(Boca Raton, FL)
My daughter will be 5 a week before school starts but we are holding her back in a speech-language preschool because our IEP coordinator at our school is clueless.
My daughter panics at certain sounds and events- fire alarms, whistles, being in a crowd, being in front of people, are some of these problems. If she panics, the school system will probably chastise her or do their own testing for autism.
She doesn't have autism, just severe sensory probems. She has a wonderful neurologist that suggested an advocate and private testing, which we can't really afford. My daughter already has an IEP which is very thick- the IEP coordinator at our home school said, based on a cursory examination, that she didn't need any special services.
She has fine motor issues (she can read but can't write or draw something she wants to, just scribbles)- she can't use scissors despite an OT at school saying she could. The OT directs her hands...surely a teacher in a classroom of 16 won't be able to do that.
She needs help eating as she gets distracted and won't eat enough to keep her from getting very hungry and upset.
She was just diagnosed with a genetic disorder or which SPD is part of the symptoms of the disorder. (Smith-Lemli-Opitz syndrome.
What have other people written in the IEP to address the sensory defensiveness in particular? Holding her hands over her ears and screaming won't be understood at our public school...I don't know what to do.
Homeschool isn't much of an options as she has a very short attention span and needs interaction with other children (other than her brothers who are at school).