Older Mom says Trust yourself and Don't give up.

by Older Mom

I know this is long but I am thrilled to have found this site. You all have my deepest sympathy. Not much scarier in life than knowing something is wrong with your child but no one believes you. I looked at the checklist first--fits so many things from my oldest.One area in particular. My 1st child had feeding problems at birth.No breast feeding- wouldn't latch on, arched back away from me, etc. The hospital nursery finally offered a bottle. I used a rubber nipple shield to breast feed. He spit up quite a bit.

Then I went to bottle feeding. He would drink about 2-3 oz and volcano vomit everywhere-looked like more came out than was going in! Then he would fall asleep(in his swing,old hand-crank type and why were they so noisy to wind up?)and about 2 hours later the circus began again.We changed formulas-milk based, soy based, goats milk, you name it, we tried it alternating day to day. Always the same. Eat, vomit, short nap around the clock. At 2 wk appt he was "failure to thrive" & hospitalized for 5 days. A nursery staff mem told me he was fine,I was the problem. Just burp every oz. When I entered his room he had vomit running out his nose & down his face & blanket.I screamed for the nurses while I checked that he was still breathing.When they entered the room, the 1st,1st comment was he must have thrown up when he saw ME. We checked him out of the hospital and once home we fed him a thin gruel of instant mashed potatoes through a juice nipple.

He slept about 8 hours straight but we were up checking every hour, afraid we had killed him or something.

Next day started him on a Rice cereal gruel. MAGIC. Still would only sleep while swinging. At 6 wks, we returned to CA & I started shopping pediatricians. I finally found one who believed me. He said, Here is a prescription for a calcium glucose syrup & vitamin drops for the rice cereal. Also in an 8oz bottle put 1/2 oz milk with rest water. If that is good, gradually add more milk. By the time he is a yr old he should be able to handle milk. He saved my sanity & my son's life. Pediatrician helped us through adding/wearing new foods. Offer raw & cooked of same fruit/veggies at same time-see what happens. Son's fav food-Meanie Weenies (beans & wieners) Biggest part of leg was knee, biggest part of arm was elbow.

By child 2 we were ahead of the game & had discovered neither could tolerate 100% RDA Vitamin C. Kool-Aid, oranges, tomato so on was like a poison-wthin hours rashes, diarrhea, vomiting, fever.I was told repeatedly that you couldn't be allergic to VitC because it isn't stored in the body, needs daily ingesting..blah, blah. Try telling DayCare they can't have Kool-Aid. This was 1980-1983. My sons are now good cooks who like to experiment, maybe because we encouraged their help with meals even when they were little, maybe we just got lucky. There was much more but you get the idea.To your "helpful" friends & family members: If it were diabetes, they wouldn't feed your child sugar cubes, would they?

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Aug 15, 2012
to Janice
by: Older Mom

In reply to your question re: other issues. Yes, child 1 had issues. He would sleep as long as he was moving. Before we got the swing, we would drive around the neighborhood. Gas was 53 cents a gallon then! lol. He was extremely focused on whatever he was doing and would not respond to his name being called until I got close enough to touch him. Then he would kinda blink back to the present. He enjoyed jigsaw puzzles beyond his age level. He enjoyed coloring within the lines and got upset when he went over the lines. This was before age of 3. He did not speak much. Just point and grunt. When we took him off the sippybottle, I had a very hard time. I thought my husband was giving him a bottle after I said no..until I caught my 2 1/2 year old in the kitchen one night filling his brother's bottle with milk. I told him if he was old enough to make a bottle, he was too old to need one. That was that.

I truly thought he was autistic. Had a specialist do a full workup when he was 2. They said everything was normal:developmental milestones, hearing, vision, reflexes etc, he just had nothing to say. hmmm. Guess that was true because when brother got bigger, he chattered away to him all the time. In Full Sentences.Explaining the World, I guess. And accident-prone. He once was sitting on the ground playing, fell over and gashed his head open on a set of bleachers. The ER people knew us by name.When he was about 4, he told me he didn't need me anymore because he could dress himself, go to the bathroom alone and make a peanut butter sandwich.I said, Yay, I'm doing my job. (We laugh about that all the time now.) When he went to school, a psychologist told me he was too well-behaved and contained.

He observes instead of participates. His 2nd grade teacher said he never finished anything, just did the same work over and over.(until it was perfect.) And would blank out in class. Wouldn't pay attention but still knew the answer when called on or on tests. More rounds of testing- childhood epilepsy/seizure conditions? Nope and nope. Teachers complained to me all the way to High School that he must be cheating, they just didn't know how. He can do complex mathmatics in his head- see the answer but not show the work. And he is a gifted painter-should have seen that coming. Both child 1 & 2 have taken German, French, Latin and Spanish.

That was why reading the checklist on this site was so interesting and I remembered so many things from child 1 that child 2 never did.

Jul 18, 2012
Older Mom
by: Janice

Thank you for this post...loved every word, and bound to be helpful to those going through food issues. Just plain inspirational. Did the boys only have food issues? Any touch or sound intollerance? Just curious, as I am wondering if SPD can have only one focus in some children.

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