Frequent Urination

Hi, my son is 8yrs. old, and has SPD.




A little over a year ago, he started having to urinate alot. He is seeing a urologist, and they can't figure out what the problem is. He's been tested for urinary tract infections and diabetes and the tests come back negative. He has also had a sonogram, and several x-rays that have come back negative also.

He does have Encopresis, which we thought could be the problem but the sonogram and x-rays showed that nothing is pressing on his bladder. He doesn't wet the bed, and never gets up in the middle of the night to go to the bathroom, but is running to the bathroom all day.

Today, I wrote down every time he went to the bathroom, and it went from every two to three minutes all day and this is before he's had any fluids.

Has anyone experienced this problem before, any advice would be appreciated. Thank You.



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Aug 18, 2022
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starstarstarstarstar 		Daughter peeing alot
by: Margie102

Same here my 6 year old daughter with autism started peeing alot over the summer, negative UTI tests and diabetes tests. She just started back to school and peed on herself today, said her teacher did not let her go to the restroom. She is going every 10-15 mns. She has been like that for the past almost 3 months, hoping it goes away or gets better soon. I will try that cleanse to get any back up stools she might have.
Jan 08, 2022
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starstarstarstarstar 		Update - issue resolved
by: M.J.

I posted here Jan 2020 and wanted to provide update.

We never pinpointed an exact, single cause for my son’s frequent urination "phase," but it resolved within a month of my post. I call it a "phase" because in our case it seemed to be that. It passed, returned once for a day or two then nothing since.

We attributed it to a combination of chronic constipation and behavioral/stressor related. Urologist suggested that even though imaging showed only a small amount of stool backup, it was likely that he was always having constipation to some degree. Although he has a BM daily, they are always large and hard, rarely soft. They said he should always aim for type 5 or 6 on the Bristol Stool Chart. Urology had him do a colon cleanse with Miralax until his stool was basically clear/yellow water. It was rough. And it did not immediately resolve his frequent daytime urination.

About the same time, we removed the stressor (starting jiu jitsu that he hated and gave him anxiety). This also did not immediately resolve it. We were giving him magnesium supplements and vitamins and stopped those too just to remove any extra stuff in his body. We encouraged increased water and fiber in diet.

We also began to ignore it. We stopped asking him about it or trying to get him to wait longer between urination. We asked his teachers to just let him go as much as needed (they reported often every 10 minutes). It was every 5 minutes at home sometimes. We tried not making him stressed about it like we were.

Within about 1-2 weeks, he slowing started urinating less and less often until it returned to normal.

He had one more episode for a few days, although not as severe. He had not had a BM in 3 days and finally had one and the frequent urination resolved.

So.... long story short. In our case, there was not a clear cause. It seems that it can be a multi-factorial phase with or without biological causes - but there is hope that it will pass in time. Ours lasted months (with waning severity) but totally resolved and has not returned after almost 2 years. He is still often constipated and his stools are rarely as soft as they should be, but the frequent urination still did not return.
Jan 07, 2022
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starstarstarstarstar 		A possible cause
by: Anonymous

A few years ago, my daughter started having episodes of severe urinary urgency and frequency, to the point of falling asleep on the toilet at night. Symptoms would continue for several days, and no cause could be found.

Finally, a possible explanation on an old forum - she had tried to speed up her urination to return to play faster, didn't relax her sphincter completely, and caused inflammation of the urethra. The urge to urinate was there even when she had nothing in her bladder and she would strain to get some urine out, which was irritating and inflammatory. I made her wait to urinate, while easing symptoms of urethritis with home remedies.

She had this happen twice more after figuring out what it was, but it was over quickly both times.
You have to be sure it's not an infection, but if it's not, maybe it's this?
Dec 03, 2021
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starstarstarstarstar 		Constipation led to urination
by: Anonymous

My daughters had thr same issue of frquent urination. The main. Cause was they were constipated and didn't get all of their stool out. We didn't know because theystooled every day but after an early we learned that nor all of it was coming g out. We had to give them a 'Clean out u til their stool almost ran clear.
Feb 17, 2020
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starstarstarstarstar 		Drops of pee
by: Anonymous

My daughter won’t get off the toilet, small drops of pee, pushing it out all night, I tell her wait for the morning until you have a full bladder like everyone else does, anxiety. She won’t, has to get every drop out. Very frustrating
Jan 15, 2020
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starstarstarstarstar 		Frequent urination and itching
by: Anonymous

Old thread, but 5 yo son with same urinary frequency issues. Father is urologist, he’s cleared of all biological causes. We don’t have an spd diagnosis and are just now putting symptoms together that suggest spd. Can anyone say how long frequent daytime urination lasted and if anything helped?
Oct 03, 2019
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starstarstarstarstar 		Frequent urination
by: new person

This started with my son a couple of weeks ago. He is ok during the night. The condition is present only when he is awake.

