Can SPD Go Away?

by Karla
(San Diego )

My baby!

My baby!

Hello. I have a 5 year old daughter who has been diagnosed with SPD. To say her sensory issues were extreme would be putting it lightly. Everything bothered her. Her socks, her shoes, her underwear, seams on her clothing, doing her hair, taking baths, certain smells, the sun in her eyes, certain sounds. She wasn't answering to her name. She refused to eat. She would gag on certain textures. She would throw these fits that were just out of this world. Sound familiar? The list just goes on and on and on.


She went to Occupational Therapy for 9 months, until our insurance ran out (my husband was laid off). It took awhile but in time she started doing better. Slowly we saw changes in her and then one day it dawned on me that she seemed suddenly "normal." She wasn't screaming and crying about everything. She wasn't biting herself, pulling out her hair or pinching and scratching her skin. She was wearing clothes on a normal basis. She was eating food again. She was even hugging and kissing me sometimes. She was doing great!

But this has left the question, does she still have SPD? Her sensory issues only flare up in times of stress and even then it's nothing we can't handle. Her socks may still bother her on some days and she gets frustrated more intensely then most kids her age but on the most part we have our kid back! She's like a whole new creature.

So, I'm curious.... can SPD go away?

The SPD Help Line Answers...


Ah, good question! Once you have SPD you will always have SPD. However, it DOES appear to go away in the sense that therapy worked to treat your daughter's symptoms. Therapy worked!! Yes, it did! That is the difference. That is why it appears to have gone away. Her neurological system is better integrated now. The connections have "re-wired" and she is much, much more functional. She is regulated!! This is HUGE. I am so thrilled to hear such a wonderful success story! The therapy worked!

So, NO it cannot go away, but as with anything the symptoms can decrease and be controlled through therapy. This has happened for her! That was the goal. Three cheers. And, you are right... it will still crop up during times of stress, illness, unfamiliar situations, etc. It is like... ummm... let's say, having a seizure disorder. Once you have this disorder you always will have it, but it can be controlled, in that case, through medicine. Or, having any neurological disorder in which the symptoms are controlled... most through medicine, but you always have it. ADHD? Controlled through medicine, but you always have ADHD. Make sense?

Your daughter may indeed be ok for quite some time, or forever. But, don't be surprised if it does appear once in a while in a mild form with various stressors or at various ages (i.e, teenager). Sometimes our kiddos need a little "tune-up", that's all.

You obviously did a great job mom!! And she and her therapist did their job. Fantastic! Hopefully, it stays at bay through various strategies you have learned, and the sensory integrative therapy she received! Count your blessings. I am so pleased. Success stories are so wonderful!!

Take good care.
Michele Mitchell

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Jul 05, 2016
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More than Therapy
by: Anonymous

I think Therapy helps a great deal but something else is happening as your child ages. I doubt therapy alone is responsible. There is also a physiological change that is taking place as your child matures.

Sep 22, 2014
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confused
by: Anonymous

Do you really think it was just the therapy that cured your daughter? I am not convinced. I DO think that therapy is amazing and helps tremendously, but is that the only factor involved? Something is going on physiologically whether it is maturation or gut brain barriers or inflammation or auto immune deficiencies. And we do not know enough. We need to find out more information about this disorder. I will spend my life trying to help my son and other kids until we find out why.

Oct 08, 2007
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rejoice
by: Susan Ross

This is so encouraging, but it still lets us know not to let our guards down. Take what therapy has taught and use those strategies to continue in rough patches.
I am so happy that she is better right now!!!!

Oct 08, 2007
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Thanks!
by: Anonymous

Michele,
I just wanted to say thank you so much for answering my question. This has really helped me!
God Bless,
Karla

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