SPD in adults - what can be done to help? Is it too late??
by scared mom
(upstate central NY)
My daughter is 20. I wish I had known all of this 20 years ago. She was a preemie (34 weeks - 4 lb.2oz). She struggled through school and was diagnosed in special education with a "processing disorder". She was given academic accommodations to help her. She graduated and went to college, but came home after a 3 semesters. She couldn't decide what she really wanted to do - she's never been able to make a decision for herself.
Socially, though, she has suffered the most. She is doesn't get social cues, she doesn't relate to her peers, she doesn't make eye contact and she isn't accepted well by others her age. In the past she has done things to "fit in" that she shouldn't have - she became sexually active for that reason and was not emotionally ready nor did she know how to handle it socially - it became a social disaster.
In addition to all of the social issues she is often easily disoriented and gets lost in the extremely small village we have lived in her whole life. She has difficulty following directions and often cannot remember much of what she's been told - or maybe she doesn't understand. It's sometimes hard to distinguish. She doesn't share her emotions or feelings, but sometimes explodes with anger because we don't understand what she's feeling.
She does one other thing that I've observed through her life that has seemed odd - it's a soothing thing for her - she'll gently stroke her arm or leg repeatedly - very lightly. She gets almost mesmerized while she does it. We (her dad and I) don't know how to help her - we asked for help for years through the school - and they always said she was the way she was and that's all there is to be done. Maybe it is. But she can't live on her own this way. We are very concerned. Please send us in the right direction. We live in central NY state. THANK YOU!!!