3 year old sensory seeker with no speech

by Nancy
(Cincinnati, Ohio)

I have a 3 and a half year old little boy who is a textbook sensory seeker, and is extremely delayed in his speech and cognitive abilities.




He has some symptoms of autism, but the autism specialist we took him to was reluctant to get him fully evaluated until he is 4, since she could already tell that he doesn't exactly match up with autism, and thinks he may be more accurately diagnosed if we wait. I am thinking he may be diagnosed with either SPD or PDD NOS at that time.

He is extremely active (especially with his constant jumping), and he doesn't follow directions well, but he is affectionate with his family and gives pretty good eye contact. I know he is cognitively delayed but it is difficult to determine how delayed, because of the type of kid he is. (i.e., he understands more than he sometimes lets on.) He does not imitate sounds or actions much at all.

His only word that he uses consistently and appropriately is "ball", which he excitedly points out whenever possible. But he also babbles frequently, which I have heard is a good sign for speaking sometime in the future.

I was wondering if anyone else has encountered a little one like my son. I feel that he does not fit into any diagnostic categories very well. From all that I have read about sensory seekers, extreme speech delay does not seem to be especially common with them.

We currently have my son going to a special needs preschool where he gets speech and OT, private speech and OT, and also ABA-based music therapy. But he does not seem to be improving much in the area of communication. I feel that none of the professionals I take him to know exactly what to do with him, since he does not match up very well with what they have seen before.

Just wondering if anyone has seen this "type of kid" before, and what might help him that I am not already doing...



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Sep 06, 2023
Rating
starstarstarstarstar 		My son almost 3
by: Shannan

I'm having a lot of the same issues. My son is almost 3 He doesn't have any words at this point. He can do almost anything on a tablet things that I couldn't even do or know that could be done. He can do puzzles and color matching and plays games? Like where is the cow and he knows what animals are which. But he goes to speech therapy and she has said his receptive language is very high. So she doesn't really want to do a test for autism quite this early because he is very smart but as a parent, I'm so worried and I keep searching for answers. But I've heard it's more common that boys have a delayed speech because they learn slower.

So I definitely can relate with the issues that you have as well
Dec 06, 2021
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starstarstarstarstar 		So long ago but need answers
by: Kristy

Hi, hoping someone that posted 3 years ago wills see this and give me some hope and an update on how your kids are doing.

My daughter is exactly the same. She is 2.5 and babbles all day, she says about 100 words but not very clear to everyone else and only a few very clear ones, ball seems to be her favorite. She loves balls in general. She is a happy, energetic, sensory seeker, makes eye contact, laughs at other kids doing silly things but doesn't fully approach them all the time, some times she does but mostly plays alongside them, she loves to be chased, tickled, she does imitation and pretend play with dolls and telephone and pretend eating and cleaning.

She just won't have conversations, she is delayed in communication because she doesn't understand a lot of things said to her, only a some things like "go take a bath" or "throw this away". She is very independent and strong-willed. Always on the go and short attention span.

She does some stimming, flap her arms and close and open her hand and sometimes kicks her legs when she is overstimulated and laying in bed. She just doesn't seem to completely fall under the ASD umbrella, as she seems to be social and interactive but doesn't exactly play like other kids and has speech delay. She's been in early intervention but getting her into speech and OT and a preschool asap.

Please share updates
Sep 11, 2018
Rating
starstarstarstar 		Just like my son
by: Lara

Your description sounds just like my son, who turned three last week. He's been in speech therapy for six months and just started OT three weeks ago. Some days, I think I see progress, and some days it seems like nothing has changed.

He babbles with incredible expressiveness, as if he is having a full conversation or describing a complicated story, but there are no actual words. Occasionally, he will say cohesive and contextually appropriate phrases, like "where did it go?" when he loses something and "there it is" when he finds it. He will respond to direction or say no if he doesn't want something. He will make animal sounds but will not name the animal. He will draw a circle if I ask him to but will not say the word.

He is affectionate, positive, and loves being with people. He hyper focuses on play tasks but will leave it as if it never existed if you distract him with something else. We've got some sort of sensory processing issue(s), but it's unclear what exactly they are.

It's very worrisome to think he won't be able to communicate by the time he reaches kindergarten. One thing we've got going for us, though, is his birthday is a week after the cutoff, so he won't be in kindergarten until he is six. gives us an extra year to be in "preschool." Speech therapy doesn't seem to have helped, but perhaps as it is combined with OT we will see some tangible progress.
Jun 24, 2018
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starstarstarstarstar 		Sounds like my 3 year old
by: Nicky

Hi there, your little one sounds like my little girl the speech therapists said she doesn’t fit anything they’ve seen before. She says 4 words consistently hiya, mummy, daddy and dye for bye and babbles constantly but you can’t understand any of it.

She now and again just come out with something like ‘cup of tea’ which she says very clearly and only once and will never ever say that word again! She doesn’t copy so Makaton wasn’t useful for her and she has very limited attention span so when we are trying picture exchange she just wants to shuffle the laminated pictures and won’t look at them. She does have Turners Syndrome only diagnosed 10 weeks ago but the geneticist doesn’t think her developmental delay is associated with this syndrome (delayed in all areas not just speech and possible ADHD and sensory issues) so she has ordered further genetic tests. She has to go to special needs school next September. This is a really difficult time as nobody can tell us what her outlook is as they don’t know exactly what is wrong with her.

