My son has been diagnosed with spd but a doctor had an arguement with me that it is a medical term...
(Lyndonville, Ny, US)
I am so confused right now. My six year old son has so many sensory needs. I took him to the OTR to have him diagnosed with Sensory Processing Disorder. She did diagnose him but she felt that he needed further evaluating for behaviors to know if the behaviors are being caused by the sensory or if the behaviors are coming from another area. I took him to the center today and of course the doctors statement was that this is not a medical term, it is just a term that OT's like to throw around. My sons behaviors have caused a real issue for him to further any educational needs.
- continually seeking gross movement
- eats two bites of his food, says he is full and has to put it in the fridge and he is back to the fridge 20 minutes later because he says his belly is still hungry
- will have a fit if his routen is changed
- would rather play by himself than with others.
- hugging animals to tight
- didnt cry with shots
- hates to be hugged- feels like he cant breath
- hates tags on clothes and seems on socks, yet doesnt care if his clothes are twisted or even on backwards.
- he will cover his ears and yell if he hears a loud sound.
- unable to calm his body down after any physical activity, it almost seems like solar power. The more activity the more energy he develops
-hates weighted blankets, vests, lap turtles
- hates to write because he says "birdy fingers hurt", the pencil is very uncomfortable to him.
-If he gets a drip of water on his shirt he must change.
-insists on wearing hate and gloves in the summer.
-can not cut with scissors
- very limited fine motor control
- avoids eye contact
- always breaking toys and other peoples belongings because he plays to ruff, not to be mean.
- can verbalize a sentence but cant put it on paper unless he can copy it after someone else has writen it.
he is afraid of having the wrong answers so he will become upset
I feel like I could go on all day.There are so many other things on this list that he has. The problem I am having is that the doctor at the center told me that he doesnt have adhd, add, autism, aspergers.HE does have some anxiety with performance and the best diagnosis she could provide me with is Oppositional Defiant Disorder. Strictly because he has developed many avoidance tools and he is being defiant even though he is egar to please, doesnt argue with adults, is not revengeful or spiteful, doesnt not try to annoy people. It is the only reason they could come up with for the possible behaviors we are experiencing.
The biggest issues we are experiencing right now in school are him crawling on the floors, making animal noises, running around the room and of course when he sees letters put in front of him he starts covering his ears and making loud noises. He is starting to become aggressive with the more he is being pushed to work on his reading. At this point I am so confused and I have no idea where to find help.
We live in a very small town with no services. The nearest place to receive any help is about an hour away and that place cant seem to agree if we have one diagnosis or another. I almost feel like he is under responsive in some areas and other areas if he is offered what his body wants so badly he wont be able to calm himself back down. I have to ask how I can find an appropriate amount of certain activities to help his body calm down. He has finally started to be able to connect with some peers since he started the intuniv a couple of weeks ago but most of the kids in his class think he is weird or scary. He wants to be liked by them but he also needs it on his terms. He can only tolerate certain things. Any help at this point would be great!