Sensory processing disorder expert in UK

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Sensory processing disorder expert in UK

by ALyson Richardson
(Leicester, England)

I am looking for an expert/professional in the UK to help my family with Sensory Processing Disorder/s. I know I suffer myself and suspect all four of my children do, in various degrees.

Nobody seems to recognise this condition via the regular medical routes (other than one OT, who first mentioned it to me).

We need proper help and thought maybe going private.

Anyone know of anyone ?

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Sensory processing disorder expert in UK

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May 01, 2012
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How frustrating!
by: S in the UK

Hi all who have posted from the UK and thank goodness the US have recognised this disorder so we have somewhere to turn. It is so frustrating not to be able to get the answers and the help for our little ones. I have a 7 year old son who is constantly hiking up his trousers as they annoy his ankles and who lifts his shirts off his shoulders in a tick like manner as the seams bug him so much. He chews his sleeves, hates hair washes and forget trying to cut it. When he started spinning a lot a few years ago l started worrying about the possibility of him being on the Autistic spectrum so we have been going through the long process of that assessment for the last year and a half. The Doctors don't think he is, but have given no explanation for his quirks only that he may just have behaviour problems. I just want to help the poor little guy to function comfortably. He already feels different from other kids.

By the way l suffer too, l am super sensitive to touch and sound, my clothes bug me to the point of annoying distraction and l can't concentrate when there is background noise which of course when you have children there is always background noise apart from when they are asleep which is why l am able to write this now. The fact l've passed it on makes me feel bad but what can l do. If we rally together maybe we'll get somewhere! Ever hopeful, hanging in there. S.

Dec 09, 2011
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SPD
by: Anonymous

I am living and working overseas with a child who has a SPD. I want to know what it is like in UK, is there general recognition in schools about multiple sensory processing problems or are children generally lumped into an autistic spectrum disorder situation and dealt with form there. I am thinking about coming back home as the schools may be better equipped to deal but really don't know what to do!!!!

any advice about what I might find would be greatly appreciated. Here I can find an assistant at affordable prices to work with my child and also support systems but payed by me privately. As an international teacher I cannot afford so much but I am not sure it will be so different in Manchester

Nov 24, 2011
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Leicester help
by: alison

I too am desperately seeking a specialist in tyhe leicester area. I need someone urgently so if anyone has any names of contacts that will be most appreciated. alisonmccausland@btinternet.com

Jul 02, 2011
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Heading to Leicester
by: Abby

Hi,

We are heading back to live in Leicester later this year. Our 5 year old daughter has been diagnosed with some cognitive delays and SPD. She starts her therapy sessions next Wednesday. They are a great group, but I have concerns regarding her continued therapy once we relocate. I've been doing research and haven't found anyone who specializes in OT or with SPD in Leicester. Unfortunately the group in Surrey is just too far to travel (will not have a car). Has anyone come across any therapists in Leicester? I don't want her to regress or lose all of the positive strides she'll make over the next few months.

May 15, 2011
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ADD Mum Leics
by: Anonymous

I am near Leics too and would like to find a specialist.
I am a 31 year old Mum of 3 who has been diagnosed with ADHD and possible M.E.
two of my children show signs of ADHD and one of OCD.
I have just discovered SPD and feel it may explain a lot of my own symptoms and would like to find out more.

May 07, 2011
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Fighting for help for our children.
by: shaz

Hi everyone in the UK... I am a mother too living in the UK who has a 6 year old girl who was diagnosed at the age of 4 with sensory seeking child(SPD). I have battled most of her life so far to get the help we need for our child. 2 years down the line am still fighting to get SPD recognised in its own right. We have very special children and that we must never forget although as i know everyday is a struggle and very stressful not only for the child but for us parents too.. My daughter hates all clothes and some days it can take 8 hours to get clothes on her.. We live in a very different world to most people with our special children.

I would love to set up a site or facebook page for us parents in the UK for support and tips if you are interested or just need someone to talk to please email me at shazmiskelly@googlemail.com the more parents i can get on bored would be great.. together we can fight for the help our children need in the UK..

May 05, 2011
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teenager with SPD
by: mk

I have a teenage daughter (17)who is struggling to live with Sensory Defensiveness - she would love to contact another teenager with similar issues - she feels like she is the only person in the world feeling like this. New clothing, noise, socialising, changes to routine, holidays and surprises are all impossible for her to deal with, she is now developing OCD. Any one else in a similar situation?

Mar 21, 2011
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help
by: Anonymous

My 5 year old daughter is in the process of bei ng referred to a peadiatrician for sensory processing disorder. She has trouble getting dressed pants,socks trousers tops can be a nightmare and she now goes to school in slippers as her school shoes dont feel right. She says the noise in the dinner hall and the classroom make her head feel crazy So we are guessing her hearing is affected as well. Some days i feel like a prisoner in my own home because she cannot get dressed to go out. It just breaks your heart to see her get upset. Anyone experiencing the same things please feel free to contact me on amandakingston@hotmail.co.uk

Jan 26, 2011
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Hope this helps...
by: Sara

Hi. My friend's daughter has been diagnosed and treated at an OT practice which is in Surrey. The details are below. She seems to have had similar symptoms, problems with dressing etc and has had excellent results. Good luck.

The Sensory Smart Child Ltd, Walton on Thames, KT12 2SD, 01932 25983 www.thesensorysmartchild.com

Nov 22, 2010
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HELP! Cumbria, UK
by: Christine

I too am in the UK. Myself and my partner are desperate for help with our 11 year old daughter who has been diagnosed with sensory processing disorder (tactile defensiveness). She will no longer wear trousers or most tops, will not change underwear unless told to, the same with brushing her teeth. She no longer socialises with friends, neither does she go anywhere, apart from school, due to the fact she cannot wear anything decent other than her uniform. We have wasted probably thousands on clothes never worn throughout the years after promises that she will wear them. Her day to day living has got so bad and after seeing professional after professional there seems to be no one around that can help. Any advice / help would be greatly appreciated, as there seems to be nothing out there.

chrissie_babyuk@yahoo.co.uk

Apr 08, 2010
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UK Sensory OT
by: Lindamh.otr

I'm also looking for a sensory OT in the UK for a friend. If you know of one, please let me know.
lindamhotr@yahoo.com

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Sensory processing disorder expert in UK

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Sensory processing disorder expert in UK