Sorry I couldn’t offer any advice but I just wanted to share our experience so you know your not on your own.
May 28, 2018
Rating
starstarstarstarstar 		Response
by: Anonymous

I’m in the same boat. My son is 38 months and can say full sentences, but will only relay what he wants (I want a cookie), he has no interest in conversation of any kind. I don’t know what to do either.

I actually just took him out of speech therapy and occupational therapy because the speech therapist has only been working on 2 words for the last almost 6 months. He can say anything you ask, what he needs is the back and forth banter.

His sensory issues are virtually non existent now. I began giving him cod liver oil in January in he did a complete 180 in one week. When he would go in ot, it would actually trigger those issues. He no longer seeks and is receiving the input naturally. I owe it all to the cod liver oil. I use the Nordic Naturals. I couldn’t even take him into a gas station before it.

But there is still the speech issues. I talk and read to him all the time and he just doesn’t get it.
May 27, 2018
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starstarstarstarstar 		Updates on your kids?
by: Worriedmom

Hi Parents,

I posted here 4 months ago. My son has made no progress. I am losing it now. We are going to get him evaluated for ASD soon. He knows so many words but just won't speak. He is loving, maintains eye contact and is super active.

Have your kids progressed? I just want some hope. My son is now 39 months old. I want to hear his voice. Sometimes I wonder if he will ever be able to hold conversations like other kids of his age. It's depresses me to no end to see months go by without any progress in my son's speech.

Just feel like giving up now. 😪
May 11, 2018
Rating
starstarstarstarstar 		Don't give up, there's hope.
by: Awilda G.

Dont stop reading and interacting with the child. Try not to ask questions but rather narrate conversation. If the child is not improving i would look into a different program.

Don't give up and try to stimulate him by using music, story telling, dramatic play and lots and lots of conversation. Dont leave the child alone at anytime. You want to encourage speech,wish you the best.
May 07, 2018
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starstarstarstarstar 		Update
by: Anonymous

When my son was 3yrs. old I made a post on here just as concerned as you, and also very worried.

My son is now 5 and does have a diagnosis of Autism Spectrum Disorder and Apraxia(that hasn't been diagnosed - but the speech therapist at my sons school is amazing and has been working with him since he began the PRE-K disabled program.

She said he is Apraxic but cannot diagnose him. Since she started working with him he has made great strides. He also has been getting Occupational Therapy. Having him truly start to develop body awareness has lead to him speaking.

Last year at this time he was still nonverbal and I was frustrated because the hospital I was taking him to for speech didn't want to work on speech they only wanted to work on his communication picture book and his consistency with using it. I was so concerned he would never speak. However, this year the speech came and I got him private speech that would focus on using the Kaufman Apraxia just as his speech therapist in school was using.

He is doing an amazing job and it is so great to hear his voice. Just keep getting him the help.
May 06, 2018
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starstarstarstarstar 		Please Help
by: Anonymous

My son turned 3 in March. He sounds just like your little one. He hasn’t been in speech and OT for 7 months and still has not even come close to picking up spontaneous speech. I ask repeatedly what could be wrong with him, but they just say that he shows signs of both delay and disorder so they can’t say for sure. If you find out what is wrong, please share as I’m at a loss for what to do for my son. It is exceptionally difficult for the children who are "borderline" and no definite diagnosis. Any additional information that you can share is greatly appreciated.
Feb 06, 2018
Rating
starstarstarstarstar 		My daughter age 3.5 Years does the same
by: Mins

My daughter 3.5 Years do the same.am very worried mother.And my wory keep increasing every. THREE AND HALF YEARS OLD DAUGHTER. She counts 123 to 20. A B C to Z. She knows all the colors.She says almost all the rhythms. She sings almost all the necessary songs. She says water, ant,spider, cake, ice-cream,eat, umbrella, ostrich, apple, orange...and others.
She takes some instructions. Like bring the bag. Bring the plate. Sit here. benddown. Eat. Come. Pick your dress from the floor.


But doesn't say DADDY or MAMA. When u say how are she can't say am fine. She can't say simple sentence like MAMA I will DRINK WATER. Mama I want biscuits. Mama I want to eat rice.


Any she wants something she will come and pull my hand leading to open the kitchen where we keep groceries for milk or biscuits.Or she opens the fridge and take what she wants.

We are seeing a specialist. After passing hearing test.we are singing a We will be seeing a speech therapist soon.
Jan 29, 2018
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starstarstarstarstar 		this is just like my son he is 4
by: Anonymous

is there any updates
Jan 27, 2018
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starstarstarstarstar 		3 year old babbling not talking
by: Worriedmom

Hi Parents,

I have 3 year old son that has suddenly started babbling but by no means is speaking in sentences. I am very very worried and slipping into depression. Can you please give an update on the progress of your children. My son says a few words here and there but gibberish most of the times.

