But, aren't there days, weeks, months, years that things
have NOT been so?
Don't we all connect with other SPD parents and families
because of the similar STRUGGLES we share? Of course we do! It
is NOT an easy road. Sometimes it just tears us up on the inside. It makes us
question our parenting skills, our child's motivations. It breaks
families apart. We lose strength to fight sometimes. We wonder
WHY this is so difficult? We try to understand why our child has
been dealt this hand, why we have. We struggle to find others who
understand. We struggle to find doctors who can tell us what is
"wrong" with our children. We lose hope and energy as we
search for answers and solutions and find there are no quick fixes or
magic "cures".
At the same time, we have days where we see the incredible
gifts our children possess. When we find the right diagnosis, the
right treatment, the right validation, and we regain the strength we had lost.
We finally feel understood, our children finally get the help they need. Some
move ahead more quickly than others. Some decide they are ready and
willing to share their story, their struggles, their education, and
support with others. We all walk a similar path, and we can almost
see predictable stages parents go through as they learn about this
diagnosis and learn what their child needs. These paths are similar
to Elisabeth Kübler-Ross's 5 stages of grief, really... denial, anger,
bargaining, depression, and acceptance. If you think about YOUR
journey, you have probably gone through many of these stages, or are even
just starting them now.
Sometimes, many times, diagnosis is difficult.
Misdiagnosis is common. Therapy can be hard to find, and when we do,
it may not be the right fit, or we simply can not afford it. We seem to make two steps forward, one
step back so many times, and it takes a toll on our emotions and physical
well being. I want you to know, you are NOT alone in this, or your feelings. Admit the struggles, connect with others
who have been where you are today. Find hope and validation in the
similar stories. Remember this is NOT your fault, nor your child's.
Parents of SPD children shed tears. We know there is
something wrong, but no one seems to know how to help us. We are
lost souls, praying for answers to come. For things to get easier.
For help to arrive. Sometimes it does, many times it doesn't.
This is just not acceptable anymore. We KNOW the symptoms of SPD, we
KNOW that it is a neurological processing issue. There ARE people
who can help. We have to keep spreading the word, until we have
reached the farthest corners of the earth. Our children need us!
I want you to know your struggles are similar; that
other parents have felt and done what you have. That other families
are going through what you are. Here you will find sadness and
frustration, pain and sorrow, yet validation and
hope... in the REAL stories of SPD families. Together we WILL make a
difference as we continue to learn, to validate each other, educate those
we can, and advocate for our children and our families!
Have you experienced the pain, sorrow, frustration, and/or difficulties beyond what you felt you could handle? Are you a parent of an SPD child? An adult? A teenager? It matters not, all NEED to be told.
The REAL stories will bring us together and help us make a difference... together! YOUR true heartfelt story is waiting to be told; others are waiting to hear it!
Click below to see contributions from other visitors to this page...
Jesse's SPD adventure
I have struggled with SPD for my whole life but I can tell you despite the challenges it is possible to still lead a rich and fulfilling life with hard ...
From the mouth of an SPD adult.
I'm nearly twenty, a mother of a 2 year old and I was diagnosed with SPD later in life (by later, I mean I was around 16 years old)
The signs were all ...
My Buddy Xander
Ever since Xander was born he didn't like any rough or gritty materials, he wouldn't play in the snow or sand. He even disliked to swing. I had Birth ...
A letter to my mom.
Mom,
Who would have ever guessed that what was wrong with me has a name. It is SPD. Remember how hard it was to dress me? You tried to buy me clothes ...
Helpless and confused
My son just turned six yesterday he is a very loving out going boy , but when out comes to getting him dressed its another story..he is in first grade ...
My Greatest Blessing
I would like to think of my experience with SPD as a blessing, one which humbled me and taught me how to love in a deeper and much more sensitive way.
My ...
Rae's SPD testimony
hi my name is rae, short for rachel. but you can call me rae.
for as long as i remember i have suffered from OCD since i was 5. i never used to be ...
Nicole 22yrs later and going strong.
Hi I am Nicole. I was diagnosed with Sensory Processing disorder when I was only seven years old, and I am now twenty-nine. I have had a struggle as ...
Katie's story
I have a beautiful daughter named Katie. She is 6 years old.She has cried about something everyday since she has been born. I'm not kidding or exaggerating ...
Ian's Story
My son Ian, who is 9 years old now had been diagnosed with SPD since he was 2 1/2. He has had speech and OT therapy through school since then. My problem ...
Levi's adventure
Levi since he was born, he was awake 8 to 16 hours without naps. Even as as infant he cried for hours. He loves 20 hugs a day. He is very loving. He just ...
Ethan's SPD Story
I felt from birth that something was up with my son.
He would cry and fight for his life during baths and still has a hard time. I just figured ...
