We need a diagnoses for our 3 year old could this be it?
(Calgary, Alberta, Canada)
we have a 3 year old daughter (almost 4) and from the day she was born we have had problems with her......she is our 2nd child our first born is awesome no problems at all.....anyways the first year and a half Kya screamed (she never had a new born cry it was a blood curdling scream!) she would scream 10-12 hours solid with no break, she wouldn't take more than 2-5ml of formula at a time for the first 10 months Dr's pushed us away saying colic (I was in emergency with her 2-4 times a week) when Kya was 2 they put her on prevacid for reflux and we started seeing a GI specialist from there we have gone to a metabolics specialist an allergy specialist
....early on this year Kya started having absence seizures so we went for yet more testing and to see yet more specialists.....the cardiologist discharged us as did the neurologist putting these seizures down to exhaustion cause of lack of sleep, we go back in nov to see the nose and throat specialist and we have just done an overnight PSG test at the sleep clinic last week.....I've done a ton of internet research over the last...almost 4 years and came across sensory processing disorders tonight.......
The symptoms we have for Kya are....
she doesn't sleep through the night.....without melatonin shes up til
11pm or midnight then she falls asleep but wakes up through the night.....with the melatonin shes asleep quickly but seems to wake up more through the night........she doesn't nap in the day time!
she doesn't eat well......she choked on everything including her own spit up til recently.....but even now she tends to chew her food then spit it out! (she does tend to eat dirt in the yard!)we have taken milk away from from her 2 weeks ago as we were finding she was substituting milk for food and was up at night for feeds (milk!) she weights 47lbs but since the milk cut out she has lost almost 2lbs!
shes easily irritated.......we think maybe from being tired?!
shes so clumsy and uncoordinated again we think maybe due to being tired?!
she can't stand to be dirty....she has to wash her hands throughout meals or during painting etc etc.......sometimes she has had up to 5 showers in one day!!!
she refuses to wear anything other than pj's .......if we go out she will only wear leggings.....anything stretchy.....and that a fight!
and I'm sure I've missed out a few things......
is this something my daughter may have?........I would love to have some answers as well as a little support as our journey with Kya has been exhausting and we are desperate for some kind of diagnoses!
Thank you for reading :)