Please help!
Nov 29, 2017
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starstarstarstarstar 		Reply to last post 11/29/17
by: Anonymous

Have you had your son evaluated for Apraxia? Sensory issues sometimes occur with Apraxia. Apraxia can sometimes be mistaken for Autism because it's a communication disorder.
Nov 29, 2017
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starstarstarstarstar 		We're from the Cinci area too!
by: Andrea

Hello,
I found this post in a google search. Your child sounds so much like my three year old boy, I wondered if I wrote the post and forgot about it. We are from the Cincinnati area too. I hope you find the help your son needs
Sep 30, 2017
Rating
starstarstarstarstar 		delayed speech
by: Anonymous

Hi my name is Eric am from Kenya, my son is 3 years he only sing the baby care song not in words.He pays attention to any instructions but will not say a single word am getting worried because he is approaching four years and not showing any progress only the songs he listened to in the Baby care.
Sep 15, 2017
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starstarstarstarstar 		Wow so weird that I'm finding this!
by: CSL

We just took in 3 year old twins due to mom and dad having some issues. Boy have we fallen in love with this babies.

One of the twins is a sensory seeker and has stumped the doctors as well. Hes very active, loves to jump and bump into things. He babbles in his own language while he plays with his toys or trains.

He's very lovable. Not afraid of strangers by far. He will go up to anyone and put his arms up to be picked up. If he wants something bad enough he will lead us to it. He mimics actions pretty good. We really have to watch what we let him watch because he will try to do it.

He does follow some direction but when he's good and ready. Like jumping in the trampoline and I tell him to get out but he runs around and thinks it's funny that I can't reach him. Picking up his toys...he does this pretty good now.

We can not get him to go potty outside of a diaper. It's actually very weird. He will not pee unless he has a diaper or training pants on. If we let him go naked he will cry when he has to go and scream if we put him on the potty.

He will cry in the store if you don't give him what he wants. It's hard to discipline because I don't know what he gets.

Any advice would be great. I'm lost here.
Mar 11, 2017
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starstarstarstarstar 		Interesting
by: Anonymous

Your son reminds me of my son. My son is the youngest, he's 3. He has some of those exact same traits as yours. He cannot imitate much at all, also has some autistic traits but is very energetic and affectionate and also makes eye contact.

He has been seeing a SLP for about 4 months and she suspects mild apraxia, since he can say some words,and others he can only say the beginning sound, as in "c" for car. He doesn't receive any aba therapy yet, but I'm actively looking into it. It is hard to get into those classes where we live.

I wish you luck with your son you helped me pinpoint that he also may have SPD.
Feb 23, 2017
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starstarstarstarstar 		My little boy
by: Dionne

Hi... nice to know there's more little children like my boy .. he turns 5 in August An had been diagnosed with severe autism and he has sensory processing condition.. also non verbal at the moment...

also very much Like your boy he his so active bouncing jumping off of every thing and every one .. he does make babbling noises And say words at random sometimes in there right context " hiya mama. Dada.. he attends a main stream nursery but they were unable to do much for him, so now he attends a specialist school.

his speech still limited.. but we do have faith he will hopefully do it when he's good And ready. .. I understand... it's so hard wanting such a simple thing ..he's a happy healthy little boy with a few quirks 😊
Feb 19, 2017
Rating
starstarstarstarstar 		re your child's speech difficulties
by: ruthjemp@hotmail.com

My grandson is 23 months and speech is similar. He is very physically advanced e.g. can climb and walk along Oct rail. He is extremely analytical when he really wants something but unresponsive when he is no particularly in need.

I believe, as a child born in last couple of years . They call these children Rainbow children, as they process many abilities like advanced intuition and they can relay what they feel and need psychically, so they don't need to communicate verbally as they get what they need without talking. An experienced Transpersonal Counselor can help with a child who is experiencing problems of this kind.
Sep 08, 2016
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starstarstarstarstar 		Asd
by: Anonymous

Your guy sounds like our little guy. He's 2.5 and doesn't really have any words. He does gesture to show us what he wants, points at certain things and is smiley and very affectionate with family. He also loves jumping and is always on the go. He flaps his hands when he's excited, isn't overly socialable with other kids and doesn't always rep sons to his own name. We have bee doing to speech therapy and they suggested he get tested for Autism. We had our appointment today and they diagnosed him as having autism. No 2 kids are the same but I would say to keep seeking help/therapy in the areas he needs them in as I'm told early intervention makes a big difference. If you wait and see as some do, you could be missing out on valueable time to help him make progress. Good luck
Aug 23, 2016
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starstarstarstarstar 		ASD
by: Anonymous

My 3yr old son is very much like this as well. He is a live wire always on the go, jumping and crashing and running. He loves to climb and run around with kids but will not interact in other ways. HE gives good eye contact at home but not when he is out. He is very affectionate with some family members.

However, he has a lot of quirks, doesn't talk and has very limited sounds that he makes. When he was a year old he said the word milk but never said it again. He received early intervention from the time he was 15 months old and it helped because he is able to understand one and two step directions but isn't always consistent with follow through.

He was diagnosed with ASD as all as sensory and communication disorders. He is in a Preschool Disabled Program and he does have a PECS communication book that has helped with some frustration. I am worried especially when he had a meltdown during his speech evaluation so they couldn't continue the testing. That's when they said he needs to get his sensory issues under control.

He has OT at school and 1x a week privately. He also has speech therapy at school but even with the extended school year the 4 weeks before school starts up has caused him to lose a lot.
Apr 08, 2016
Rating
starstarstarstarstar 		ASD
by: Anonymous

Having read quite a few of these posts, although I am by no way an expert, many of your children sound like my lad who is 3.5 and has autism. I began to suspect this at 2. He's a live wire, jumping (we have indoor and outdoor trampolines- life savers!), climbing, always on the go, v loving, great eye contact but mostly with family, some sensory issues but not extreme, speech delay, developmental delay, doesn't pretend play, join in with his peers, imitate, the list goes on, but he is my lovely little boy above and beyond all his 'issues'.

