The Story of
He started talking at six
He loved to watch Wheel Of
Fortune on TV. This show taught him to clap his hands at 6 months.
He was always extremely
His favorite toys were books.
I read to him throughout the day, at naptime and bedtime.
At 17 months he knew the
alphabet, he could sing the song and recognize individual letters on
signs, people's sweatshirts, in magazines. He could also count to
He knew approximately 300
words, maybe more at 18 months. His first 8-word sentence came at 17
Remembering all of these things
and writing them down makes me feel good. I was so proud of him. But
unfortunately, this is only part of the story of Alex. The other part goes
Needless to say, the days and
nights were very trying. I looked frantically through the child
development books to figure out what was going on with him and what I
could do about it. Usually, I didn't read about the specific behaviors he
was exhibiting. Nothing I tried was working.
He had to be walked to sleep
for the first eight months. He had to be totally asleep before we put
him in his crib.
He napped for only 30
minutes, twice a day.
The smallest sound would
awaken him, a toilet flushing (we stopped flushing), a ringing phone, a
He couldn't tolerate baths,
so he only got one to two a week.
He would cry and become
unreasonable from the moment we entered a restaurant.
He would scream hysterically
when kids his age approached him.
He couldn't tolerate swings,
he'd get hysterical.
By the age of two, if someone
handed him something, i.e., a toy, he would get angry and throw it.
He had to constantly be
attached to my body, being held, touching me.
He also had my husband and I
“doing all of his playing for him”. He would sit next to us and tell us
how to play with his toys like he was our teacher or boss.
When we brought him to
carnivals he would complain constantly, everything was “not fine”, or “I
don't want it”.
He only had one or two
physical tantrums, but he did a lot of screaming (his pediatrician said
he was having verbal tantrums).
My husband and I told
ourselves, maybe he's this way because he's so smart, maybe even gifted.
Maybe other children his age aren't up to his intellectual level. I
remember taking him to his pediatrician one day and saying I was
concerned. What will he be like at preschool, he won't play at
playgrounds, he won't play with kids. He said not to worry, he was
probably just a “nerd” like Bill Gates!
Other people we knew said that
I should force him to be around other children. They suggested I enroll
him in daycare a couple of days. But none of these solutions seemed
appropriate. There was something not quite right.
The turning point came when he
was 38 months old. All of a sudden he started saying, “I'm the saddest boy
in the world”.
He also started two other
behaviors that concerned me. The first was that he would jump up in the
air and land on his knees. It looked strange to me. It seemed that he
couldn't help it. I was concerned because he landed with such force I
thought he might hurt himself. The other behavior was the straw that broke
the camel's back. From a standing position he would fall forward to the
ground without using his arms to break his fall. He would land on his
face. Sometimes he would bruise his nose, his forehead, or bump his mouth,
which would result in him biting his lip and blood everywhere.
The overwhelming thought in my
mind was that maybe he was suffering from a mental illness. So I set up an
appointment with a child psychologist. At the first appointment she and i
met alone. At the second appointment, she met with my husband and I, then
Alex alone and then with my husband and I again. She didn't notice any
overt mental illness, but she did mention perhaps he has mild autism, mild
schizophrenia. She also mentioned repeatedly that she thought he was “very
sensitive”. She said she wanted to see him a few more times and that we
should use more discipline, because she thought that perhaps he was
running our household. If more discipline didn't work, there were some
medications we could consider giving him.
I went home feeling
discouraged. We felt that we used appropriate discipline and we were
disinclined to give him medication. I started moping around the house and
the word “sensitive” kept cropping up in my mind. Alex was very sensitive,
but why? I remembered seeing a small pamphlet about something called
Sensory Integration Dysfunction. My husband picked it up at a school for
gifted children that he was checking into for Alex. I searched frantically
for it and I was finally able to locate it. It really didn't tell me much
at all, but something told me to look into it. I had my husband look up
some information on the internet. The description of this condition
sounded a bit like Alex. He didn't have all of the behaviors they listed,
but he had about 75% of them. I mentioned it to my younger son's vision
teacher. She was vaguely familiar with this condition and gave me several
names of places where I could have him evaluated. During an intake
interview over the phone with one of these clinics, the director gave the
names of a few books on the subject. After reading only five pages of the
first book, I was 90% sure that this was what Alex had. By the end of the
book, I knew it.
Last August, Alex had his
sensory integration evaluation and sure enough, they felt that he had many
aspects of this condition. The area in which he is most sensitive is
auditory. He also has slightly low muscle tone and his gross and fine
motor skills are slightly delayed. He started therapy once per week last
August. We call it going to “Strong Alex Class”. He loves it. Within a
matter of weeks we saw improvement. He is attending preschool and his
teachers say he is very well adjusted. When there is an activity that is
too much for him to handle, or the singing at circle time is too loud, he
removes himself from the situation and plays quietly elsewhere in the
classroom. At home we make sure we don't have too many noisy things going
on at once. I usually do the laundry or run the dishwasher when he is
napping or at preschool since “background noises” are particularly
upsetting to him. We do a lot of deep hugging, stroke his back in a
downward motion and sit him on a therapy ball to watch TV. We started
brushing therapy but he's not ready to tolerate it yet. All in all, we are
a much happier family and he is much easier to understand. He stopped
saying he is the saddest boy in the world. The future looks promising.
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