What a relief
by Haribos on Toast
I have been on this journey with my son who is now 8 ;since he started showing symptoms at around a year old.
As i read down this list, the tears started flowing freely...im not 'upset', but relieved. Relieved that im not just a paranoid parent over analyzing my childs behaviour, relieved that the things he does and the way he reacts incredibly strongly to, are not 'just because'. He has sensory issues. Major sensory issues.
One particular part in the description has taken a huge weight off my mind: the fact of the inconsistencies in the behaviours. Oh my goodness! i can't find the words to express the sense of relief that has given me.
I dont know if anyone else has similar battles with getting other professionals to 'believe' or see or even comprehend that their child displays these behaviours; and just because hes sitting quietly for the 20 minutes during the appointment time doesnt mean to say as a parent you havent been through hell on earth for the last 26 hours to get them to a stage where they can sit for 20 minutes and appear "normal" (i dislike using that word). ESPECIALLY when they have other conditions that can mask/ overshadow the sensory sensitivity.
My son failed Autism testing because of his impulsive ADHD side and the oppositional disorder (refused to participate, raged, attacked and groweled and screamed to the point where they basically said 'thats not typical autistic behaviour' he cant be) etc.
maybe other countries/areas have a better approach, but in my situation, in the UK, it has been a constant battle to get help or at least an acknowledgement that there are difficulties (and its not just me being a crap parent, as they make you feel!) my sons rages/outbursts get so bad, i have to phone the police on occasion for his own safety and mine (hes average height and weight at 8, and im not kidding, it took 6 grown men to take him down last month).
So, thank you for publishing this webpage...it has helped massively!
And thank you for reading my ramblings.
Huge respect to all parents out there dealing and coping and even struggling. Stay strong, and feel blessed that we have the honor of our extraordinary complex fascinating children. (Its those 'moments' of calm, a glimmer of empathy, a random smile or unexpected show of empathy that make it worthwile..for me at least)