My Challenge

by Sharra

I am so very relieved to have found this site. This is the beginning of a new chapter of "What you never knew about your own kid". My son, God bless him, has been a challenge since the beginning. He had colic, then into a corrective helmet to reshape the effects of plagiocephaly. The muscles in one side of his neck were shorter than the other side resulting in his head to literally grow sideways. Along with this was physical therapy. All starting at 3 months. We only had to do this until he was 6 months, thankfully. Everything was going great, he started speaking very early.

At 2 his pre-school director told me how incredible it was that when he had to sit in the front with her - because of behavior issues - she could actually have a conversation with him. The pre-school issues were never-ending and the teachers always had the same defeated, shoulder-shrugging, give-up type attitude towards how to manage my son. It was so strange to me because while he was never and angel at home, his behavior was certainly never to the degree I was being told it was at school. His last year of pre-school they did a survey that determined whether he was 'ready' for kinder or not and they emphatically told me NOT to send him. He was NOT ready. Despite my concerns, they would simply point to his fine motor skills and social skills and say "he wouldn't be able to handle it."

I started him in kinder anyway

knowing his little brain needed the daily stimulation and learning this setting would provide. Thank the kindergarten heavens we got the teacher we did because she has been SO amazing and patient with him. With all the other children she has to manage, she found a way in his day to really get to the root of his behavior and start to peel away the layers and work with me on what might be the issues and how we could HELP him. Something no other teacher had ever done. It's been so nice to have a teacher want my child to succeed rather than just tell me how frustrating he is to have as a student!

We are just now getting started on the sensory issues and next week we are meeting with an occupational therapist to pinpoint what's really going on. I have so very much hope after reading this and the last few conversations with the pediatrician, teacher, and a friend with some experience that there's actually a REASON for all the trouble we've had and more importantly, there's a way to manage and help it! My son is an amazing guy. His imagination is fantastic, his heart is so very good, but sometimes his body doesn't always agree with what his brain is trying to understand. How is that his fault? As his mom, it's my job to make sure the world can see all of his attributes and not just give up on him because of a few perceived flaws. I promise you wont regret the effort!

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May 19, 2012
Right Path
by: Anonymous

You are headed in the right direction, reading your post was like deja vu for me. Last year, my son was 3 1/2yr and in pre-kinder when he was labeled as a "trouble maker" and I received daily notes home from his teacher. I fought the entire school year with the teacher and Director. The last straw was when when they gave me a letter saying they were reserving the right to admission for the next year and that I had to change my attitude greatly because I wasn't supporting my son or the school. I had been driving him weekly to a speech therapist (3hrs each way) for a year and he had just started occupational therapy 2 months prior to this letter. I had a huge fight with them and they finally agreed to a Skype call with his therapists - something that I had asked for 6 months prior - and then they changed their attitude about him.

He is now in Kindergarten and doing amazingly well with his new Teacher who "gets" him and works with us, his therapists and mostly him. Now we travel by bus weekly for his 1hr of occupational therapy followed by 1hr with the educational psychologist (he finished his speech therapy). We leave at home at 9:30am and get back at 9pm. I live in a small town in Costa Rica and have to travel to the main city for therapists. I have also started printing out fine motor skill worksheets for him to do at home. It's hard but there's no one else who'll fight for them like you will. So keep at it no matter what and know that there are others in the same situation as yourself.

May 07, 2012
RE: Challenge
by: Lyn

Hello! Your son is very lucky to have a mom who is very patient, loving and so in tune to his needs. I have a son turning two diagnosed with GDD. You are very lucky. I think your son is really intelligent. My son has no verbal skills, no eye contact. The list could go on and on. But we are counting each day and helping him the best way we could.

Good luck!

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