A teen with SPD and Autism

by A.P
(UK)

Hey I'm Andrew a 14 years old teen. I have Autism but I got diagnosed at age 13. Now I'm waiting for the therapy. It's very obvious that I have SPD too but my parents don't want to trust me. They just thing that I'm dramatic but that is not true. I'm very social but most of my social interactions are very limited because of the SPD.




Most of the people don't understand that SPD can fluctuate from week to week (or more or less time). My symptoms of SPD have worsened because I never received OT. I just want my parents to know how I feel. I tell them that they don't understan how I feel and they say that "A person like me can't say that". I say that because I can't go to parties without ear plugs, sunglasses and more sensory stuff. I say that because when I make noises or smell everything around me I can't always control it. I have poor attention when I'm at class, but I'm very smart and I study a lot in my room a lot of time and that's why I have good grades.

I have a brother and a sister. My brother can't understand it and he laughs at me, my sister doesn't understand, but she is empathetic and she helps me. For all the parents of childs/teens with SPD, please when your child/teen tells you that some sensory experience disturbs them please don't ignore them. And for all the people with SPD and nobody trust them, I totally understand you. And that's all guys!

-By Andrew



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Nov 29, 2024
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SPD is REAL
by: Anonymous

Andrew,
As a mom of someone with SPD, your post really touched my heart. I feel that compassion and understanding are a key component to being able to cope and accommodate to get through various sensory overload situations. You are doing a wonderful job being self aware and finding ways on your own to accommodate through very difficult situations--believe me, I understand the difficulty and literal pain one can feel when in these surroundings. And sensory overload is EVERYWHERE --stores, restaurants, family gatherings, school..so it is great that you know some resources such as ear plugs, sunglasses, etc. to cope.

My wish for you is that you receive more understanding and compassion --especially at home--so you feel supported and. can receive OT services and any other therapy that could help. If you mention the SPD to your primary doctors they can refer you to the sources of OT or counselors to help you learn even more coping methods.

Best wishes to you. You are already on the right path by realizing and acknowledging the SPD and just know that SPD is very real and you are not alone.

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