Very confused Parent
I don't know how to start this because I am still shock about how all of this has come about. My three yr old son has been diagnosed by his school and ...
Mistaking a child with SPD as being a "spoiled brat"
Someone just cued me into this disorder and I found this site. Your writing and stories are great. It is especially meaningful to me because I have a ...
Frustrated
I too thought my child had sensory disorder till I had had enough of paying out hundreds of dollars for peadiatricians and test etc, I was told some weird ...
Kyle's Story
Kyle was born at 24 weeks gestation. He spent his first six months in the RCNIC. We knew there were possibility that he would have a learning disability ...
An awful summer...
Now that my son is 9 and he has grown into a very large child 130th percentile on both weight and height we have more issues than ever.
Over the summer ...
SPD and Immunizations
Thank you everyone for your stories, I know now I'm not alone on this.
My daughter started a pre-k program back in August and we struggled until January ...
A Teenager's SPD Journey
I was diagnosed with this disorder at the age of 5, along with hypotonia. I'm 14 now and can honestly say I don't clearly remember most of my symptoms ...
Isiah's story
Isiah was born full term and a very happy baby. We couldn't have asked for a better child. Everything was fine until he was 4 weeks old. He started shaking ...
My OCD ODD SID ADHD son!
I know my child has a SID of some form. I have read about this since he was 3 and have been trying to get some type of treatment for him or help in a logic ...
My child's SPD Journey
IN the beginning:
My child came to us when he was three days old. We picked him up at the hospital. He was the last of our six adopted children....
SPD - no big deal in Germany
We are on a 4 month familyrecover. We chose to do Houseswapping from Germany to Australia, because we are just burned out. We had good and bad days around ...
Jeffrey's Journey
From the beginning, Jeffrey was a very sensitive child. He had issues with formulas as an infant and co-habitated in our bed until he was nearly four ...
SPD and my eldest son makes sense now
My eldest son, who is now 10, has not had an easy start to life and we haven't really understood his sensory issues until now. From when he was born, he ...
Loosing every day item-sensory seeking children
I would love a morning where my kids did not have to look for something they lost. More often than not they loose a item that they had in there hands not ...
how I felt
As a child with SPD, I knew I had this condition, but never really knew what it was. All I think know is God Bless my kindergarten teacher. After barely ...
They told me i was a bad parent.
My gorgeous bright intelligent son has no concept of danger, we live on the top floor of a 5 storey building and he has to be told repeatedly not to climb ...
This broke my heart
My SPD kiddo on overload from middle school has a aversion to bathing, if its busy or not timed just right she hates water, sometimes it is good then its ...
Tori's SPD Journey
My younger daughter Tori has been a handful from day 1. At 12mths, family and friends had nicknamed her "Torinado" because she just didn't stop. In first ...
Trying to Find the Right Key
Our son Leo, now 31/2, was diagnosed a year ago as having SPD. While this was very early to be sure of such an assessment, he did and continues to exhibit ...
Ky's journey (just beginning)
I knew my son was "different" almost immediately. He was undoubtedly a brilliant child. Speaking in sentences well enough for strangers to understand at ...
Mothers tears
I know it's been said before, but I have to say it.... WOW!!!! The day I googled "my child doesn't like the way her clothes feel", I was at work after ...
A 20 year old girl's story.
When I came upon this site, I was so glad that people had researched about it since my mother wondered why I wouldn't eat certain foods, drink from her ...
Dealing with 2 children with SPD
I will first start off with my daughter who is now 7 years old and we are just confirming she has this problem. I have suspected for 4 years and could ...
A Difficult Road (17yrs)
Looking around on this site I've found many stories of younger children but only a handful of stories about older SPD children. I think my mother would ...
Dealing with a SPD Child...
Hello,
I am a mom of 4 beautiful kids! I just recently found out my daughter has SPD, She is a 4 year old beautiful,smart,caring little girl.
When ...
Gut Instinct Knew Something Was Different
There was something going on with my son from the day he was born. We have never received an official "diagnosis", however, I know as his mom that there ...
Braxton's Story
Hi,I'm new to this site, but I have read some of the stories and I find it in my heart to tell you my sons story.
To start off His name is Braxton he ...
Jason's story
My son Jason is 3 year and 3 month old. I think he may have SPD. He is very smart boy with great memory. He could count up to 100+ and recognized both ...
Madisons story
I have a beautiful daughter named Madison who will be 3 in December. We noticed as soon as she started walking at 1... she always walked on her toes. When ...
Jackson's Momma
Hi everyone! I am new here and would like to share my story. My name is Stacy. My son, Jackson, is 5 and I believe he may have SPD. Here is my story....
Zacharias will now get help
Let me start by saying I have never heard of this until now. I stumbled across it after reading in an online class I take about a parents child with this ...
