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My 5 year old daughter diagnosed with ADHD, possibly SID? Help!

by Nicole
(Massachusetts)

My 5 year old daughter was recently diagnosed with ADHD (according to a multiple choice form filled out by myself and my husband, and one from her kindergarten teacher). Her pediatrician scored the forms and called me to say according to the forms she does have ADHD. When I asked her what we should do to help her, she gave me the name and number of an OT.

I recently brought her to see the OT for an evaluation. The therapist told me that she does not see any ADHD, and that my daughter has SI issues. I've been reading about SI since, and am very confused. She does have some of the symptoms, but not the telltale issues with textures and touch. She is bright, energetic, and has a lot of personality. I've occasionally wondered about ADHD, but even that isn't obvious.

Her symptoms are fidgeting, excessive talking, and difficulty completing tasks on her own (her kindergarten teacher says it is the most significant factor in her learning). She talks constantly, and is often funny (I don't think she always means to be). She is very imaginative and is almost always pretending something (right now she is crawling around on the floor pretending to be a baby dinosaur, and talking to herself about it the whole time). She often gets lost in her games like this and has difficulty transitioning to something else - if I ask her to get dressed it is very difficult for her to stop playing and get dressed and I have to ask her multiple times, or speak very sharply to her before she will do it. She talks to everyone - total strangers in the store, adults, other children, animals. She does lack strength in her trunk (she can't do a situp, and she can't do the flying position on her stomach). She can focus on something she's interested in - she will sit and play computer games for hours. She is left handed, although occasionally does things with her right hand. She's a little picky with food, but not abnormally so for a 5 year old. She is disorganized, bumps into things a lot, loses things all the time, doesn't pay much attention to keeping her clothes/hair/face neat.


I'm very confused - her pediatrician is sending us a letter with the ADHD diagnosis that we are supposed to give to the school. But she sent us to an OT for SID, who told us she does not have ADHD. Do her symptoms sound more like SID? Should I give the ADHD letter to the school? Is there a more definite way to figure out what is wrong (if anything)? I would appreciate any advice at this point - I don't really know what to do. Thanks.

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My 5 year old daughter diagnosed with ADHD, possibly SID? Help!

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Oct 12, 2011
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Been through this
by: Anonymous

My son was diagnosed with a mild form of Autism when he was 2. I cannot stress to you how important it is to listen to the OT. They really know their stuff. I would first start with the OT therapy. I would at the same time ask your OT if they can recommend a place to get some additional testing done. Find out if there is anything else going on and make sure you aggressively follow the therapy recommendations. The ADHD is probably going to be a part of all of it and in very small doses could be very helpful to you and she will be able to slow down and focus on the therapy you will be getting.

Our son is 10 now doing very well considering and he also is on ADHD meds. Good luck and keep us posted.


Oct 12, 2011
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Any luck
by: Anonymous

To the person who posted recently...have you had any luck? We are trying to figure it out with my 4 year old. She sounds alot like this child too, except she does display more tactile and auditory defensiveness. I was told that it could also occur with ADHD though. Still meeting with doctors and psychologists...waiting on an OT. It doesn't help that the ones we have been sent to so far don't seem to know much about SPD, much less how to differentiate between that and ADHD. Hopefully we will have answers soon. Good luck to you as well. :)

Sep 17, 2011
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My 5-year-old
by: Anonymous

How you describe your daughter at 5 is exactly what we see in our daughter! I'm curious what you have found out through the process of finding answers. We are desperate for answers.


Jan 17, 2011
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Don't give up hope...search.
by: Ross' mommy

My son is 6 years old. At the age of 21 months he received his MMR and that was all she wrote. He changed. It took me 2 years to get someone to listen. An Autism group in Knoxville, TN. I spoke to the lady and she got me in touch with a child psychologist. I went above doctor heads. I went to the one who deals with the mind.

He did an evaluation on my son, we did forms and question-airs like you and then followed thru with a plan. My son was being labeled ADHA with possibilities of Asperger's syndrome and SID. BUT we had to go thru literally HELL to get things moving.

After a 18 month run Ross was re-evaluated and diagnosed with Asperger's Syndrome and SID...NO ADHA at all. The psychologist apologized to me over and over for not finding it first, but he says you have to see just what is wired wrong before you can fix it.

Ross was setting things on fire if he found matches, he has no fear of traffic and he is easy to set off if allowed to do certain things. He loves to feel of fabrics, but if I let him touch to much he melts down. If he goes to ball game he cries due to all the noise. He can't concentrate. He hates flashing lights they cause him headaches and I am not allowed to burn certain candles in my home unless he has 'sniffed' them first because these things cause melt downs too. ALL part of his SID.

don't know if this helps, but seek a psychologist and dive deeper into your childs mind. Here is for HOPE and ANSWERS...

