Weary Eyed I Fight

by Lindsay Kelly

Weary eyed I fight- for my child who has not a choice.

I never imagined I’d engage in a relationship between this child’s senses and her brain. They often do not communicate well, and so I act as mediator, interpreter, and confidant. My hope is that one day my beautiful girl will do this for herself. I use whatever means necessary, although the strength to do so does not come from me.

My strength is drawn from her adamancy to be, and to be okay. Her tenacity to cope- gives me the tenacity to try one more thing, one more day.

When exhaustion and overload argue in my mind- we swing.

When the phone is ringing and younger brother is banging on a child’s drum- we escape to her “quiet place”.

When too much is too much- yet I need to keep going with the day’s activities - I still muster the words to say ’enough’.

Yes, I fight. Explaining to others, who would readily explain it all away, I challenge others to change their perspective. I do so because I know her reality will not change. I fight my own demons that whisper in my mind the secret wish for one day normal.

I loudly shout the blessings of having this beautiful girl- who can hear all the noise in the world. She offers me hope, and giggles, and emotion. She offers me a new perspective. While we did not have a say in the matter- we have a say on how the matter is handled, and so I FIGHT!

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Dec 09, 2011
another day in paradise =^)
by: Jennifer

oh boy don't i know it! I feel I've cried more over my ADHD/SPD son than I have any person in my life. I've spent more nights sleepless over him than any event (and I'm a church teen sponsor LOL).

PRAISE GOD that HE is bigger than this because I definitely did not choose this.

I will fight!

Sep 13, 2011
bless parents like you
by: Anonymous

I'm sitting here sobbing. Your child is so very lucky. I wish to God my parents had been like you. I've been broken for years.

May 19, 2008
by: Cindy

I know how you feel! My two sons are very similier in sensory some ways but the younger has more noise sensory issues. He has to control the auditory sounds & when he can't-meltdowns occur. Didn't catch how old your daughter is? But in some ways my son has improved with age, he is 4 now. He actually belted out Happy Birthday yesterday along with everyone else for my grandmother when he used to hold his ears & yell at everyone! But then, it all depends on the day, doesn't it?!?!

My sons have both recently been evaluated & started sensory therapy. I am hoping it will help them gain weight along with dealing with their overwhelming senses easier... Best wishes!

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