Kelsey turned (4) and our lives changed
I too had noticed that my beautiful little girl was unique. She is always thirsty, as soon as we get in the car or get home, shoes came off. Then as ...
Joseph's Story
Finally my eyes have been opened! I am so thankful to find this site. Joseph is 5 years old and we have noticed many quirks over the last few years but ...
An adult...and a recovering SPDer
I am a mom, and I have always had SPD due to hydrocephalus and an apparent birth injury which also resulted in epilepsy. I'm nearly 42 now, and when I ...
Daisy
Actually her name is Karyssa but at age 3, my mother decided that that name must be too hard for her to say so Daisy was born. But her problems began way ...
Ethan's Story
My 5 yr old son has recently got a diagnosis of SPD and his behaviour is making a BIT more sense although I feel completely overwhelmed and emotional at ...
Our Journey To Discovery....
Our son Bryan was the BEST boy anyone could wish for. He was our third child and was so easy to tote around with us everywhere.....UNTIL he turned 18 ...
Gracie's journey-Success!
I just found this website today and I am thrilled to see the amount of information offered. I have a 15-year-old daughter that was diagnosed with Sensory ...
I am 26 and Im not weird I have SPD and SID.
Hello,
My name is Nicole and I am from Boston. I just turned 26 this past May.
I was diagnosed with both SPD and SID when I was only 7 years old....
Deagan's Story
This is the story of my son. He will be 3 soon and I as his mother knew from the start of his first year that something just wasn't right.
He struggled ...
Jason's SPD
Jason was born a month premature. He had a very rough beginning and couldn't breathe on his own. He was in the NICU for a week, was released for 5 hours,...
Loving Blake
Blake was born March 24, 2000 and was our first blessing of life. Immediately he went into the NICU as I had an infection from prolonged labor.
We ...
It is not just Nathan
Since Nathan, who is now 11 was 1 year old we have had problems with the way he ate. He stopped drinking milk at a year. He started to eat food from the ...
AJ's Story
AJ was born at 7:37 PM on April 27, 2004 via a C-section. He scored perfect on his APGAR test and learned how to nurse very quickly. He had a little colic ...
We had no idea... but success has come!
Brian was our first child-we were 25 and had no idea what "normal" was. He cried ALL NIGHT. When he finally napped in the day... if anything touched him ...
Katherine's Story
I'm 17 now, but was diagnosed with SPD when I was about 2 years old. I don't remember too much from when I was younger, although my mom told me that I ...
Life With A Sensory Seeking Body (19 year old)
I am 19 years old and I have SPD. I am hypo sensitive and I like to chew on things a lot. That is how I regulate myself. I just wanted to let you know ...
Today Is The Begining. My son, William.
Five days over my due date I was attending an emergency scan because I was having pains, but no contractions. The scan revealed that I had bit by bit lost ...
SPD times three
Where to begin, when I got our first dx of SPD my children were right at a year old. One of them had a difficult time self calming, he seemed to get upset ...
FINALLY!!!!
My son Aidan is 22 months old and just today we were finally able to have a child developmental specialist listen to our story and believe us. I have ...
Emma's SPD
My daughter Emma is 11 and may have SPD. This is what she goes through everyday,
1.Won't wear turtlenecks and hates wearing jeans
2.Cries if her ...
Billy's Journey Through Life
Not rated yet
When my youngest son, William... he's always been Billy to us and answers to no other name... was two, he woke up one morning in a very bad mood and ...
Coping with SPD and Depression as a teenager
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I have always known I haven't been normal. I was diagnosed with SPD when I was just over a year old. I had so many problems when I was younger with my ...
Adult SPD Sufferer
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I realized I had SPD after reading a novel in which one of the characters suffered from the disorder. Then it ALL made sense. I couldn't figure out why ...
I have sensory disorder.
Not rated yet
When I was little I was diagnosed with a sensory disorder but I didnt know till last year. I used to have to be blow dried when I got out of the shower ...
My Square Peg- David's Story
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I came from a family of all girls, so when I found out I was having a boy, a wave of "I don't know anything about a boy," came over me. Then came the ...
My Sensory Seeker-Our Journey
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My daughter was diagnosed with SPD in March of 2010. I always thought she was different, but didn't pay much attention to it until her teacher for 3 year ...
My on going miracle baby
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My daughter Abigail was born two weeks early. But let's go back before she was born. While in labor she decided to fall asleep constantly. They gave me ...
I might be diagnosed with SPD.
Not rated yet
I am 10 years old and i like reading this site because it makes me feel comfortable because they are other people like me...
I Cant wear socks because ...
Misunderstood, misdiagnosed
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When I was about ten, I was diagnosed with NLD (nonverbal learning disorder). My childhood was full of conflicts with my parents, that always ended in ...