Dec 29, 2010
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A Specialist Knows Best
by: Anonymous

We have been going through similar issues with my son. My recommendation to you is to take your daughter to a developmental pediatrician. He/she should recommend that your daughter go to a school age clinic or something similar where she will meet with a team of specialist that will test her. They look for not only how she does on the test but how she is physically and emotionally while the tests are being done. We have been looking for an answer for 6 years and finally, we know. Take your daughter to get tested. My husband and I both feel those questionnaire forms only tell part of the story - for a true diagnosis the doctor needs to see the whole picture. I hope this helps you! Good luck!

Aug 02, 2010
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i hade adhd
by: Anonymous

i have adhd, i was very when i was younger all i did was talk and talk, always had a great imagination, when we would have family gatherings i would always dress up in costumes and entertain people, everyone always used to say that i was going to be and actess people tell me that i was very bright when i was young they say when i talked i sounded so mature every one used to be surprised.by the time i was 9 my parents always asked me for advise.till this day i cant finish tasks,i get very distracted my sounds, i lose or misplace everything, im allways s in a hurry.i had a lot of similarities with your daughter but i have wayy more sensory issues and i still do. add/adhd and sid are very very similar and very hard for even doctors to tell them apart then their young, but the thing is if she does have adhd you should be very very happy that she was diagnosed this early beacuse it wount affect her life as much.


ps sorry is i made a lot of mistakes b ut english is my second language

Jan 04, 2010
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I don't know much about SID but could this be Aspergers?
by: Anonymous

is it possible that Asperger's is the diagnosis because all the symptoms listed could also be Asperger's. My older sister has this and talks often of Sensory Processing differences but also difficulty focusing, being very involved in her own world and what she is doing, very picky eater. She was popular as a young kid and very intelligent but would have preferred to be on her own doing whatever she was into at the moment than spending time with other kids her age. Her social cue understanding was not the same as her peers.

As she got older she didn't always connect with the main stream socially but had some friends. She has difficulty with the deadlines and structure given to complete academic and vocational tasks but completed college at a top university but wasn't diagnosed with Asperger's until her late 20's. For years she didn't know why she was having such difficulty.

Now that she knows she has been able to work on specific skills to improve and feel more capable having to play by other's structure and deadlines. People with Asperger's just experience the world in a different way, it is unfortunate that most of our society is not set up to respect this and see it not as a deficit but instead as a potential benefit from looking at the world from a different perspective new discoveries and abilities can occur.

Apr 16, 2009
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Hi,
by: Anonymous

My daughter's story is so similar. She was diagnosed with both disorders in 2nd grade. OT helped dramatically by helping her learn coping skills in class, but she always works harder than anyone I know just to maintain the basics and is completely burned out when she gets home. Things would get better then bad again.

We started her on ADD med. after starting 5th grade. Her self esteem was so low. She now takes a tiny 10 ml tablet and she can finally concentrate in class and not on the distractions in the classroom. I wished I hadn't let her struggle for so long. She can now perform to her potential and her self- esteem is through the roof. We found that the ADD diagnosis helped her qualify for school assistance that SID won't. So you may have better luck getting her extra help using the ADHD diagnosis. She may never need it but also the kids with ADHD qualify for the 504 which is protection against being left behind in school.

Until recently my daughter was such a mixed bag when it came to grades. One day brilliant the next day a mess. We always knew she was smart but would never see it on a test, she was too busy listening to the sound of the air-conditioner or to the birds outside. The 504 was critical for her. I would advise more than anything watch her self- esteem these kids work so hard and sometimes get disappointing results it's really easy for them to believe they're not as smart as other kids.

Apr 16, 2009
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Hope this helps
by: char113

The OT personnel are usually more versed in what true SID/SPD is. Physicians and teachers are more apt to think a child has ADHD. It is a possibility that your child has both or just the SID.

My son sounds just like your daughter. He does not have any tactile issues and is fun, energetic, and talkative, he also has a hard time transitioning from one thing to another but he does not have ADHD. A lot of children with SID are misdiagnosed with ADHD and really need a true diagnosis of SPD. Unfortunately SPD/SID is not a covered diagnosis but things like ADHD, and ADD are.

I would give them the papers just so that your child can get the correct transitional cues she needs, she may need more of a warning before changing from activity to activity rather that warning be visual or auditory. Both of these have worked with my son who is in PRE-K. Hope this helps...

Apr 16, 2009
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We have the ADD diagnosis
by: Anonymous

My son, SID, has SID and is formally diagnosed with ADD. It gets him help he needs. SID affects your ability to concentrate and attend to task. It is more of a cause of not focusing for him. Hope this helps.

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