Mothers tears

by Amanda
(Ohio)

I know it's been said before, but I have to say it.... WOW!!!! The day I googled "my child doesn't like the way her clothes feel", I was at work after a very tiring morning of trying to get my daughter dressed for pre-school. The feeling of relief that I may have found the answer, seeing everyone's stories match up to my own, the joy I felt was wonderful.


I called just about everyone I could think of to let them know I wasn't alone, and she is normal, in a different way. I was beginning to think that she was bipolar, and even autistic at times, I just wasn't able to put my finger on it.

Now we go for a evaluation with a therapist this month. The only question I have for all you parents is how would you describe your child's mood on a daily basis. I still struggle wondering why she can be so moody? I have 4 other kids, and my oldest is 11 so she is the middle child more so... so I wonder if she has the middle child syndrome? Or is this all part of SPD?

Mornings are the worst because of her clothes, once we get past that... it seems like at any given second she can become upset because something didn't go her way, or you didn't do something the way she wanted, she is constantly wanting me to say things that she thinks I should respond by (and this is usually after big melt downs), she is 4 years old so some things are understandable.

By example after a melt down she may tell me she is done, done crying, and she looks for me to say "ok your done", and if don't she will cont to say that and gets upset if I don't say the right thing.... So is this part of SPD or could she have a mood disorder also?

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Apr 14, 2010
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You are not alone!
by: Anonymous

I can very much relate to what you are saying. My 5 yr old daughter also wants me to say things a certain way when she is upset. In the past I thought this was a battle of wills and that she was trying to overthrow my authority. When I talked with our OT about it she said that my daughter feels so out of control inside that she tries to control everything on the outside, including other people. Her advice was to comply as much as possible. Which is easier said then done!

The other parent could be right about it being something else like ocd. That is something I've heard about my daughter before as well. But we are just beginning to understand SPD and unless it becomes completely unmanageable will stick with the path we are on for now.

Thank you for sharing it helps me to know other SPD kids have that particular behaviour! Good luck on your journey!

Aug 16, 2009
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Anxiety and OCD
by: Alisa

I relate to your story....

I have 4 children with different degree's of sensory issues. My worst effected child is now showing signs of Obsessive Compulsive Disorder.

When I read the part of the story about her needing to say a certain sentence after shes calms down and counts if you don't in made me think of OCD. You may want to research OCD just to make sure your child is not developing it. I have OCD and I now believe it started due to a sensory disorder, and my 9y has been showing sings of OCD since she was 5y and some very minor signs since she was 3 after a death in the family. My 12y is also showing some signs of OCD but know where near as disruptive to the family.

My 4 year was diagnosed as a baby as having a sensory integration disorder and has now been diagnosed with general anxiety's, not yet disruptive enough to be seen as a disorder. The more people around him the harder he is to interact with and the more melt downs he's has.

One on one in quite environment you would wonder if he was the same child. I've been seeing OCD type of behavior since he was 6mths. I don't believe he has OCD YET but I'm monitoring him and trying not to be part of anything I believe MAY be a compulsive reaction to sooth an obsession. By taking part in a persons (with OCD)compulsive act you will make the obsession worse and compulsion will eventually get worse to sooth the Obsession. I comfort with hugs and kisses and even rocking, I use words but I use my own not ones my kids insist I use. I just explain that its's not nice to tell people what to say, how would you feel If I told you what to say all the time.

I have dealt with plenty of melt downs because of this but over time they become less intense and even stopped happening in many situations. Its ok to have fun with the child or sooth but if your worried that by not saying/doing what she say will cause a melt down you may want to talk to a Phycoloigist/Phychioatrist about anxiety and the possibility that she may have obsessive compulsive behavior. My some has been diagnosed with obsessive behavior as yet is not showing serious signs of compulsive behaviors. His Phycoligist has told me to take control and not give in to his obsessive controlling behaviors.

I was told by a OT that children with sensory disorder can often develop anxiety disorders and OCD.

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