Worsening symptoms after beginning Occupational Therapy

by Amy
(Hackettstown, NJ)

My 7 year old was recently diagnosed wth SPD. He has tactile, proprioceptive, and vestibular issues. We have been to 4 occupational therapy sessions. We really like our OT and my son loves going to sessions. However, since beginning therapy, his symptoms have worsened. For example, we are now having total meltdowns at birthday parties if he is asked to transition from games to cake. In addition, we attended a camp that he has attended for the past several summers. At the end of each day, the children perform the songs that they have learned. In years past, my son ran to be first on stage and loved to sing and perform. This year, he hid in he back and actually came down to me in the audience crying because he could not take the noise. We spent the remainder of the performance in the hallway waiting for his sister to be dismissed.


Despite this recent diagnosis, he was always a very confident boy, who was excited and exuberant about life. Since beginning therapy it seems that he is crumbling emotionally, and finding things challenging when they were once effortless. It's heartbreaking for his father and I. Is this normal? Have other parents experienced this in one form or another?

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Sep 04, 2011
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My son just started OT...
by: Erryn

about 2 weeks ago, and I'm starting to see his symptoms worsen as well. He's doing even more sensory seeking, and it's becoming more inappropriate like rubbing on his brother's friend's arm.

I'm so glad I found this forum because I was beginning to worry that OT was making it worse rather than better! Thanks.

Aug 12, 2011
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regressing
by: Melanie

My 4.5 year old has been in OT for 1.5 years. At furst, he did seem to regress and his OT explained that as they atart to retrain the brain, they regress a bit to behaviors that we think they are too young for. IT is all a part of the wires being wired the right way. Don't give up.

Aug 09, 2011
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OT
by: Anonymous

My son has spd and has been receiving ot for several years. Its been a struggle but well worth it. You'll be amazed at how much it will help your child in the long run. Hang in there :)

Aug 08, 2011
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similar experience
by: Anonymous

i too have a son with spd issues. we began ot and it was difficult. the first few months were a test of his resilience and of my emotional capacity as i watched him struggle to make changes. in the end, it has all been worth it. change takes time and these kiddos need the help when they have these issues. chin up, (hard when you're in the middle of it but...) it will get better. :)

Aug 05, 2011
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Symptoms can worsen
by: Melissa

We were told by our OT that our sons symptoms could get worse after initially starting OT. His did but we kept going for therapy and continued with his home program activities and he eventually showed significant changes after about 2 or 2 1/2 months. Hang in there.

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