Should we pursue an IEP? And general hyposensitive advice.

My son is 6 and we chose to retain him in K another year (bday is 2 days before cut-off and our school has much older kids, the age range was 16-months last year!). Academically he did fine, but hard time writing, focusing on journaling (would talk to others, kick chair, chew on sleeves). We brought up retaining; they agreed and we all chalked it up to being young/emotionally immature. Then SLP (mild articulation issues)brought up hyposensitivity. Did some reading and WOW, it was my son- hyposensitive. Made sense.


So we are just finishing an evaluation through private OT but we are out-of-network for this place so we'll have to pay alot (they applied to be a provider and insurance said they weren't taking new businesses). I will appeal which only increases their payment to out-of-network payments a bit-- and in my area there are few that specialize in this and LONG wait lists (despite living in a fairly major urban area).

So I contacted our school district (pre-OT eval); we are in a private (parochial) school. The district psychologist wanted a meeting with our K teacher, principal and me to discuss the issues. And then I read the paperwork, about how is this impacting his ability to succeed in school. So I put a hold on the meeting because current teacher (it's only been 3 wks) thinks he is doing fantastic and he is-the work isn't hard but she'll see it later. Previous K teacher would be on board but then again, the SPD isn't interfering with school, per se.

SO, do I still go through all of this? I have asked our current OT who has only seen us twice her opinion-- since she also works at a public school as an OT. Her evaluation won't be ready for a few weeks. Maybe I wait for that, and then email it to the district saying I'd like an OT eval and attached is his current OT eval?

Also, I suspect and OT agrees it's mild-to-moderate, how long does OT generally last? Months or forever? I understand we'll get tools and he'll get tools (sensory diet).

I have the Out of Sync Child- any other suggestions? Also ones that focus on hyposensitive? I think the book and most of what I find focuses on hypersensitive.

Thanks!

Comments for Should we pursue an IEP? And general hyposensitive advice.

Average Rating starstarstarstarstar

Click here to add your own comments

Sep 28, 2010
Rating
starstarstarstarstar
sharing stories
by: Anonymous

I love (and need) these networking stories! Our 5 year old is repeating 4-K this year due to similar social/emotional concerns. He received OT at age 2 through our Birth-3 Program, then transferred into the school district with speech only in his IEP.

He presents some camouflaged issues in school such as: chewing on clothing, delayed self-help of dressing/toiling, fine motor delays with poor pencil grip and little peer interactions and low affect, but nothing that is "disruptive" to the class.

When he gets home we see such a painful angst in self regulating. We do try to maintain some sensory input for him, but struggle to stay on top of it, as we don't have a true "sensory diet" in our current routine. His anger issues result in hurtful words and actions to all family members, constantly on some days.

We have sought diagnosis (doesn't fit the autistic box) and are currently working with a pediatric psychiatrist to look at a broader spectrum. The cost of the testing, that is getting us nowhere and lack of helpful tools is wearing me down.

A book I find helpful is "Raising a Sensory Smart Child". We have tried most of the tools, but still struggle. New conversations are suggesting Childhood depression. Interesting challenges.

Sep 21, 2010
Rating
starstarstarstarstar
in same boat
by: Anonymous

i very much feel your concern. my son is 6 and in K and he has a teacher that also doesn't see any issues. my son has no issues in school behaviorally, and academically seems to be having no trouble. but his problems are things with visual tracking, he has problems with phonological blending (putting sounds together to form words), he has some spatial problems which will create issues when he is copying things from a board and he has some fine and gross motor skill delays (dyspraxia). he is also a mild case as far as spd, but also has low self esteem and anxiety....but i feel, as you do, that the teachers will see what you are talking about....even if they don't see it yet.

i am actually currently in the process of trying to switch his K teacher because I don't feel that she is a good fit for him (and I am getting resistance). So, I guess I didn't really answer your question, but it sounds as if we are similar stories and your concerns mirror alot of mine (we didn't think our son was ready for K last year although he qualified, and we might have been in the same boat as you here too).

We are not pursing an IEP at this time following his OT's advice....I think in their opinion the learning challenges that he will probably face won't really appear until first grade when the work gets more challenging.

I went to amazon.com and google sensory processing and this is what came up http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks&field-keywords=sensory+processing&x=0&y=0 . I also read 'the highly sensitive child' by elaine aron which really resonated with me, as well as the out of sync books.

I wish you the best of luck. insurance always makes things tough....but hang in there!

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to The SPD Q & A.