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My 5 year old daughter diagnosed with ADHD, possibly SID? Help!

by Nicole
(Massachusetts)

My 5 year old daughter was recently diagnosed with ADHD (according to a multiple choice form filled out by myself and my husband, and one from her kindergarten teacher). Her pediatrician scored the forms and called me to say according to the forms she does have ADHD. When I asked her what we should do to help her, she gave me the name and number of an OT.

I recently brought her to see the OT for an evaluation. The therapist told me that she does not see any ADHD, and that my daughter has SI issues. I've been reading about SI since, and am very confused. She does have some of the symptoms, but not the telltale issues with textures and touch. She is bright, energetic, and has a lot of personality. I've occasionally wondered about ADHD, but even that isn't obvious.

Her symptoms are fidgeting, excessive talking, and difficulty completing tasks on her own (her kindergarten teacher says it is the most significant factor in her learning). She talks constantly, and is often funny (I don't think she always means to be). She is very imaginative and is almost always pretending something (right now she is crawling around on the floor pretending to be a baby dinosaur, and talking to herself about it the whole time). She often gets lost in her games like this and has difficulty transitioning to something else - if I ask her to get dressed it is very difficult for her to stop playing and get dressed and I have to ask her multiple times, or speak very sharply to her before she will do it. She talks to everyone - total strangers in the store, adults, other children, animals. She does lack strength in her trunk (she can't do a situp, and she can't do the flying position on her stomach). She can focus on something she's interested in - she will sit and play computer games for hours. She is left handed, although occasionally does things with her right hand. She's a little picky with food, but not abnormally so for a 5 year old. She is disorganized, bumps into things a lot, loses things all the time, doesn't pay much attention to keeping her clothes/hair/face neat.

I'm very confused - her pediatrician is sending us a letter with the ADHD diagnosis that we are supposed to give to the school. But she sent us to an OT for SID, who told us she does not have ADHD. Do her symptoms sound more like SID? Should I give the ADHD letter to the school? Is there a more definite way to figure out what is wrong (if anything)? I would appreciate any advice at this point - I don't really know what to do. Thanks.

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My 5 year old daughter diagnosed with ADHD, possibly SID? Help!

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Apr 16, 2009
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Hi,
by: Anonymous

My daughter's story is so similar. She was diagnosed with both disorders in 2nd grade. OT helped dramatically by helping her learn coping skills in class, but she always works harder than anyone I know just to maintain the basics and is completely burned out when she gets home. Things would get better then bad again.

We started her on ADD med. after starting 5th grade. Her self esteem was so low. She now takes a tiny 10 ml tablet and she can finally concentrate in class and not on the distractions in the classroom. I wished I hadn't let her struggle for so long. She can now perform to her potential and her self- esteem is through the roof. We found that the ADD diagnosis helped her qualify for school assistance that SID won't. So you may have better luck getting her extra help using the ADHD diagnosis. She may never need it but also the kids with ADHD qualify for the 504 which is protection against being left behind in school.

Until recently my daughter was such a mixed bag when it came to grades. One day brilliant the next day a mess. We always knew she was smart but would never see it on a test, she was too busy listening to the sound of the air-conditioner or to the birds outside. The 504 was critical for her. I would advise more than anything watch her self- esteem these kids work so hard and sometimes get disappointing results it's really easy for them to believe they're not as smart as other kids.

Apr 16, 2009
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Hope this helps
by: char113

The OT personnel are usually more versed in what true SID/SPD is. Physicians and teachers are more apt to think a child has ADHD. It is a possibility that your child has both or just the SID.

My son sounds just like your daughter. He does not have any tactile issues and is fun, energetic, and talkative, he also has a hard time transitioning from one thing to another but he does not have ADHD. A lot of children with SID are misdiagnosed with ADHD and really need a true diagnosis of SPD. Unfortunately SPD/SID is not a covered diagnosis but things like ADHD, and ADD are.

I would give them the papers just so that your child can get the correct transitional cues she needs, she may need more of a warning before changing from activity to activity rather that warning be visual or auditory. Both of these have worked with my son who is in PRE-K. Hope this helps...

Apr 16, 2009
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We have the ADD diagnosis
by: Anonymous

My son, SID, has SID and is formally diagnosed with ADD. It gets him help he needs. SID affects your ability to concentrate and attend to task. It is more of a cause of not focusing for him. Hope this helps.

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