Is it too late to start treatment at 14?

My son is 14. He got learning problem and was told he got SID recently. They told me it's too late to have a treatment because there is any course for him. Is it true? What can I do for him? What will happen if he don't have any treatment? Thanks for suggestions! ----an anxious mother

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my 9 year old son continued
by: momofreed

NO one talks about this , so im going to, MY SON iS A HORRID CHILD AT SCHOOL!!! because he has SMD, sor, and they refuse to recognize it, they offer him the sensory room or the weighted vest after he starts to melt down and of course hes too far gone then, so i get a phone call and they have my child in a prone restraint the entire time until I get there, they have made him urinate himself, the whole restraint thing is allowed, but it makes me angry that i turn in a script for this center based 80 people school, for him to get ot, they didnt until two weeks ago twice, and they have no intention of carrying it on! My son looks "normal" so he must just be a brat, and I must be a bad parent, so i will fight for my son be his advocate, since the advocate I have doesn't believe my son was called a name, but she does believe he believes it... SO IM telling you, take your kid to another therapist who will tell you where you can get some ot, or now that you have a DX, ask your school for an IEP for your child, and demand a behaviorist, and a oT observe him and have them give you their ideas. BY LAW THEY MUST COMPLY!!! go to wrights law, they will tell you all of your rights per State. GOOD LUCK to you, and Good luck to us all!! oh and i love my son so very much, he has the biggest heart of any kid I know! would I change things if I could? absolutely, why would I want him to have to try 3 times as much as everyone else just to get a "normal' grade or look, why would I want his life to be as hard or harder than mine? I dont, and by doing his oT , im counting on it to accumulate, so he can live a HAPPY and productive adult life! thank you!!

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my 9 year old son
by: Anonymous

my son is now 9, I found out he had SPD at age 7. I had to be the one looking to find out what was wrong. Because I knew it wasn't JUST the ADD.Now I found out (by more research) that he specifically has SMD, with SOR. My problem is at his center based school, they're used to dealing with kids that have eI, but not SPD, so they feel my son is CHOOSING, when to meltdown (they say tantrum, or brat)and when he is regulated. My big problem is , his insurance wont work with one of the 2 OT (out patient) places that take sPD kids, SO, I have just been doing the research and trying different things at home, and remembering what I used to do. my mom called it my "nothings" the doctors said 35 yrs ago I had HD, no ad, just HD, who has ever heard of that? But all of the things, my son does to a certain extend I did too, and my mom who never heard of these things bought me climbing outside toys for inside the house, and let me hang upside down on the couch, i had an inside monkey bars. So When my son at 3 was hyper like me, it wasn't to big of a deal for me to make him an indoor sandbox, or get him the small trampoline, or tell him he could jump on his bed all he wanted! now that I can not take him to an OT, the school one has given me some ideas, from her observations, and said he needs this at least twice daily. so okay, ill keep on doing what i have been, allowing him to be him, without people making fun of him at home, like they good naturedly did with me. it used to bother me so, but I never said anything!but wow did I have low self esteem! So I wont let that happen to my son, and you wont let it happen to yours! I now have 9wow what I find here) a giant aK Rocker gaming rocking chair, and a seat back massager, both things he loves from his school sensory room. I bought a scooter for him, and he loves his skateboards, he has helmets and knee pads, because i put wood flooring in one room, so he can use his skates and boards in there. He also loves taking cars apart, and crashing THEM, NOW i GET THEM FROM SECOND HAND STORES OR YARD SALES, AND GIVE HIM A BOX AND LET HIM GO TO TOWN, HIS MOTOR CONTROL NEEDS WORK, USING THE TOOLS TO RIP Everything apart helps. I am buying a small blow up pool, and 500 balls , smaller ones (amazon for 50-60 bucks, the pool is 12.99 on sale)because at school he likes to submerge his whole body in the ball pit, theirs is rectangle, and his oT says he comes up Calm. now that you have a DX, ask your school for an IEP for your child, and demand a behaviorist, and a oT observe him and have them give you their ideas. BY LAW THEY MUST COMPLY!!! go to wrights law, they will tell you all of your rights per State. GOOD LUCK to you, and Good luck to us all!! o ~Dawn SPD Warrior (cr pending)

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It's not too late!
by: worshippirates@gmail.com

It is not too late! Talk to another therapist. I wasn't diagnosed with SPD until I was 25. I am now 28 and after just a few months of OT and cranial sacral therapy ( with a therapist that deals with sensory issues) , I am enjoying life in a more "normal" way. I don't wear compression clothes anymore, or spend 5 minutes trying to line my socks up perfectly, most sounds don't bother me anymore, I 'm not even bothered by the sounds of kids ( before I couldn't even deal with a clock ticking in the house!) , I don't have the urge to throw things, and for whatever reason I have some rhythm ( I can now do aerobics). The Upledger institute in palm beach gardens, FL has an excellent intensive program ( one week long) for sensory issues. Dr. John Upledger is the creator of cranial sacral therapy. I didn't do the intensive program but I did travel from out of state to go to the Upledger clinic before.
Danielle

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My daughter is 17
by: Lori

I would love to compare what you have observed about your son to what I have observed about my daughter. She has low quiz/test scores and cannot retain information. However, her grades do not warrant testing according to her school---she doesn't have straight F's. Yet, it has impacted her self-esteem, motivation, and more importantly, her ability to retain very critical information like---turn RIGHT on red, not LEFT. At a point where she should be gaining independence and self-sufficiency, we have had to pull her back because she is not aware enough.

I am having her tested next week by an OT who works with adults through age 22. Do not think it is too late---many adults have figured it out much later. I am encouraged that self-knowledge is empowering and a major step towards treatment. My hope for my daughter is to understand herself, her unique learning style and find ways to compensate for the SID.

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