Parent

by Bobbie
(Minnesota)

I have two children. The 16 year old has Aspergers. Typical symptoms. Then came his sister. As I baby, she would hit me if I tried to hold her, As a toddler, she was very aggressive with me: hitting, pulling my hair, spitting...


She was also exhibiting what appeared to be full blown seizures. I took her to MPLS Children hospital for testing. They told me something about under developed nerve endings. As she started school, wow, things got out of hand. Her regular doctor sent us to a Developmental Peds clinic. They started her on Prozac. After one week of medication she said, "Thank you mommie for my new medicine. It doesn't hurt when you hold me anymore." What a revelation.

By 2nd grade, her behaviors were a problem and I was still learning what made Sensory disorder different from Aspergers. I took her to therapy and learned some more new skills myself. She is now ready for 4th grade. She has been denied SSI because she is an excellent student. She still cannot socialize properly, is aggressive and dislike by most of our neighbors. She was denied SSI because she is a good student. She is honor roll material. She is such a good student because learning became her play. Sitting at a computer learning to read or do math became her pastime and gave her the academic skills she has today. It is also the one thing that keeps her from the services SSI can secure for her.

She yells, cries and states that it's too hard to be in control. Now she is on Abilify. I don't think she is going to learn how to care for her needs from a pill bottle, but in my state, Sensory Integration Disorder is not considered a problem or a diagnosed medical condition requiring intervention. That is sad, because she is a lovely girl with the school, peers and those who are uneducated, stacked against her.

Comments for Parent

Average Rating starstarstarstarstar

Click here to add your own comments

Dec 01, 2010
Rating
starstarstarstarstar
My son
by: Anonymous

My son is seven and has problems with getting his haircut and nails clipped. He also has a compulsion with ripping. He has a hard time with buttons and zippers and has a hard time dressing himself. He enjoys repetitive behaviors like dumping sand from one cup to another. Although he is extremely friendly, he has problems socializing with kids his own age and really does not have any friends. Although he does not have anger issues, he does have a problem with hitting his four year old cousin.

We also live in Minnesota, and Mayo does not recognize Sensory Integration Disorder.

Sep 11, 2009
Rating
starstarstarstarstar
I agree....
by: Anonymous

It is so sad to find that SID is not well known and that it is not covered by SSI or Special Ed in schools. My 9 year old granddaughter can not get any help in the school system yet she has a problem learning because of her sensory integration disorder.

Jun 08, 2009
Rating
starstarstarstarstar
Parent
by: Anonymous

Hi, my son has some similar behaviors. He is more aggressive verbally, than physically (not saying bad words or anything), but more of his tone when he's speaking to me. He also has problems socializing. He meltsdown when people look at him, or talk to him (cries like someone is hurting him). Even though he was diagnosed with SPD, I'm still wondering if he might also have Asperger's Syndrome, because I was told that children with Aspergers are known for melting down over nothing (well what seems like nothing to us). You mentioned that your 16 year old has Aspergers.

I was wondering, (not to be nosey) if your daughter has been tested for Aspergers. Also, I have read that children with Sensory Processing Disorder are known to have problems with anxiety so maybe she can qualify for SSI under Anxiety Disorder. Hope this helps.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to SPD checklist.