Anyway my advice is if your gut tells you something is not right 99% of the time, as a parent, you will be right. The very best thing you can do is raise your concerns with a professional, GP, HV, teacher, whoever, but get the ball rolling as soon as possible. The worst thing is being in limbo, not really knowing what the problem may be, worrying and googling to look for answers!

We now communicate using PECS (picture exchange communication), although he does have some speech which will hopefully improve and this has helped immensely, because he can communicate his needs and has some sense of control. He has funding for 1:1 teaching at pre-school, goes to a therapy session and will get all the help he needs to reach his potential. I have a 6 year old daughter as well and remember every child is unique, autistic or not.

ASD is a HUGE spectrum and no 2 kids will have the same traits. Sorry for long post, but hope this may have helped in some way and good luck to you all x
Mar 29, 2016
Rating
starstarstarstarstar 		Sounds very familiar
by: Anonymous

Hi, This is totally my little guy. He just turned 3 yesterday. He is a giant ball of energy and never stops always jumping and climbing. He does not speak but the odd time will throw his fists in the air and yell "YA". We are currently in the process of having some testing done. We just did blood work to rule out fragile X and he will go in May for his Autism assessment although the doc doesn't feel that this is what he has. As he makes eye contact, will want hugs and kisses(but only from mom) and looks to us when he is doing something that he knows he shouldn't. He doesn't do well with crowds, has issues with certain clothing and has a very limited food preference and often gags if he sees someone eating something that he finds gross..
Mar 19, 2016
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starstarstarstarstar 		Worried mum
by: Anonymous

I am really worried about my son, havent talked to anyone about this, but i fear greatly something is not normal with my boy. At 22months he hardly has any words , his means of communication is by pulling me to whatever he wants if not within his reach, doesnt imitate or copy actions eg wave or say bye bye, he claps but not on demand, has fear of climbing fown stairs but will climb up. i have recently noticed his taking a liking to smelling stuff, if he picks up any object straight to his nose to be smelt, also smells me as well, so far i am the only adult he does this with.
On the plus side he is very loving, gives me kisses, plays with his 2 siblings, loves to dance, can feed himself , babbles a lot and very gentle in his ways. I am so worried he might b autustic or hv sensory issues, i have being in tears most nights now. Talked to our GP and she has decided to refer us to consultant paed, we are on the list for speech now.
Mar 14, 2016
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starstarstarstar 		Don't know how to place him.
by: Adeola

My son is such a 3 year old,lively and playful boy. He is always full of energy, hardly gets tired and plays long into the nights(he often sleeps VERY late).

He has learnt a lot of words from the TV and conversations from others. His speech is very clear and he plays back past conversations articulately.

He responds to verbal communications with actions.

My concern, however is the fact that he hasn't learnt to express himself verbally. He doesn't ask questions, doesn't request for things(he only shows his desires by crying and bring objects that suggest his needs. For instance, if he wants water, he would get his cup to me.)

He doesn't yet respond to simple questions such as ''how are you? what is your name?

Of recent, he has learnt to say ''its ok'' when he's had enough of something.

A paediatric who once had an encounter with him thinks he might be have autism disorder and advised we take him for an evaluation with a child neurologist.

What's your opinion.
Jan 26, 2016
Rating
starstarstarstarstar 		child with speech delay
by: Anonymous

good morning,

I am a Seychellois, all the way from Seychelles,
I have my three year old son with the same issue, haven't been diagnosed for anything, you get just bits and pieces,from each doctor.

so as a mother I am worried, he has just started preschool, with the normal children and he is having difficulty to adapt.

so if there is anybody out there that can help us with children like this please
Dec 10, 2015
Rating
starstarstarstarstar 		2 yr old nephew
by: Donna

These symptoms and characteristics are very similar to my nephew. We need help. Don't even know where to start.
Dec 03, 2015
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starstarstarstarstar 		Sharing similar issues with my 3.5 yr old son
by: Anonymous

I am having very similar experiences with my son and reading your post certainly matches what we are going through in some respects. Our son is very loving and figures things out very quickly, but struggles with speech and has some difficulty with physical motor skills (jumping,coordination, etc.). He knows several words, but rarely speaks in clear phrases. I will mention that the early intervention preschool is helping VERY much. We can tell that when he does not go for a period of time, he falls back into old habits. Potty training is still not something he has any interest in unfortunately. His level of intelligence in other areas lends me to believe there is a light at the end of the tunnel, but it is rough to see him struggle and I wonder what more I can do. I hope you follow up your post and I hope others will share similar experiences! Fingers crossed! :)
Oct 05, 2015
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starstarstarstarstar 		Updates
by: Anonymous

Hello,

Any updates? Some of these comments are old and was wondering what the progress was or regression.
Aug 31, 2015
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starstarstarstarstar 		My son is the same
by: Candy Perry

