing according to the hierarchy. If you are starting in the middle and the foundation is not established you are "spinning your wheels".

If your child is biting his tongue for stimulus, talk with your OT about IV tubing to chew on, fruit chewies, vibration in the mouth or at the TMJ on the outside, spicy or cold food items etc. (TMJ has the largest number of proproception receptors in the body) There is so much that goes into tx of ADHD and/or SPD and/or Autism that you need to make sure your therapist has the correct dx and tx approach. Tx approaches work if it is done for the right reason and according to protocol.

Research....research....research....and ask question....alot.

Feb 04, 2010
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SPD MOM
by: Anonymous

Hi does your son does really have ADHD cause from what ive heard they dont Dx ADHD till they go to school correct me if im wrong, i think that his attention and all that is from SPD . My 2 yr old daughter also has SPD and currently w/ OT we just start 1st wk of jan and i really really think that theres a lot of improvement since the OT her attention span is getting longer, putting lotion, putting hats in the head and cutting nails is a lot better. What her therapist did is do a lot of activity in balancing the hip and strengh stomach muscle, they also did a lot of playing all kinds of textures (eg shaving cream, playdoh, sand, whipping cream and etc).

The therapist also teach me the brushing method its Wilbarger Protocol, if you havent done that you might have to ask your OT. And you can also have activity at home that might help, theres a pretty good book called The Out-of-Sync Child Has Fun by Carol Stock Kranowitz. Its a very good book for activities for Spd kiddos.

Being a mom of child that has Spd is kinda a little bit of challenge, we just have to have a lot of patience. Good luck to you.

Feb 03, 2010
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SPD
by: Anonymous

Many symptoms of SPD and ADHD overlap. My daughter had a lot of the same things happening with her. Please be sure to see an OT who truly understand SPD. There is treatment and often you will see the "ADHD" symptoms disappear once the SPD is treated. Many OTs that I saw said they understood the SPD but there are few who really can treat it. Do some research and find an OT who specializes in SPD.... it will make a world of difference for your child and your family. It is difficult but you can get through it. I never thought I would make it through my child's SPD but we did! It took a lot of time and energy but as a family and with the help of our OT we were able to get to a point where my daughter's symptoms almost disappeared. With a sensory diet we are able to manage all of the behaviors! Hang in there!

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