Will my baby have a normal life or will she always need special services?

by E.K.
(USA)

I have a question about this disorder. Is this at all curable? We dont know if our daughter has any other diagnosis as she is too young to diagnose. We DO know that she has SID, and we are trying to find a good OT for her. My husband and I go through days where we just give up and think that our daughter has absolutely no hope and will just get worse. Today is one of those days and I just need to know if there is a chance that she will be "normal" as in, is there a chance she will she lead a normal life have normal friends, relationships and jobs without having special services all her life(if SID is the ONLY diagnosis she has)? Or will she be (I HATE to use this word but not sure how else to say it) retarted? Is this what SID is? I can't find a straight forward answer.


She doesn't talk, doesn't mimic us, not waiving & clapping, and most of all has very limited communication. She has lots of sensory issues described on your site and was evaluated by a SIPT certified OT who confirmed it. She does a lot of eye contact and knows her name, but autism hasn't been ruled out yet as she is too young to tell.

I read about your story, but the links to the rest of your story dont work. :( .. How is your daughter now? Does she lead a normal life besides the little "quirks", is she noticeably different, would the stranger be able to tell something is off? I'm so glad your daughter is doing so much better.

I'm so stressed, confused and depressed at this time trying to understand what's going on. I wish someone would tell me there's hope and she will come out of this and be able to lead a "somewhat" normal life. Do you have any advice for us? thank you so much :) again.

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Jul 25, 2012
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SPD
by: Anonymous

My son who is 22 months also has SPD. We also don't know if he has something else since I was also told he is too young to do those other exams/testings. My son also has very good eye contact but does not talk or try to mimic words. He does say 4 words but that is it. He is also very stubborn and trows the biggest trantrums for no reason. He just started his OT this week and I'm just hoping it does help him. He is receving DT, ST, feeding therapy and behavioral. I haven't seen much improvement but I do hope he shows a lot of improvement with the OC. May your child as well as mine would show great advancement with the OT since that therapy is the most important for children with SPD. I also wonder if my son will be able to live a normal life. It is very scary but as his Dr. told me, I need to take each day at the time and help him as much as I can. I hope everything turn out good with your child and just support him as much as you can and make sure he received all the therapies he needs.

Sep 15, 2011
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not too old
by: Anonymous

What does the Dr. think? 18 months is definitely NOT too young for a Developmental Evaluation to rule out Developmental Disabilities (Autism, PDD, PDD-NOS). There are toddler screenings and specific tests a good Developmental Pediatrician can use to assess your child. Never listen to a Dr. that says...."wait and see" again and again, especially if you have a "gut feeling"!! Many children do well with Early Intervention and can even learn how to self-regulate their own sensory systems. A Good OT/therapist can teach them at a young age to recognize certain things in their body and seek appropriate ways to have their needs met. So, even if the SPD continues all the way into adulthood, it can be managed and they can lead a normal life! Good luck!

Mar 01, 2011
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She is 18 months
by: Anonymous

Thanks for the comment, my daughter is 18 months and we are going full force with the whole OT, SP and soon PT. I am working at home with her a lot also. She is VERY stubborn and it's almost impossible to teach her new things or have her touch funny textures like sand. But i am trying, trying and trying. I have no life anymore, it's just her. I'm hoping this will somehow pay off and she will get better soon.

Mar 01, 2011
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YES
by: Anonymous

you do not tell us how old your daughter is????
my grandson has SID, he still at 4 is not talking full sentences, but is picking up new words daily...we make him talk too....he is stubborn, what child isn't, swing your daughter ona swing lots, when their vestibular system is behind it affects many things,,,while swinging, sing to them do nursery rhymes.... it relaxes them and they get in tune with their system...they will close their eyes and just swing sometimes, real important, also huggs, squeezes releases endorphins into the system, it calms the nervous system....it really really works, have you been told to brush her also, with the special urgical brush????this increases their circulatory system.... mason does speech and physical twice a week, he was fighting OT, but he did not like his OT teacher so we are taking a break....sometimes you just dont know if they are going through a phase or they are frustrated....point and talk to her all the time, take her outside and let her feel the leaves and sticks, and get her a sand box and watch her run her fingers and toes through the sand it is amazing how you are introducing her to a world each day that she does not know or feels uncomfortable with...be patient, and keep in touch with this site...it is great hope this helps god bless

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