I know this thread is a few years old. Have your kids' condition resolved by now?
Jan 04, 2019
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starstarstarstarstar 		Frequent urination
by: Anonymous

Hi rakesh
Can you provide the home details
Sep 25, 2018
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starstarstarstar 		FREQUENT URINATION BY AN AUTISTIC CHILD
by: Rakesh

This same situation I also faced and treated my son by homoeopathic medicine.so you can also contact me if still you are facing same problem because homoeopathic medicine treat person as symptomatic.
Aug 21, 2017
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starstarstarstarstar 		Similar story
by: Steph

My daughter also urinated a lot (she's 9 but it started at age 8), very much related to times of stress. We say her brain is tricking her but she's says its not since there's always something that comes out. I wonder if her super senses are working on the insides too.... Like maybe she can more easily sense small amounts of urine in the bladder and the subtle sensation feels like pain to her.

It is particularly heart wrenching at bedtime. Urinary tests always come back negative.
Aug 01, 2017
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starstarstarstarstar 		Any update
by: Anonymous

How are your children doing now?

Helen- Any other info you can provide?
Feb 08, 2016
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starstarstarstarstar 		Autoimmune
by: Anonymous

I would be checking for autoimmune diseases if this persists, check medications against primary immune. There are some medications event illness that can kick off autoimmune diseases, nuerological.
Nov 16, 2015
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starstarstarstarstar 		Solution for frequent urination
by: Anonymous

Did this ever stop for your child? My son is experiencing the same thing and our Doctor hasn't been able to help.
Nov 04, 2011
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starstarstarstarstar 		frequest urination and diet related
by: hellen

My son first presented with frequent urination after eating scones, strawberries and whip cream(3 plates). This was 4 years ago and lasted 6 weeks. Very frequent-unable to go in the car, fall asleep etc until we started using pull ups. All tests negative-infection etc.

This son continued to have some anger, frustration etc and then food reactions again at this Christmas- eating foods we don't usually have, birthdays etc. These reactions(frequent urination)seem to come after the above exposure combined with low immunity(cold/virus etc).

This led this summer to OCD. We are seeing a clear food reaction(as with autism)/toxicity. We are removing these items from his diet and he has improved+++ in 2 days. We are still researching and finding protocols to help him-gut healing, homeopathic support liver/kidney, egg yolk, fish oils etc.

We have just this past weekend made the connection that these earlier reactions to food and ocd behavior. For parents familiar with this- I did not tell him the changes I am making with food but he said to me(the boy that can ask 20 questions/reassurances in a minute) "mom, when I ask you that question I do not seem to need to ask you anymore". He asked me 5 questions in the evening- instead of 5 in a minute.

Just 2 days in with new info/diet. Will keep letting others know how we are doing.
Jan 29, 2010
Rating
starstarstarstarstar 		my daughter had this
by: Anonymous

My 4 year old had a growth spurt over last summer, and during that time she was going to the toilet every couple of minutes, but like your son she was fine at night. thankfully in my case it lasted about 8 weeks and then suddenly went back to normal, i was told this was to do with her SPD, and her sudden growth...

hope it gets better, i know what its like
Sep 20, 2009
Rating
starstarstarstarstar 		PANDAS
by: Anonymous

Does your child have any other behavioral issues? Like rages or tics? You should look into an autoimmune disorder called PANDAS. Both SPD and frequen urination are 2 symptoms of PANDAS. My dd has PANDAS and we started with the SPD diagnosis and went from there.

Good luck to you.
Sep 16, 2009
Rating
starstarstarstarstar 		frequent urination
by: Anonymous

My 10 yr old autistic son had some of the same symptoms. Until it got progressively worse over this summer. I thought of it as an escape behavior and also a perseveration until I took him to see the urologist and researched that he had phimosis.

Because of the foreskin creating an irritation he had the sensation he needed to urinate more often and thus needed to be circumcised. He got it done this summer.

Now he pees good long pees and don't get me wrong sometimes he is in bed at night and he gets out repeatedly to go to the toilet. wets his underwear a little but it's more or less him trying to get used to this new sensation. and sometimes he's waiting for sister to go to bed. He'd go very often as well....Ohh and to top it off he has 3 kidneys! No wonder right?

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