I have a son that was born in 2009 @ 25 weeks. He had an 85 day stay in the hospital. When he was around 6 or 7 months old he was diagnosed with Sensory Tactile defensiveness. He was dx through Summit DD where he attends school for the disabled. The therapist there had stated that he was the worst case that they had ever seen, because they would have to come in 1 by 1, and they had to remain in the kitchen out of his sight for approx. 20-30 min. Since then he received OT, massages, but he still deals with alot of the characteristics, of SPD & autism. It wasn't until recently that I started to research this, and found out the seriousness of this disorder, because the therapist that he sees said that he would be okay with OT. I had no idea that he probably should be seeing a neurologist as well. He's unable to to get a haircut, we have trouble when it is time to wash his hair, dentist's & dr. appt. are very very overwhelming for him & myself.
But my biggest concerns are that he has involuntary head banging while he sleeps at night. He is still asleep & every night he will find the wall or head board & bang his head. The therapists are saying not to worry, that this is normal. I have been going through this head banging for over a year know & it has not gotten better. He has to sleep in a high chair & he finds a way to bang his head in that. It seems as if they are just blowing me off. All there reply is, just remember that he has determination, look @ how much he's been through. Can someone please help me. give me some advice.