Parent of 3 1/2 year old (Mother)

by Robyn
(Mass)

I found the checklist useful before and after my daughters evaluation. The booklet I had to fill out was a bit overwhelming for me. I had difficulty with the underlying factor of typical 3 year old behavior vs a sensory dysfunction.


After having the evaluation, I did get the "aha" momment, however I was also able to identify (with the OT) my daughters real issues and realizing that some were just the typical three year old behaviors. Utilizing the chart afterwards was helpful in zeroing in on what she needs help with, which is emotional regulation and hypersensitve to movement and hypersensitive to touch. She is definatley the child that avoids the sunlight in the car, however does not have the other symptoms associated with that.

Where do you draw the line though? It's very discouraging to think I have a child with a disorder and at the same time I want our lives and more importantly her life to be happy. I want a day where we are not arguing about the sunlight, or the way the sheets feel or how she prefers to watch the kids at the park instead of joining in. I'm not sure if any one else out there feels this way, but I'm very discouraged by it all, I feel like a bad mom because I am a single mother and maybe I should have noticed this earlier on. I kept saying it's the two's, then the three's and lately I was saying..my God the fours better be a good year. I also found out my insurance is not going to cover the cost of her services and I don't believe I can afford it. It's a bitter sweet day for me...but yes the checklist did help.

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Nov 23, 2009
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Hang in there
by: Parent of 3 1/2 year old (Mother)

Hang in there...you never know if what you were reading to him did sink in just a little. No one can be completely sure about that. You did what ever mom does and now you're doing moreso...your a good person and don't let any one tell you differently. Your boy loves you and that's what matters most.

I spent the whole weekend with my daughter. No laundry, phone, shopping etc....i noticed a big difference with her last night. When I spoke to her, it was directly in her eyes..not from another room...there was no hustle and bustle and she embraced it. I can't do it every day, but I am going to try my hardest.

Nov 21, 2009
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our son
by: Anonymous

Well heartbroken is not the word and confusion.
where do we start it is like living on the edge but the more
and more I look at my son I see what I never seen in the past.

How sad is it to think the bed time stories every night where not going in. That he needed my help and I never knew.
I think this hurts the most,
Now we are on waiting list and more waiting list
while weeks have gone by now.


Nov 21, 2009
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Patience...what's the definition when your child has sensory??
by: Anonymous

Hi Anonymous,
Thanks for writing to me. I appreciate all the advice I can get these days. I am waiting for the official evaluation to be completed. Then I will be talking to my pediatrician, then the local school systems. I understand our Public schools do support these needs for children with sensory, however it's approx 3 hours per day. I will just take it step by step and figure out, how I am going to work full time and have her in two different schools...I'm anticipating that it's not going to be easy.

In addition to your comment about the patience. I have very little myself but I am working on it. I kind of feel though, we probably have a huge amount of patience and don't realize it. If our kids didn't have a sensory issue, we would probably be known for the parents that can handle it all.... At this point, I'm just exhausted, there is no patience left, or work arounds for the issues. Ugh..I'm rambling and I apologize for that.

Thanks again for responding..I really appreciate you taking time out of your day to do so.

Nov 21, 2009
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Not alone
by: Anonymous

You are definitely not alone and shouldn't feel like a bad mom although I'm sure we all have at some point. Myself, I feel that way because I don't have the patience my son needs. I am trying but it's just so frustrating and I feel like some people will never understand because their kids don't have to deal with all of these issues. Many times insurance companies will cover the cost if there is an issue with fine motor skills or gross for that matter. Does your daughter have any of those problems?

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