Quiky kid's mom

by Andrea
(Howell, MI)

My son is now four, but for the last 2 years, he has exhibited odd behavior. It seemed to start with a double ear infection where he had to have the rozephron (sp?) shots. He had these prolific tantrums where he would lay on the wood floor, bang his head, and scream until he choked for sometimes up to an hour. Then he would only eat pretzels for 2 weeks. Pretzels, milk, and juice.


Then he was obsessed with air fresheners--the plug in oil kind. We threw away all the oil and put the units on top of the refrigerator. He snuck out of his room in the middle of the night and climbed up the counter to the top of the fridge to get the air fresheners. He was also into nightlights. He liked to disassemble them and plug them in and out of the outlets. I installed childproof (ha!) outlet covers in his room because he could easily remove the caps we put over the holes in the outlets. He figured out how to get past those after about 5 minutes. I finally had to ask the doctor what was the worst that would happen if he were to get shocked. After I learned that it would be a minor injury and most likely not life-threatening, I let it go.

How could we keep him from the outlets in his own room in the middle of the night? I also installed a chain lock on the outside of his door so that he wouldn't get into something more dangerous while we were asleep. I felt like both a prison warden and a careless mom at the same time. He then became obsessed with fans. His favorite thing to take to bed with him were catalogs from the ceiling fan department at Lowe's. Thank God they were free! His family has bought him countless "toy" fans from the dollar store, and he has a name for every fan he sees. The first thing he looks for when we go to a new place is whether there are any fans.

He is an extremely picky eater. He is afraid to go outside if the air conditioner is on. He screams when anyone sings happy birthday. He's afraid of the hair dryer, dishwasher, washing machine, vacuum, and microwave. The most difficult part of this process is getting a diagnosis. It's taking almost a year to get him seen at a behavioral clinic, and our school system's special ed program won't help if he is diagnosed with SID. It has to be something on the autism spectrum. Thank God for now, he is in a wonderful preschool program with a very small class, and a teacher who is very sensitive to his issues. That is the one thing keeping me grounded until I can get an official diagnosis.

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Oct 01, 2010
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electrical outlets
by: Anonymous

I don't know what doctor told you that electrical outlets are harmless but he/she is wrong. There is
a 3 year old boy buried by my parents from putting a key in an electrical outlet!!!!!! Please be very careful for your sons sake and yours.

Apr 28, 2010
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No Happy Birthday
by: Anonymous

I thought I was the only one that had a child that would have a meltdown over singing Happy Birthday. He just had a meltdown yesterday when a toy started singing the ABC Song.

Jan 24, 2010
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My son also has spd
by: Anonymous

My son, is 4, turning 5 in April. He has had many ear infections, and fluid on the ear. We live in australia, so the drug you named wasn't given, he had antibiotics. I wonder if it's the actual ear infections that causes the SPD?? He is seeing an OT which has been a life changer. But i have to say that life is very hard and exhausting with a child that suffers from this disorder. ben doesn't have it severely, but it's enough! I only hope that when he starts school, he won't have any of these problems, and that he'll make lots of friends and be happy. Good luck to you.xx

Jan 22, 2010
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advice
by: Anonymous

As I mom of a 4 yr old boy who is also having many symptoms of SID, I do know how frustrating it can be.As a mother all you wanna do is be able to help your child and find answers.I too am dealing with getting everything my child needs to help him be able to adapt to his surroundings.I do feel the need to also advise not only as a mother with a child who has SDI but as a nurse that this condition is not caused by immunizations or by the antibiotic injections such as the rocephin that was mentioned.

It may just be a coincidence that you noticed the symptoms or that they developed at the time he received the injection.I know as a parent the first thing we do is ask why and how did this happen, but we do not always get answers to these questions.I was in denial for a long time with my own child before coming to the realization that he was different and I have experienced every emotion including anger, but I know that God has a plan for him and for us and that there is a reason he gave us this child with SDI.

I also know he is helping us along this difficult journey.So in conclusion I know first hand this is difficult, and it hurts to see your child like this, but stay strong and seek support.It will fall into place.

Nov 16, 2009
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extreme overly picky eater,
by: Anonymous

My 3 year old son is the pickiest eater I have ever seen. He will only eat chicken nuggets, fish sticks, hard salami, butter bread and chips. Of course junk food. He refuses to try anything else. If by chance I can get him to try something new he will gag and throw up. My son too, had/has bad ear infections that didn't come about until he was 24 months old. Rocephin was also given. He never had an ear infection until the age of 2 when he recieved the Prevnar vaccine. He also was not a picky eater until then.

I have not been able to get a vegetable down my sons throat for almost 2 years now. The doctor just says this will pass, it's just a phase My son is also fearful of loud noises, especially toilets flushing. If we are somewhere other than home he will "hold it" until we get home. Thankfully he does not throw tantrums and never really has. He is very social and very smart for his age.

All of the milestones were hit earlier than expected. Because of all of this no doctor will give me any kind of advise other than, "he will not starve himself, if he doesn't eat whats made for supper then he will just go to bed hungry. don't give in." How many more nights does my child have to go to bed hungry for the doctors to say hey, maybe there is something else going on here.

Oct 11, 2009
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I'm hopeful
by: Andrea

I am hopeful that life will eventually be close to "normal". I am hopeful that we will eventually get a diagnosis even though it's been almost a year that I've been trying to get him seen. I am hopeful that we will learn therapies that help him cope with his sensory issues. Will he ever eat whole hotdogs again? I don't know, but I am hopeful that my smart, funny little man will eventually be able to participate actively in school and social situations, and live to be a happy, healthy, successful adult.

Oct 09, 2009
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Same Here
by: Anonymous

Our 3yr old grandson is a very picky eater,eats only sausage,chicken nuggets without the crust, drinks only choc flavored drinks,sour cream cheddar chips, he too screams when we sing happy birthday, terrified of vacuum cleaner, hair dryer. He was obsessed with wheels anything that had wheels he wanted, now its shapes he finds and points out every shape from a circle to pentagon, octagon etc... and then there are days he is obsessed with colors, every color there is, even the color of everyones eyes, hair etc.. he sneaks and eats crayons, play dough,finger paint.

Why wont he eat food? He will pretend to eat food but thats as far as he gets with it. OT helped so much with his touching of different textures , prior to OT he wouldnt even touch paper, I could go on and on about his "picky" behaviors, he just now started to go "Pee" in the big people potty, but no "poop" he insists on a pull-up, he will even hold his bowels til he is constipated. He has temper tantrums throws himself to the floor, will jump up and fall to his knees, we have made 4 trips to the E.R in past 2yrs because of nurse maid elbow, not the typical injury of pulling on the arm but by him falling on it. Will he ever eat healthy food? We handle the other behaviors and take them as they develop.

My worry is his eating habits. Has anyone experienced this type of SPD and led a "normal" life? We are open for any ideas suggestions. Please help

Oct 07, 2009
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Quirky kids mom
by: Donna

I don't have any answers for you. But definitely have him tested by a pediatric neurologist. I don't know where u live, but there are not alot of them around,(at least in RI). If there is a childrens hospital in your area, that would be the best place to contact. They should have a neuro development center, and yes, the wait is long. We waited for 1 year to get our appt.
In the mean time, check with your pediatrician about having your son evaluated by an OT.
Good Luck and God Bless

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