Would like a friend

by lisa jackson
(chard somerset UK)

I have a lad with SPD and I feel so lonely... does anyone know where I can get a pen pal to write to and who feels like me so we can share our ups and downs together.

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Dec 05, 2008
My 9 yr old has just been diagnosed...now we're seeing our baby is exhibiting signs of SPD.
by: Anonymous

Hi. We've just started the whole gamut. Our son was recently diagnosed a few months ago. We're homeschoolers (unschoolers actually) so we've been lucky since we've not had to deal with a lot of negativity from outsiders not understanding or believing he was a bad child. (Though my father thinks since we now know what gives... it should just be fixed & turn our son into a perfect boy.)

We're setting up a playroom in our basement with stuff I bought from IKEA (some toys actually mention 'vestibular support' on them. (I found that exciting!) and they were SOOO afordable. And, look exactly like the therapy toys in OT catalogs. Anyways, we've had our aha's! & are noticing our 1 year old is exhibiting signs, doing things he did at that age our 8 year old didn't do (she doesn't have SPD).

I live in Ohio and would love some friends to talk to about this. I know of NO ONE who even knows what I'm talking about & since insurance doesn't cover therapy & the school system is not an option to help with their limited resources we're doing it on our own & saving $ for therapy sessions. I'm reading every book out there & I'd love to have someone to bounce ideas off of... and if they were close...stop by for tea while the kids play.

You're welcome to email me at HoneyNBenNKids @ aol DOT com. And pop SPD friend in the subject line. Also, we got rid of internet to save on costs & I pop on my in laws or the library's computer whenever I can so be patient if you do email me. I'd be happy to give out our number too. I'm a stay at home mom & I have plenty of time to talk on the phone! After all...I only have 3 kids...1 with SPD & 1 exhibiting signs! ;) But, it would be nice to email, talk & even see another person who is going through it too with their children or self.

Oh... and we're also doing the baby's room to be a sensory room for her. If anyone has ideas for older children & babies I'd appreciate it. I'm printing practically every page of this site as my own little SPD help mate!


Dec 02, 2008
So glad to find this site
by: Debbie

Wow! It is amazing and very comforting to know that there are other parents out there that are going through the same thing that we are. Our 6 year old daughter has varying Sensory Integration issues. Even though it may be trying at times, I look back to 3 or 4 years ago and she has made incredible strides.

Because of our situation, we wanted to connect w/ others as well an provide resources and support for parents so that we can provide the best possible environment for our children to flourish.

Take care!


Nov 30, 2008
by: Anonymous

Hi, my son is 4, almost 5 and is currently being assessed for ADHD, although on finding out about SPD, he fits the symptoms much much more than ADHD.

I notice your very close to me (about 20miles? we live near THE festival) would love to chat as Im at a loss at the moment and everyday is a challenge the moment ds1 is awake, we could meet up for a coffee too with the children if you wanted.


Oct 24, 2008
by: Cindy

Hi Lisa. I live in Georgia, U.S.A., but I have a daughter and son-in-law that live in Belguim, not too far from you. I'm 51, have raised 4 children of my own, but just adopted our foster child. Lola is almost two, but has this Sensory problem, we are just starting to admit that we have a problem, and I'm going to get her some therapy.

She was born to a drug addict, who had no prenatal care. We love her with all our hearts, and hope we can shape her future with our love. Write me on my e-mail. jimmyandcindy@gmail.com.

Our child will get violent when she is over-stimulated, she will bite, pull hair, and claw your face and neck. She does this anyone. She can be happy one minute and act out the next. I've never encountered this before, so I'm slow to admit that there are problems. I'm an older Mom now, so I hope I can nip this before the teen years.

We are going to get a sit-and-spin, and put a tire swing up for her stimulation, and also do deep massage on her. She does not cuddle or like to be held and loved at all, I'm hoping we can overcome this. She loves us very much, but cannot process this kind of affection. Take care. Write me your story, I'd love to hear. Cindy

Oct 23, 2008
just a friend
by: lisa higgins

I have a husband but he goes to work about 1:30 AND gets home around 2:00 or so then kids come home and off to bed. I would like to find someone I can share my ups and downs with.

Aug 04, 2008
I would like a friend too!
by: Debbie

Hi there.

I have a 7 year old son and would love to chat as I fell I need someone to talk to that has a child with a disorder like he has.

You can contact me on my email at debbie@balancesolutions.com.au

I look forward to hearing from you.

Jun 21, 2008
Join online Forums
by: Dan Travis

I'm not exactly in the same boat as you, Lisa, since I don't have a child with SPD. However I do have SPD myself, so I have found support in several online chat forums. You can post on the group's list, or you can email and instant message people privately. It's really easy to join them, just set up a Yahoo account and go to 'groups'.

Here's some I would recommend to you:

General SPD groups:
SID-DSI AllAboutKids (best): http://groups.yahoo.com/group/SID-DSI_AllAboutKids/

You also have a local list now. If you go into Yahoo groups and enter 'SPD UK', it should be the third on the list, but it doesn't look like it includes anyone but Carrie (the list moderator) yet. It can still prove helpful, though. She reads all posts and is a very good resource, herself.

You are fighting a tough battle here, one I know all too well, and you definitely need the support. I'm on each of those groups (except the UK one) and have found them to be a great source of support, validation, and help. Most everyone on there is going through the same thing you are, so you are in great company there. I would love to see you there so I can respond to you as well.

Good luck to you guys, and best wishes!

P.S. - You can also find additional resources by doing a site search here on this site. Type 'additional parent resources' or 'yahoo groups' into a site search and you should find a page loaded with other good SPD groups. I'm not on most of them, but they're probably good, too.

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