Nobody will listen


(england)

my little boy is now 20 months, since he was tiny he was in and out of hospital with his ability to suck and could not latch on to the breast so had to be cup fed.


i am now struggling lots to get my little man to eat, he is being sent to the pediatrition again as his weight and hight have dropped below the chart, my son always has his mouth open and drools alot. he has to be moving constantly to be happy this has been an issue since the day he was born he would not ever sit still in a bouncer or swing my word he was not happy if he had to....i have just done a symptom test for this and he has 47 out of 80 of them i dont really no what to do about it as i no if i speak to the docs they will brush me off...

the doctors just keep asking me if im depressed and if im struggling and i reply yesa im struggling my son does eat, hes never happy, always crying, wont play with me just spends all day spinning in circles with the music on full blast and will not let me leave the room.
in which he replied well your the adult take control....

what can i do to get them to listen i am back there tomorrow...

any advice would be great ive hit a wall xx

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Jan 23, 2013
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Please get help
by: Kristen

Do you have something like Early Intervention where you live? If not, find a developmental pediatrician - I promise, they will NOT think you are crazy or brush you off.

I have struggled with the same issues. My mother and husband and peditrician all told me I was wrong and accused me of trying to find something wrong with my son. Yeah, I WANT something to be wrong with him - what is wrong with these people?)

There is help. If you see this and can comment on what city or state or country you're in, we'll help find resources online for you.

HUGS! Please take comfort in the fact that it's not too late to get your child help :)

Oct 08, 2012
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Advice from a mother/ Special Ed teacher
by: Anonymous

I, too, am raising a son with Sensory Integrative Disorder. He is now 16 years old. It was a long road to getting him diagnosed and into treatment, but start by having an Occupational Therapist in your local area who is very familiar with SPD. He or she will give you a checklist and prescribe therapy that will help your son to begin to interact with the world in a more typical way. The earlier the intervention starts the better he will do in the long run. Helping others with their sensory sensitive kids is my passion as a Special Ed teacher. This is a place to begin. Hang in there. Docs don't always have the answers. Keep seeking. You know your child the best. Don't give up!

Sep 23, 2012
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RE: NOBODY WILL LISTEN
by: Anonymous

Hello. I am from the Philippines. My two year old son was diagnosed with GDD. Trust your mother's instinct. Go seek a developmental pediatrician. If your pedia won't give you a referral, do it on your own. Say you are a mother and want the best for your son. This does the trick for me. Doctors listen to me when i say that. don't lose hope. you are not alone. Hang in there and pray hard. I have been on a journey for my son's cure since last year and look how time flies. There are good days for him and bad days too. But we are mothers. Resilient and can take on many challenges in a day. Good luck!

Sep 22, 2012
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Evaluation
by: Anonymous

You need to seek out a CDSA (childrens developmental service agency). They will do an evaluation after a child is 12 months old. I went through this as well around 7 mths and I finally got an eval at 12 mths. I did have a pediatrician make the referral at MY request. So if your pediatrician won't do it, you may need to find one that will. You need to go on your "mothers instinct" because you know when something isn't right! Unfortunately, the doctors are not educated enough in these areas, they only can touch on these areas. My daughter is almost 6 now, and I have learned MORE from her speech, occupational, and physical therapists along the way, NOT the doctor! Along with my own research. So don't give up, and try to seek out a CDSA to have him evaluated! Good luck!

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