My son is 3 and a bit uses minimal words, however he can pick out and tell you any letter on the alphabet and can count perfectly to 8. He has never said the word Hello. I dont no if that is common but ive been looking for answers when i read your post from Google he sounds do much like my son he has a diagnosis of ASD, GDD he has been cleared of genetic autisms like fragile X. He is very clever in his own way although he doesnt speak he can understand alot more than most people think, just hang in there, they will get there im sure of it. All they need is love and encouragement in my opinion, he has had so much help etc from health care proffessionals but he is amazing with technology he has learnt the alphabet and number prom his ipad apps and colours, then we make games to get him to say it afterwards. <3
Jul 23, 2015
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starstarstarstarstar 		I need help
by: Hope

Hi Nancy I hope your problem got a successful end and I really need to know from people such as you to find my way to a solution too.I got a very lovely 3yrs old son who still doesn't talk. My son imitates the words I say, but not use it or remember it so often, however he learned the name of his sibling, dad, mom and some few words but doesn't use them properly I mean I think he even doesn't know who the names are belongs to. He has learned using iPad to count the numbers till 10, he knows and say colours and read and say the whole English alphabets and correctly he can read it anywhere while his native language is totally different. He is in interaction with three languages. when he needs something and not talk st all.he is very social and freindly and can adapt himself in playgroups with his playmates. He is active, careful and smart for his choices. He sleeps, eats and do anything very perfectly. He only doesn't talk. I dont know what to do? I really need to know from you who got the same story, please help me.
Apr 20, 2015
Rating
starstarstarstarstar 		3 year old with few words. but solves problems on his own,
by: Anonymous

i am a father of a 3 year old son who was diagnosed with autism ever since then i been searching for answers, ways to help, i never believed he had autism when he was 2 he learned to use an ipod without being taught, and was doing 6 pieces and after a few months he moves to 20 piece puzzles.. playing donkey kong country on my tablet without being taught, his speech and social skills improved since he started preschool. he can say some words but you have to tell him to say them. like thank you, goodnight, i love you, later dude, hello daddy, grandpa, he can count to 20 but u cant really understand him but u know hes counting cause he points at the numbers, you can tell hes tryna say the words but it cant come out right. and i am in a fly in resevre without and real help in this town. while i was in school. the special ed workers were random people looking for any type of jobs.. i just wish i knew what to do to help my son with his problems..
Apr 11, 2015
Rating
starstarstarstarstar 		speech delay
by: young mother of 1

My son is 3 years and has a speech delay as well, he loves jumping up and down and babbles alot! So i understand how hard it is. but my son does as for things he says many words just not putting things into sentences. He is in occupational therapy and speech therapy doctors told me not to worry that he will get to the point of where he needs to be. Sometimes i do wonder if its something else especially when he doesnt follow direction but then we realize the times he didnt follow direction is because he didnt understand what we were saying, so we would get down to his level and explained it to him slowly and show him what to do. My son catches on to this really quickly sometimes from even just showing him once.

But like i said i know its hard and im a working mom. it does get overwhelming and frustrating but as parents we just gotta use everything at our disposal to make it easier for them.
Oct 15, 2014
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starstarstarstarstar 		SUCCESS STORY
by: Anonymous

I just want to add a positive posting here. My son did not speak until 6 mos. after he attended preschool at age 3.(Speech began with horrible stutter, but disappeared) Prior to preschool, he received early intervention services at home, speech, occupational and physical therapy. Along with the speech he had hand tremor, low upper body strength and poor motor skill. ADD also. Services continued through elementary school. He did struggle in school but with tutoring, positive reinforcement and many hrs. helping with homework he became a very successful student. His IEP followed him to college where he received written notes when needed and extra testing time. He hit some bumps in the road and transferred from one college to he next (being away did not work for him). He is now 23 years old, soon to graduate from University with a Business degree. He is highly intelligent and his vocabulary and knowledge far exceeds mine and most of our family. So proud of his success. Children can succeed, they need positive attitude and our help to advocate for them. Push as hard as necessary to get services as early as possible. Never give up.
Oct 05, 2014
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starstarstarstarstar 		PLEASE READ
by: Anonymous

God, your son sounds exactly like mine. The only difference is that I, despite the heartache have accepted that it. IS autism. He's loving affectionate adorable yet he follows no direction yet can lay out letters a-z and numbers in order on his own, but won't bring me a ball shoes or show any signs he understands anything I say to him. I was in such denial for so long. We have no autism, etc. in the family my daughter is bright and amazingly smart and thriving at 6. Yet here we have this handsome affectionate boy who doesn't speak or respond to any direction at 3. It sucks. And the road ahead seems daunting. It is your responsibly to take advantage of all the help that is accessible to you now. Apparently the sooner the better. I'm scared too, but your boy sounds just like mine they are autistic they need help and we're not equipped to provide it. So move forward as if your fighting cancer and do anything and everything you can to give him a chance. Best of luck, my prayers are with you my own son and everyone else mired in this confusing turmoil.
Sep 22, 2014
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starstarstarstarstar 		Only a speech delay..
by: Anonymous

My son will be 3 in November and he is speech delayed. I called Early Intervention at 18 months because I noticed that he wasnt on track and he started with a Developmental Therapist. It wasnt til April of this past year that we started wiht a Speech Therapist (and in May my son had tubes put in his ears). He said yes and no and maybe a couple other words clearly. I can understand for the most part what he wants but a stranger would not. I have had him evaluated at a developmental pediatrician and she doesnt feel like he is on the Autism spectrum. He does then to ignore me when I call his name but I believe its him being stubborn. And we think that he has a sensory issue because he has trouble focusing sometimes. He is a terrible eater too but other than that he is a typical toddler. Does anyone else have a toddler with ONLY a speech delay?
Sep 05, 2014
Rating
starstarstarstarstar 		My smart two year old
by: Young mother of two

