My Son

by MaryEllen
(Utica NY)

I have a 19 yeard old son who has been diagnosed with ADHD, OCD and BiPolar since the age of 5. He has been on every medication for all of the diagnosis and none of them have worked. He was re-diagnosed with Aspergers Syndrome.


After reading through the checklist form infant to adult, I am now convinced he also has SPD. He has at one time and still has almost all of the signs of this disorder.

I have never heard of SPD untill I was doing an internet search for Aspergers.

I am planning on having him seen and tested for this disorder.

I plan on sharing this information with everyone I know.

Thank you

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Jan 12, 2016
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misdiagnosed and medicinally treated
by: Anonymous

I am a 43 yr old woman with ADD/ADHD, SPD, & suspected of having ASD. I say "suspected" of having ASD because I kind of flipped out on my doctor when he expressed it as something that I should be tested for. I have come to the point where I whole heartedly accept and embrace these to be true of me. But THIS was a very LONG time comin'! I was misdiagnosed countless times, since early childhood. In my late 20's I sought out "help" for what my now EX-husband referred to as my "mental illness". I gladly sought professional help, a diagnosis, & treatment... because I knew if my marital strife was caused by my "mental illness"... I could and WOULD fix myself to fix my marriage.

I was diagnosed bi-polar/manic depressive. For the 6 years following that diagnosis I was fully invested in "fixing it". I did everything I was told to do by my psychiatrist. Took every medication prescribed... & let me tell you, there were A LOT of them, most with gnarly side affects, some permanent. But nothing helped (and despite what the doctor saw as improvement, "emotional response erasing" medications, that remove ALL emotion...did not equal "improvement" in my book). I began doubting the diagnosis. I had been diagnosed with ADD when I was 20 but that was before they knew JUST how much it DOES affect your daily life.

After 6 years of bipolar meds though... I decided to start researching ADD. Turns out ADD wasn't the only issue. There was a time where I felt a great deal of anger at the medical community for its absence of perfection. I was very angry at the doctor that misdiagnosed AND treated me for YEARS...for something I didn't have. Now I can see how similar the symptoms are for VARIOUS issues (ADD/ADHD, SPD, Bipolar Disorder and more) ... how one's way of expressing and verbalizing symptoms can be misinterpreted...and how easy it is for us as individuals to be confused by symptom similarities. I'm no longer angry about it. I'm just as guilty :? ...I OBVIOUSLY don't know squat about your son's diagnosis. I am ABSOLUTELY not saying or implying that what happened to me has happened to your son. What I do know is that it doesn't hurt to research your concerns, get a 2nd or even 3rd opinion from professionals specializing in the areas you suspect. Continue his treatment but take your doubts, your concerns about his diagnosis to heart and continue searching for answers.

I was deeply touched by your concerns... even when I expressed MY concerns about my bipolar diagnosis being wrong... and my despair that the treatment STILL wasn't helping...my families response was anger at me for doubting. Your son is VERY lucky to have you. I truly hope you and your son find relief and consistent happiness...gotta say "consistent" cuz I'm extremely literal & can only suppress it for so long before I POP! :P ...snicker :D I wish you all the best! :)

Sep 16, 2013
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Similarities
by: Anonymous

My husband is diagnosed bi-polar, as we're his father and grandfather, but I'm not convinced that's the problem. I was thinking he's got ADHD, but dont know. Looking at this list for myself has made me realize how many he has and how many my little sister (with Aspergers) has. Now I'm wondering if he and my sister both have this and Aspergers*. Gonna look into it.

Sep 19, 2012
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aspergers
by: Anonymous

Hi, i,m a mother of a 8yr old boy. I first noticed the difference in him at an early age. He didnt like being flung around like most children. He preferd hugs. At 5yrs we had him seen by an occupational therapist who diagnosed reduced proprioception. glory glory, i knew their was somethn, we then noticed he,d put his hands over his ears alot, especially with loud noise. Oversensitive hearing was diagnosed. We sought out a listening therapy. The TOMATIS programe.Has helped alot.He wears tinted glasses also helps. We put him on omega3 fish oil and oh boy what a big big difference in him. Alot calmer esp. at school. I wish u well for you and your son. If i can help leave a reply 2 this.
Marjory

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