oh its real alright

by lisa jackson
(chard somerset UK)

I have a 4 year old boy who has SPD and it's real alright.

He had open heart surgery at 1 month and 7 months but in the beginning it was missed and it was only by chance that an unrelated illness brought it to light.

Its hard work having a young one like it. Also very lonely as I don't know another child with it.
I thought it was ADHD and I knew from a very early age that my lad had problems but no one would listen to me.

He still can't eat hot food, and has a very limited diet. He loves to eat things like batteries, paint glue, paper, rubber, wheels of his cars etc.

Also he never stops moving and doesn't know when to stop.

"All labels itches me" he says and he's also had severe speech delay... list goes on.

The problem I have is that unlike ADHD, no one knows how to handle him as he's not naughty, he's content.

The plus side is that we now have fantastic OT's for him and at last someone believes me.

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Aug 30, 2009
by: Joey

I'm really glad to hear that both of you have an awesome OT and that things are looking up for you ladies and your children. This gives me a tremendous amount of hope since my son also has a speech delay and loves his "wheels".

Thank you for putting a smile on my face!

Jun 21, 2008
Way to go!
by: Jessi

Good for you for persisting and getting your kiddo the help he needed. You are not alone! Going to this site helped me realize that too. My son also had a pretty significant speech delay which intensified the SPD quite a bit.

I kept reading about all these kids that had SPD but were reading by the age of 2, etc. and I thought, What are they complaining about - at least their kids can TELL them what's bothering them! I've also had difficulty in the past with people thinking I had a bad kid, but I knew he was a sweetie deep inside, he was just so bothered by the world around him that he lashed out when he couldn't handle it.

With speech and OT for the last 9 months or so he mostly just seems like a normal kid. He's still behind in his speech, but you can understand about 90% of what he says now. The best part is that now he can understand what other people say. Before, my estimate is that probably 50% or more of what people said he didn't understand.

Hang in there - it's going to get much better. Good luck!

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