They told me i was a bad parent.
My gorgeous bright intelligent son has no concept of danger, we live on the top floor of a 5 storey building and he has to be told repeatedly not to climb out his bedroom window onto the roof, the alternative bedroom having no roof to go on to an a sheer drop.
Aeryn has been diagnosed with SPD this year and we are fighting to get an educational statement for him as his head teacher thinks that he is 2 years behind his class because he cannot read or write yet, (he is 6)he has been excluded from school several times due to "assaulting" other students and being badly behaved in class,e.g. running around, fidgeting, hiding under bean bags and hanging upside down on his seat.
His o/t wrote a report to the school telling them that he can not help these things and how to deal with his behaviours when they occur but a school psychologist came and blew the whole thing out of the water by saying that all Aeryn needed was a good dose of discipline and that i am too soft on him. He recommended i went to parenting classes, which i did, and although they worked a treat on my 14month daughter they didn't do a thing for Aeryn, so back to the SPD report.
The school (Elphinstone for any body who lives in Hastings and has a child with SPD) made all these promises to give him a place to go when things get too much and give him the help he needs and buy the equipment to stimulate or calm him in the classroom has done absolutely nothing for him, takes away his outdoor playtime and doesn't even send him to p.e because he is to much to handle. I don't think they
have even read the report or the tactics suggested. They sent him to a behavioural school for asbo kids twice his age, took away his individual needs assistant and let another child wind him up for a month who they then defended when Aeryn finally had enough and let rip.
I don't mean to rant and I am looking for another school for him but with the petty mindedness of some people I wonder if the devil you know is better than the devil you don't.
I cant say that I completely get what Aeryn is going through and i get very frustrated myself sometimes that i have to keep repeating things to him and replacing the things he`s broken in play. but i love him and i`m willing to try anything for him to have a normal life and education. I am at my wits end as to what to do for him as far as school goes because he is close to being expelled for something that he has very little control over.
He has been this way since he could stand, at a very early 6 months and it doesn't get any easier, and i have been fighting to get a diagnosis since he was 18 months, and have seen so many so called experts and drs that i almost lost hope of ever finding out what was wrong. They all saw him in a quiet room with very little stimulation so he would clam up and i`d be labeled a problem parent.
Now we have things we do at home like exercise balls and space hoppers to sit on and sports bottles and weighted vests which all help. Sorry for going on so long but until i found your site i felt like no one else understood.