Rushed SID diagnosis gives me pause

by Ken
(Atlanta GA)

Daddy, I'm going to put my finger in my mouth, try and stop me!

Daddy, I'm going to put my finger in my mouth, try and stop me!

My 3 year old recently had a visit to a Neurologist and it was spent 1 hour in the waiting room, 30 more in the Doctor's office alone, and 8 minutes with a Neurologist who saw her walk and checked her tone and reflexes and said she had S.I.D.




Well, my daughter didn't display a single symptom to the Doctor other than her incredible fear of being at her office by screaming and crying for the entire time. So how in the world can she be so confident she has this disorder?

The bottom line is she displays symptoms from the Tactile dysfunction list, however has several others from the others as well.

I am beginning to think the only way for an accurate diagnosis is for a specialist to stay with my daughter and observe her with me, the Dad for one full day. In her own surroundings and environment in order to witness what it is I am concerned with. There is no other way for me to feel satisfied my daughter was properly observed and evaluated. Not to mention the bill was an outrageous $1000 for a lousy 10 minute check up and cheap toy that broke before we got home. I am very disappointed!



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Apr 16, 2015
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starstarstarstarstar 		Educate and Advocate
by: Diane

Hi,
Write down every little thing about your child's behavior and take it with you when you go to see a "professional". Make them address your issues and also tell them about any research or education you might have done that possibly relates to your child.

And always remember THE DOCTOR WORKS FOR YOU. This may sound pushy and many doctors don't like this from a parent, but it has been the only thing that has kept 2 daughters and my husband from going into a mental hospital. I work with autistic boys and I try my best to get the parents involved in becoming advocates for their Kids. Diane
Jun 08, 2011
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starstarstarstarstar 		AJ
by: Anonymous

we went the rounds trying to figure out what was going on with our son, many specialist appts, many evals, etc. but we have found that a good occupational therapist will validate your concerns and help you address them in an effective way. there is a link on this website to finding an ot in your area, here's the link:

http://portal.wpspublish.com/portal/page?_pageid=53,83247&_dad=portal&_schema=PORTAL

i would start there. good luck.
Jun 02, 2011
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starstarstarstarstar 		SID
by: Anonymous

Do you have an intermediate unit in your county?? Check with the public school for more information. IC will provided free service where kids (infants to pre-k) get evaluation from PT,OT & ST. Take an advantage of it ...your child will received the help she needs especially before she starts school. If no IC, check with pediatric PT/OT.... Good Luck!

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