I am learning the name of me
(Newark,NJ , USA)
I've just turned 65 and finally found out what my disorder is. I wrote a newspaper that had a section that you could write to about medical issues ,but never received a reply. I also consulted my physician years ago,had tests done and never got an answer on the results.
I've watch people all my life to find people that may have seemed to have my disorder, but to no avail.
From as far back as I can remember I could never coordinate myself properly.
I've always had scoliosis(curvature of the spine)which cause me to walk one-sided with my head tilted to one side. Could not grip objects properly ,therefore I constantly drop and break things. I do not feel properly. People have many times tried to get my attention by touching me for attention and I don't feel it. I could never feel my own pulse or examine my breasts for lumps because I cannot feel properly. I could never ride a bike, run ,drive a car because I'd have to see if my feet were on the gas or the brakes. I couldn't handle other things like the car window, or other parts of the car without looking at them.
I've never been able to wear clothes that zip or button in the back, even ifc it does so on the side ( a skirt or pants)I'd have to struggle, twisting it around as best I could to try to zip or button it.
I could never put on earrings without struggling in a mirror, many just giving up for clip-ons which could also be a problem.the list goes on and on.
I stumbled on this term while reading some information, that had a footnote detailing babies that had the symptoms I've dealt with all my life. I went into Google to find out more. Finally I found me.