Every day is different with Noah
by Nana Bears
My 4 1/2 y/o grandson Noah has been diagnosed with SPD. Insurance refused to pay for OT for mild developmental delays of 6 to 8 months behind. SPD is not a diagnosis they'll except either. Noah is a very challenging child. He scores very high in all of the HYPO for every area. This perpetual motion machine and risk taker has already caused himself 2 concussions.
He can't self regulate or self calm at all still. Noah will use his advanced verbal skills to try to find a way to calm himself when he is anxious. This can lead to non- stoppable persevering behaviors and the repeating of the same question over and over to the point of driving the adults over the wall. We are not sure why this occurs-insecurity/ anxiety or poor short term memory, either or, or both, it just adds to the spiral downward.
If another child starts to whine or a toddler cries in distress- Noah as to match or out do the other child's cries- empathy?- distressed by emotions he can't separate from his own? or he is trying to generate his own noise to match the level of noise around himself. Self regulation is not one of his skills in any way shape of form.
Oddly, when he is in a new setting with new adults and new rules- he is in a quiet alert and focused state- the very state we would wish he could always be in. This has caused the pediatricians/ OT /PT/ teachers to doubt our concerns. Just until he becomes familiar with the people and environment. That is when he returns back into his normal state of "Tigger- Taz" bouncing off of everything and a whirlwind of destruction. That is when the experts finally "Get it" and understand our concerns.
I have great faith that this combination of challenges and personality will help him as an adult to achieve the impossible. It is the getting him safely through childhood- that is our real challenge.