I wish I could do more

by Eric
(East of Eden)

Let me start out by saying this website is enlightening. My son Chris is four and a ball of energy. My wife and I always noticed he was a bit different while others saw him as hyperactive and more than likely thought my wife and I were lousy parents. Luckily he was diagnosed at 3 and we are receiving help via therapists, a specialized preschool, and lot of research.

Despite being on the right path, it is so consuming for the remainder of the family.

I know my wife is beyond exhausted, and my 9 year old daughter does not fully understand the extent of my son's condition. I constantly feel like Atlas holding the world on my shoulders. It breaks my heart that my daughter constantly feels "left out" because we are continuously giving my son so much attention. I cannot tell you how many times I've left work early to help out wifey with the kids. I feel guilty being at work all day while she is at home with our little guy. Last but not least, I my heart aches that my son is different. In fact, it brings a tear to my eye every time I think about up and coming hurdles he will encounter....reading/writing/sports/bullies/riding a bike/tying shoes/uneducated teachers/etc.

I wish there was more I could do...but we can only take one step at a time. It is constant trial and error and feeling around in the dark. I am grateful for this website, a diagnosis, helpful therapists/school programs, and most of all the small window we've discovered into the way my son sees the world around him.

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Sep 15, 2014
by: Anonymous

Have you considered homeschooling to decrease the bullying some until he is old enough to deal with it a little more effectively?

Jan 29, 2013
Brighter Days to Come
by: Francine

As a parent not only of a child with SPD, but also a parent with a grown adult daughter w/bi-polar disorder, a grown daughter w/OCD and a grandchild who lives with us with ADHD, I can totally guarantee there are brighter days ahead.

There is no "normal" child. Only children whose parents embrace their own child's normalcy. We learned, the very hard way, through guilt, years of therapy, and lastly, talking with our grown children, how it was for them and what can help us now with the other kids who are just learning and growing.

Our oldest daughter took all our energy when she was younger and then some more. We always felt so guilty for spending so much energy and not having much left over. But our daughter told us she understood, it made her stronger, more independent, and more sympathetic to others.

We FAR from have all the answers, but the one thing, the only thing, that has gotten us through ALL the difficult times is God and His healing, His support, His all He has for us.

Blessings to you and your family.

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