My oldest is 27 months old. At his two year appt the ped told us to seek language help Theraplay . He lost some of his vocabulary. He has always been sorta quiet. I guess signs that my fiancé and I should have picked up on. He was a very "good boy". He doesn't give good contact, he doesn't play well with others he doesn't really notice other kids. He loves tv zombified. I don't let him watch tv as much any now that we've started therapy. He has been def benefiting from it. Uses up correctly and says mom here n there. Catch me givin eye contact and responds to his name sometimes. Those are all things he has to work on. It's difficult from me to think he has autism I just hope he doesn't and grows up normal. I fear that for him. He is unvaccinated and eats healthy. He is a good listener though and understands a lot. I love my son so much and can't wait until he starts talking and doing everything he's trying to now.
Apr 28, 2014
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starstarstarstarstar 		MINE IS THE SAME!
by: Anonymous

My son is 2. Only really says ball. Lays on the ground for sensory, always on his tummy. Motor skills are great off the charts actually...I have not gotten any direction or further testing as of yet..Just first steps. Not sure where to go from here.
Apr 30, 2013
Rating
starstarstarstarstar 		3 year old sensory seeker with no speec
by: Anonymous

Your son and my son are exactly the same. He seems to know more than he lets on. VERY active. He has been diagnosed with autism disorder at 3 years old. He is delayed in speech and will not ask for things, but, will think of very creative ways to get what he wants.
Mar 02, 2013
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starstarstarstarstar 		my son
by: Anonymous

Hi My son is age 3 too with no speech at all. Every day is hard work just trying to figure out what he wants he to gets ot and speech just looking into more gentic testing appartly ther is new testing out
Sep 29, 2012
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starstarstarstarstar 		Just like my grandson
by: Grandmother

Nancy, take you son to a different doctor; a developmental pediatrician. You described my grandson. Speech delay. Sporadic eye contact. Sensory issues. Don't wait. The best time to get help for these problems is asap because the brain is more plastic in babies and toddlers. Contact Easter Seals for speech therapy and occupational therapy. My gson ceased to be eligible for Easter Seals on his 3rd birthday, but he became eligible for services through public schools when he turned 3 and he is doing so well now! Please don't wait. You are his only real advocate. Fight for services for him.

Your private insurance may pay for some speech therapy and occupational therapy too, but first you must get a doctor who has sense enough to diagnose him so you can get services! It is surprising how many family doctors and pediatricians have to be pushed. So get moving now. And good luck to you and your precious baby.
Sep 20, 2012
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starstarstarstarstar 		Have hope
by: SPAINGIRL

your not alone, my daughter was like that oralsensory difficults.She was eating paper everything had to be tested by her mouth,with speech delays she was with the speech patologist, the OT, and with a Social worker to she was very agressive and rule braker. Know she is almost 6 years old she not presenting any speech delays and she is speaking very well she still needs more improvement but very happy to see her more confident and she is traying very hard to learn how to read. she is vey creative and thanks God we are happy that everything is back to normal. Have faith pray and be constant we the therapist.
Sep 19, 2012
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starstarstarstarstar 		give them lots of love and hugs
by: myra lewis

My son is 3 and he is in a special needs pre k program. He had almost no words. Now he is imitating sounds and saying more words. He uses pecs and caught on quickly. He knows his name and is able to follow most directions. He has slowed down, walks instead of running. My experience has been to treat him like a 3 year old little boy. Talk to him expose him to regular activities, playdates, and read as many kid books to them before they go to sleep. My son is technology savy so we bought him a tablet he loves the age appropriate games and educational apps. Remember you are your child's best teacher keep prompting and motivating them. They will talk, and do great things in life! Be patient I know it's not easy. Pray much!! mmalik1913@aol.com
Jul 14, 2011
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starstarstarstarstar 		NEED HELP FOR MY SON
by: Anonymous

hi there,
my son is also 3 yrs old and have many symptoms like urs...he doesnt talk at all...doesnt seems to be interested in it...no imitating...just screaming and running around when he is happy...he has mild frontal lobe abnormality and having repeated seizure...1 every week...he is on 3 medicines and these keeps him dizzy and sleepy most of the time...he is just being diagnosed with autism...he clings to me rally hard and will pat his face and ears with his hands. You must get really diagnose for your child...my son also has large adenoid and tonsils and snores a lot while sleeping and have difficulty while eating...even if tonsils are not infected. he is booked for surgery in next year..i wish so badly i could get it done sooner....he is extremely sensory seeker...does anyone know what i should do to soothe him. i really want to help my little angle but dont know what to do...help pls.
May 25, 2011
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starstarstarstarstar 		:) love your story and comments
by: Anonymous

im so glad i found your story! idk if anyone will read this but my son is 3....he is a sweet lovable boy,has no words...has made a few sounds.i have been taking him to professionals.what i think has improved his behavior is that i try to make him feel herd and since i know he understands,he gets time out when he needs it.i love him and these stories give me hope for him especially the ones that say that their child has improved with age.i think even if there is no exact diagnosis,im just going to love my child and help in any way possible.
Mar 10, 2011
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starstarstarstarstar 		my son too has sensory seeking
by: melissa

