My Son is now 12. He has Cp and Spd.

by BD
(Michigan)

From BD in MI


My son is now 12. He was diagnosed at the age of 2 with mild left hemiplega cerebral palsy and sensory processing disorder - mostly tactile defensive, but he fits under other spd categories as well. He didnt walk until 14 months of age because he didn't like the way the ground/floor felt under his feet. He wore leg casts and shoe inserts, but he couldnt stand these and would take them off. When he started walking, he would tiptoe. As he got older he didnt like to fingerpaint or manipulate playdoh. To him a slight touch felt like a punch to him.

So many times i have had to explain to teachers that he is tactile defensive and that it is important to prevent things from happening - especially during transitions and unstructured times such as lunch and recess. Too many times i would get calls from school that my son was suspended for hitting someone because he was touched by another student. Too many times i had been told that he wont tell us what happened. When he is upset he cant explain what happened because he doesnt even know. Too many times i have tried to explain this!

Sometimes i feel that i am alone in this. I hate that he is being labeled as a behavior problem rather than a child with a disability! This year he starts middle school and i am very worried!

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Jan 23, 2015
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Hai
by: Sam

Why don’t you try the hospital in Minneapolis? They are the best in this industry for treating these kinds of illness. I think you should consult these guys. I think you need to get an appointment which is free before you consult the doctor.

Jun 11, 2013
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There is hope, help
by: Anonymous

I have a 10 year old with SPD and we ended up homeschooling. It was nearly impossible to address sensory issues especially tactile defensiveness in school. They were not very understanding about how truly uncomfortable this is for our child.

There are a lot of children who homeschool due to medical, developmental or other conditions that make school painful for them. I don't know if that is a possibility for you, but I thought I'd mention it.

The other thing is to find an OT therapist experiences in SPD that can provide therapy for him.

You're not alone. There are many parents out here in the online community with similar issues.

Aug 22, 2012
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RE: CP and SPD
by: Anonymous

Hello! I am a mother to a two year old boy with global developmental delay based in the Philippines. Maybe you could consult a doctor? Good luck. You are not alone.

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