Looking for answers


(Indiana)

My son will be 5 in November. I have always worried that he may have autism but my mother in law, who is an OT says there is no way. He is a very sweet little guy. He engages with other kids and plays, he's learning at a normal rate, he loves to interact with his younger siblings...someone from the outside would never think anything different about him....however, ever since he was able to crawl, he would rock back and forth in the crawling position.


Today is continues to rock (VERY hard) when he is awakened at night, he turns his head back and forth (very hard) in his car seat while we're driving, he loves rocking in our recliner for long periods of time. He also has a love for fingernails and toenails. He will rub your nail (with his hands and/or feet) and grab at the edge of the nail, also. He will do this to anyone who will let him. He also sucks on his tongue when he's tired or feels anxious. He gets tense and flaps his arms when excited about something. He has also withheld his bowel movements since 18 months old and we're still dealing with that today.

Lastly, he has a hard time following commands. You have to tell him multiple times to do something before he seems to understand. He has a hard time playing sports because he never knows what he is supposed to be doing. I've always just called these his little "quirky" behaviors and reading through other stories on here, I've read the work quirky from other parents. I'm just trying to figure out if any or all of these are SPD related and what in the world is my next step?

I'm just so fearful of him getting into school and being made fun of and therefore having a low self esteem. I want to help him and also figure out if these are just quirks, or if there is a name to put with them. Thank you for any suggestions you may have!!!!

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Aug 03, 2009
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answers to your questions I hope
by: Jane R.

I can only describe my son and hope that you do not see any similarities.

He can only speak in an "I want" sentence. His expressive is very low. He is able to tie his shoes though and cut out shapes and objects very well. Sensory wise, he is very hypo sensitive when it comes to body and is very proprioceptive. Needs to stomp feet, sometimes loud vocals yet he cannot stand anyone who cries screams and expresses any loud vocalizations.. or any tone of voice. He does not rock back and forth yet he likes going for a ride in the car. He loves the pool and gets upset if he doesn't go for a while. I could go on and on. If you want to talk off line I am available.... My husband once lived in Indiana...i think it's quite overwhelming.....

Aug 03, 2009
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autism
by: charlene OHIO

Well my son sounded exactly like your child until he was diagnosed with PDD-NOS and SPD PDD is not actually autism, but it is a paid diagnosis unlike SPD that encompasses alot of the sensory issues. My son is so friendly and engaging that no one would know his diagnosis until I tell them or until he has one of his little quarks come out.

Please take your child to an outside OT for evaluation, and also get your pediatrician to give you a referral to a developmental pediatrician. They specialize in a childs development. My son is above average in school work but is a little different socially, and has sensory issues which after researching the PDD-NOS diagnosis I totally agree with it.

If getting your child a autism, SPD, man on the moon diagnosis (smile) gets him the help he needs to function in the world then who cares what the "title" is. If you worry too much about the diagnosis and not about what help can be received from the diagnosis then your child may be left out. Please keep looking for answers. Mothers know when something is not right don't let anyone no matter how well intended make you doubt your instict. Good luck. God bless

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