Mother of 2, one with g-tube
Hello. I am a mother of two children, one is 2 and a half and has a g-tube, the other is 6 months and struggles so much to eat. I always knew my two year old had some "sensitivies" as I called them, but just this week she was officially diagnosed with spd. I finally felt like a huge burden was lifted off of my chest because doctors call her an "ignigma".
She has major bowel/stomach issues as well as feeding issues, hense the g-tube. She also has other sensitivities and it is a roller coaster ride with brushing teeth, baths, going to bed, transitioning from outside to inside, car rides, and the list goes on. As I am furthering my education on this disorder, I finally feel a sense of hope....because I am reading and saying to myself "this is my daughter".
I am willing to be a support to any parent who is struggling with a picky eater. My two year old had an ng-tube for 7 months prior to us getting a g-tube, so I know the struggles. I tried with all of my heart to avoid surgery and was very passionate. I am now at my 3rd feeding clinic with her. My 6 month old takes at least a half hour to drink a 5oz bottle and we are up at night with her because that is when she drinks. I cannot even sit down to feed her...constantly walking the floors. I know all about texture issues and mouth sensitivities. I am available to anyone who needs support.