My OCD ODD SID ADHD son!
by Heidi Miller
I know my child has a SID of some form. I have read about this since he was 3 and have been trying to get some type of treatment for him or help in a logic form. The other day his Dr called after he had a speech study done and asked how I felt about putting my son on Prozac. Come on, Prozac. Coke and Dope a 5 year old cause he wouldn't sit still for 2 and a half hours while some strange lady asked him to play with barbies.
I sat with my son while they tried to get him to engage in "house play" Mommy daddy baby. The examiner would not let my son turn off the lights in bright doctors office and open the door. She also never once asked if he wanted to jump on the trampoline that was right outside the door. She never tried putting a weighted blanket on his lap to help him sit still. Her words were Chandler if you sit still we will be able to finish quicker.
Now 3 days later I get a call from his Doctor (not the person who did the test) and her recommendation is Prozac. My son was not diagnosed with any disorder yet. They have tried ODD OCD and Anxiety Disorder. They want to prescribe medicine but not give a diagnoses.
Now here is the fun part my insurance will not cover OT! That's right if my son does have some form of SID then I can't get him help.
My son has the hypo-responsive SID but some days it's not as bad as others. I am looking into sugar and his response to it over a 2 day period. Hoping there is come connecting but then again not because how do you tell a 5 year old he can't have cake it has sugar in it.
Chandler started walking at 9 months he didn't speak until he was 3. Not even mommy. Chandler has so many Sensory sensitives/non sensitives that I could go on for days. Right now our main one is picking his nose and eating what comes out. I am not talking just a kid eating buggers. I am saying my child has picked his nose so much his nose has a slit in the corner from his finger be in it so much. He is also dealing with a peeing habit at the moment, he pees every 30 mins to an hour. As soon a drink hit his bladder he has to get it
I am tired and frustrated with my son, myself, his doctors and the school.
I did have him tested at school but they found him to be above his grade level so academically there is nothing wrong. He is fine at school so his teacher says. But as you and I know Kindergarten is packed full of sensory filled activities. Fifteen min sessions each then switch. The only thing Chandler does not like in school is computer lab "because it's so long". Not sure why really I think it was some thing to do with wearing the ear phones and lights and the computer screens all at one time. Though he does go cause he is scared that "the principle will get him".
The scary part my son escapes from me. I have to watch his every move. I seen him pushing the buttons in an elevator one day and he walked right in it. Down went the elevator and I went racing down 3 flights of stairs. I was on the ground level where I figured he would go to see the water fountain. To my horror he was not there but I could hear him screaming from within the elevator not inside it but in the shaft. I got the doors to open and asked him to clam down. He told me he was stuck inside the elevator and could not get out. I am in the elevator so I know he can't be there. I called 911 and had to have the fire department find my son. Needless to say he was on the basement level and could not push the large medal doors open to walk back up the steps. This was age 3.
Now we have extrema problems about holding hands it's always to tight. No matter how you hold his hand it's to tight. The other day I was holding his arm trying to get him to put on a jacket on in 30 weather he pulled away from me and stepped in front of a car that was 3 inches from his face. He didn't get hit but my heart broke at that moment I do not feel I can no longer protect my child. I can't provide care for him and I don't know how to get him the help he needs.
So now with all this information. Wouldn't it be illegal for the insurance company not to cover my sons OT because it is interfering with his LIFE and could cause his death if he continues without treatment?