I also have a 3 1/2 year old little boy who is a sensory seeker he was diagnosed with sid *sensory seeker* dyspraxia apraxia, frontal lobe abnormality. He understands in a 5 year old level but his expressive language is severely delayed. he just started talking. he says *NO, WHY (BRAND NEW WORD) VOVVA (MOMMA) UNKA, CHOCHO BOB for his favorite movie Monsters vs. aliens (had to replace dvd 5 times) COCOLAT WOSHIE. he also has severe aggression issues. his dr said straight out they can't diagnose him with autism because of the brain abnormality which affects where autism would. does your son seek out dangerous activities?? we have had to hide our knives and scissors because he tried to cut himself and others. but he does really great with my american staffordshire terrier.
Jan 10, 2011
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starstarstarstarstar 		Slow development
by: Anonymous

my son is 3 and has no speech at all. The educational psychologist thinks he's 50% delayed with his development and has a low IQ. he's extremely active, doesn't listen and has trouble focusing on anything. Im also worried what can i do to help him?
Nov 18, 2010
Rating
starstarstarstarstar 		Babbler
by: Angela

Hi Nancy, just found your site thru google, and I know you heard this hundred times, but my son is exactly like yours.My son just turned three and am wondering what happened to your son now. What steps have you done and has he improved?
Aug 08, 2010
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starstarstarstarstar 		Grandma
by: Anonymous

Dorothy, can I just say its nice to hear from a grandma. My mother and my father in law both think there is nothing wrong with my son. Problem is, they both live in other states and see my son maybe once a year for a week at a time. Good for you acknowledging that there is a problem and seeking help. The best I can recommend is wait for the tubes, first. Then continue to read to him, even if he is not speaking, he needs to be spoken to. I learned that just because they are not talking doesn't mean they are not listening. I am reading Temple Grandin's book, The Way I see it and although my son has not been diagnosed autistic, he has a lot of the characteristics so her insight is amazing. Keep reading and learning all the things you can do to help.
Aug 07, 2010
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starstarstarstarstar 		MRELD
by: Anonymous

hi my name is kimberly and i also have a 3 and a half year old!with the same exact problem his only spoken word is (hi)he was diagnosed with mreld. He too babbles alot! I would love to speak with you Please e-mail me. We are doing everything we can for him,The neurologist told us that his speach will come along in time.(schouten.kimberly@gamil.com)
Jun 02, 2010
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starstarstarstarstar 		gradson
by: dorothy

hi my grandson will be three in a week he is having tubes put in his ears in 2 days. we have been waiting for this for a year. e has no speech and also has sensory issues. he to spends a lot of time looking at his hands and fingers. e has delays in all areas and has low tone. any suggestions or help would be appreciated grandma dorothy
Jun 01, 2010
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starstarstarstarstar 		Sounds just like my son
by: Anonymous

My son is turning 4 this coming October and so far is not talking either. He is going through the In-home programs thru an IEP also and they work with alot of the speech, self help, OT, and just practically anything else you can think of. Like the other mom that has the son saying "ball", my son would also just try to say words with anything that has the "b" sound and the "m" sound. He will try to imitate back what you want him to say but it seems hard for him to generalize all the things he's learning in the normal environment. He's potty training right not and completely understands not to we his undies but he will not go to the restroom on his own if he needs to go. Everything has to be a prompt for him.

He seems to be afraid of everything, esp. amusement park rides.. for the little kids of course. He walks on tip-toe too, did I mention. Our main concern right now is his speech and hoping that it will come soon. I am now a stay at home mom because his tutoring is 35-40 hours a week can you imagine the struggles and frustration because he has no form of communication.... So to all you moms out there, I totally understand. BTW, my son was diagnosed with PDD-NOS
May 28, 2010
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starstarstarstarstar 		jhk
by: Anonymous

My mom is diagnosed with sensory processing disorder and had a lot of autistic like symptoms including speech delay. She said that she did not speak clearly and did awful in school till she went to high school. In high school her speech cleared, she started doing better in school, graduated high school with great marks and even graduated medical school. Every one who knew her was so surprised because they did not think she was even able to finish elementary
So ya there can be a major speech delay with sensory problems.
May 07, 2010
Rating
starstarstarstarstar 		My son sounds similar about a year older
by: Cyndi

My son is 4 and sounds very similar to the children here. He started ST and OT at about 2 where he had very few words. Extremely active and couldn't focus long on any one thing. He was extremely visual as I think the auditory/speech wasn't there and it over compensated and he is at probably a 7 year old level with puzzles (100 piece no problem) and things like video games/computer. He had a medical diagnoses at about 34 months which they thought he was not on the spectrum but SPD and dev delay. He was too social and acted out for reasons. Very loving, happy boy. From 2-3 with lots of therapy he made progress but was only speaking 1 and some 2 word phrases.

From 3-4 when he started special ed preschool he has made much more progress and speaks in full sentences but certainly is still delayed but I see more progress faster it seems. He was always a nasalily kid but since his 4th b-day in Dec. he really snores loud like an adult so took him in as heard adnoids can be prob with speech and also behavior as they aren't getting great sleep even though he sleeps through night fine. x-ray today but I am all for doing anything that might help and improve him even if it's an operation. Also, will have a follow up with ped neurologist that did medical eval this summer (long waiting list).

