New to this, but not really..

by Mindy
(Denver)

I am 33 years old and have just discovered SPD because my son is currently being evaluated for it. I also have SPD myself. I have strong hypersensitivities in areas of light, noise and touch. I am also hyposensitive in my sense of smell. I don't have an official diagnosis for myself, but my behavior now and as a child is strongly indicative of SPD. Even my sister, who is four years older than me and has a son with hearind difficulties, can attest to my SPD behavior as a child. I have also always discribed myself as hypersensitive.


What I am finding most difficult now is how to be a parent with SPD to a child who has SPD. I'm ready a great book about how to be a parent of a child with SPD, but feel lost when it comes to dealing with my own struggles and then trying to create the best environment for him. Also, my son and I both suffer from migraines. This makes it even more challenging.

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Mar 30, 2011
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Hope this Helps
by: Anonymous

Thanks for leading me to Feingold.org. I watched their video on youtube. It was an amazing short video to watch. I NEVER knew that food contained crude oil!!!! I will now be on the look out for chemicals such as BHA, BHT, TBHQ in my food and food coloring.

I also found out my child has Celiac disease and ADHD is also a symptom of this and that there are over 300 other symptoms that include disorders such as Hypotonia, even Lupus has been linked. I have also read that Bipolar and depression have been linked too. Migrains have been linked to this disorder too. You should get screened for it. I NEVER thought my daughter had this but she does.

For MOM IN DENVER:
Hang in there. I know it is VERY hard to raise your little one. We KNOW first-hand what our child is going through. For me it brings up bad memories of what I went through. This can be help us parent our child better but it may also bring up some bad feelings from the past that have not been dealt with yet.

I wanted to help my daughter through this but have felt angry about it and didn't understand why so I started to do some soul searching. I asked myself "why is it so hard to do when I know what she's going through" "What can I do to help her so she dosen't have to suffer so much" "Why do I feel anger when her symptoms show"

For me, I realized that I'm really not mad at my daughter when I have to keep repeating myself about the same thing over and over again but I'm angry at the fact that when I was her age I did the same and I remember what it was like to do the same thing over and over again and "I just didn't get it" I hate seeing my child have to go through that. I also realized that I was helping her because I was educating myself about it. I wasn't in denial and I got her into therapy. I have also started to deal with old feelings and pray about it especially for the strength to be patient with her.

It seems like your doing what you can. You are aware, you are educating yourself and your reaching out for help.


Mar 29, 2011
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migraines?
by: Anonymous

I've been wondering if there could be a connection between my migraines and SPD. If there is, then some of the ways used to manage SPD could help manage my migraines. I get one about twice a week. Maybe a sensory diet would help. I'm getting sick of medications not working.

Mar 29, 2011
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I use Feingold too
by: Anonymous

Someone previously posted about using Feingold. I too have just started to use Feingold. I have not stuck to it for myself but have my children using it exclusively. I suffer from SPD but have not been formally diagnosed. People just tell me I am sensitive or crazy.

Apr 14, 2010
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Know your Enemy!
by: Roni

I know where you are coming from. Almost everything that I saw in my daughter brought up painful memories from my childhood especially when I think about school. I always felt different from everyone else and even my sister would tell me that I marched to a different drummer. But no matter what I always felt that I had the potential inside if only i cold learn a way to cope and improve myself.

I've come a long way but it's been a long and hard road. I am now 34. My daughter is 8 and it pretty much broke me down to see her go through this.

I could go on and on but I just wanted to let you know that you are not alone. As I learn more about this disorder I feel "freed" from it. Theres hope!!!
"KNOW YOUR ENEMY"

As for the parenting part:
I'd like to offer the following advice I heard on a talk radio show:
when ever you begin to see that you are getting in a place of anger or any other uncomfortable emotion, begin to imagine "LOVE" then "wrap-the-love" around your problem, anger, anxiety or what ever you are dealing with at that moment. Allow love to cover you too, let it fill your mind and body. Remembering that you are now in the presence of love go forward in that love and handle the issue at hand. You may not know exactly how to handle the situation but when you are operating out of love you just can't go wrong!

Good luck to you and your little one.

Apr 08, 2010
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Please read
by: Anonymous

Try Feingold.org all symptoms might go away, it is chemical sensitivities in food that neurologically caused my son's brain to react in these ways, but the book is $80 for the year and tells you every brand in regular food stores and nature
stores with food with no chemicals additives, preservatives which when sensitive can cause lots of weird symptoms! Changed our life!

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