I like you though seek out people with similar kids as I don't seem to see many in the blogs. His teachers are very pleased with his progress and I'll tell you if he is half as good as the kids he is with next year I will be thrilled. They are a year older then him and I've been to lots of b-day parties etc. and most of them I have no idea what their delay is. I am very curious how they were a year or two ago. Anyhow good luck to you and I'm very curious how this adnoid thing works out.
Apr 15, 2010
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starstarstarstarstar 		I thought I wrote your post
by: Anonymous

Your son is exactly like my son, except mine is still 2. He will be three in July.
He is delayed- no words except "Row Row" for "Row Row Row your boat". Good eye contact, but doesn't respond to his name well. Huge sensory seeker. He loves mirrors, deep pressure, chewing, he looks at his hands a lot. He is happy as can be, babbles a lot. He is receiving Speech, OT, and music (since September 09) Still no words. He has ear tubes- we thought all this was because he was deaf for a period of time as an infant but he has had the tubes for over a year and he should have made some progress if that was the only reason. (His ear infection went undiagnosed bc there was no redness, no fever, ate fine, slept fine. The pediatrician missed it time after time, the ENT was the one who caught it)
Mar 31, 2010
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starstarstarstarstar 		It is like we have the same little boy!
by: Anonymous

Really, down to the constant "Ball!" he says. My son is 2yrs and 4 months old. I just had him diagnosed with Autism based on his cognitive evaluation but those can be unreliable because it is based on what he can demonstrate... I know he understands more than he lets on... I have always said he has sensory issues... When your son started to walk did have his arms up most of the time? My son walked with his arms out, elbows bent like he was reaching up to hold hands with us... we assumed that he was so used to holding our hands that it was a habit... but I think that was an early sign he was very unaware of himself and his surroundings. We are taking him to an OT, PT, SLP and are doing RDI therapy... I think he will be great! Good luck! You have a lucky boy, he is getting a lot of great help!
Mar 15, 2010
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starstarstarstarstar 		keep looking up.
by: Anonymous

My little girl sounds just like your son. Although frustrating she has made improvements. She will be five and her speech is at the level of a three year old. Then the spd on top of it all. Did you ever get a eeg or mri done? The eeg tests the brain waves in your head, and the mri is a type of x-ray of the brain. Good luck with everything all the therapy you have your son involved in is wonderful. Good for you keep advocating for him!
Mar 14, 2010
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starstarstarstarstar 		You're not alone!
by: CS

My little boy is the same age and very similar--sensory-seeking, with speech and cognitive delay. He does talk some but much of his speech is echolalic. He was diagnosed as SPD last year, and so far we have been told that he's not on the autism spectrum. I believe that may change though.
Just wanted you to know you're not alone!
Mar 10, 2010
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starstarstarstarstar 		you taught me!
by: Khat

What more could you do for your son? Amazing= I wish we had a special needs preschool in our area.

Just wanted to mention, because my son couldn't talk or be understood until he was about 4, that your son can still read. Just because he can't say words doesn't mean he can't start early reading, or pointing to pictures in books, or answering questions about the alphabet.
I thought that because he couldn't say things that he couldn't read..but I was wrong. I was shocked, when he did start to talk well, that he had been teaching himself to read.

I wish our children didn't have to go through all this. Each child is so different and needs different things. Good luck to you and your child.
Mar 01, 2010
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starstarstarstarstar 		response to Annette
by: Nancy

Annette,

Thanks for the idea of my son's speech being an adenoid problem. Something I hadn't even thought of. However, my son has never had any ENT type infections, really (not even an ear infection). He hasn't ever been prescribed any antibiotics for anything (which is way healthier than my other 3 kids!). But, who knows? Maybe an ENT consult would not be a bad idea. I am willing to try absolutely everything! I'm glad you're little guy is doing better. It gives me hope. Thanks so much!
Feb 25, 2010
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starstarstarstarstar 		Suggestions
by: Annette

My son was very similar to yours very active as far as jumping, etc. and not seeming to be able to sit still. He also was delayed in his speech and would put stuff in his mouth until almost age 4 (he is 4 currently, but this seems to have lessened, but not completely stopped)

Anyways, its sounds like you are doing everything you can, as far as the SPD/Autisim side of it. I would recommend asking his doctor if his tonsils or adnoids are a problem. We had my sons removed and now literally he will not stop talking :) The ENT said it may have caused most of his problems (speech, not breast feeding, acid reflux) as a baby and was probably why he didn't speak, it hurt too bad. So I would at least talk to the doctor and see if that is possibly a problem

As for the SPD I don't have many answers my son too is in preschool on an IEP for his delays and in OT but as soon as one thing seems to calm down, another crops up. If you get any good advice though, please share. Always looking for help myself.

Good luck and hang in there mom, you are not alone, but it is a struggle every day.
Feb 23, 2010
Rating
starstarstarstarstar 		good job
by: Anonymous

Mom it sounds like you are doing everything right so far. My son was delayed in his speech but by age 3 1/2 he was starting to use 2-3 word phrases. He now has a good vocabulary at age 6 and just some pronunciation delays. He's making a lot of progress and I am sure your son will too! Keep seeking answers from your physicians and other specialists! Good luck on your journey!

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