My son Sasha
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Sasha was born after I had been on bedrest for about 18 weeks. But because so much of what he has is familiar to me from my childhood, I don't think the ...
There's more than one issue here...
Not rated yet
Hi, I'm Katie, I already wrote "how I felt", and I wanted to say something else- make sure you check out all the possibilities. Last year I started having ...
Aiden
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Aiden is my beautiful 4 year old son; We have always noticed something wasn't quite right. No one would listen until i finally got tired and called a counselor ...
My first little boy
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My son, who is 6 yrs. old now, hit all of his milestones up until about 3 yrs. old. I look back now that I've discovered Sensory Processing Disorder and ...
My sweet Naomi
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My sweet Naomi, was born exactly on her due date, which also happens to be Valentines day. No complications and other than a little bit of colic the ...
When your child has trouble sleeping try this....
Not rated yet
Make a nest out of sheets using king size pillows and cases. Also Paint the walls using pastel color like blue or green for calming. Play nature sounds ...
Protective mommy
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Lets start off like this.I am a mother of two boys one planned but the second snuck in inspite the fact that i was fixed. His name is Traven ;)
When ...
My Story
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Hi, My name is Miranda and i am 27 years old living with SPD. I have been my whole life. My mother said I used to make faces at my family at the dinner ...
You Can't Spank it Out of Her!
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From birth our daughter had a difficult temperament. Our story was so similar to Michelle's. In my heart I knew something was off but what? Of course ...
It feels scratchy..
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hi.. my little boy is 9 and for a long long time I have known something wasn't right but didn't know who would listen to my worries. I tried telling the ...
Just keep trying that all you can do.
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The theory that a child's behaviour's have to be present in more than one environment in order NOT to be parental failure problem is WRONG. I kept trying ...
60 year old woman
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I'm a 60 year old woman. For 58 years I thought I was crazy. Visited many psychiatrists/psychologists searching for answers to my "weirdness".... noise/...
Twenty years of not knowing
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After watching Dr. Phil (about eating disorders)I decided to search on the internet for information about my son's problem. I haven't done this for a while ...
A new understanding and removal of frustration!
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My daughters doctor recommended the out of sync child as a possible read to help understand my physically and mentally handicapped daughter. AS I read,...
It all makes sense now...
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It was always difficult raising my daughter who is now 9. Even now she can't stand wearing tags on her clothes, she won't wear stiff or new clothes (I ...
Bianca's Grandmother
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Hello,
Bianca is my 2 1/2 year old grandaughter. Today she was diagnosed with SPD. We have noticed the differences in her,compared to her siblings ...
TJ's Story
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TJ is 23 mos and didn't start eating 'solid' foods until about 18 mos. He will only eat very few items and WILL NOT pick up/touch very many things that ...
I am Glad I am Not Alone!
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My sons ages 9 and 7 have SPD. I have struggled for so long trying to figure out why they are so "sensitive" and irritable. My oldest has a problem with ...
Jade
Not rated yet
Our oldest son is now five and is in a specialized speech and language school for the next year at least. I have just begun to learn about SPD but feel ...
Our Miracle Baby - I cried when I read posts on this site!
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I cried tears of acknowledged frustration with behavior that has been just a bit off since birth. At 41, I had given up on becoming a mommy. We had been ...
Jarrad's Story
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I feel like the worst mother in history at the moment - after discovering my beautiful 4 year old boy has SPD just yesterday I am realizing all the terrible ...
Crying with wolves
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A long and painful journey embarked when Taifoon 'Billy' announced my arrival. I was always the odd one out in practically everything. It was spanking,...
The story of Landon
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Hi, my name is Alisha. I have 2 kids, a son, Landon who is 4 and a daughter, Halle who is 3. Landon was recently diagnosed with having SPD... he is going ...
Mama, am I a real boy now?
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Alyxander was a gift to us, born 13 years after our last boy. A strong bundle of energy, loving and enthusiastic for life, he awoke our house and filled ...
My SPD 16 month old
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At around 11 months we really began to feel that there was something different about our son. He had always spit up a lot, always had trouble sleeping,...
Seeking Some Answers
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My little guy, Tre, is 3 1/2, and my husband and I always just thought he was "quirky." Since he was about 18 months old we have had eating issues, he ...
The Right Shoes
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My daughter was given a pair of shoes a friend's child had outgrown rather quickly. The shoes are in great shape but still several sizes too big for my ...
Clayton's Story
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When my child was born he came home and everything seemed fine for a week- then he cried non stop for the next seven weeks (I was a walking zombie); after ...
Mason's SPD Journey!
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Hello everyone! I have a wonderful son named Mason who is 5 years old and was diagnosed with SPD the beginning of September 2007. Our journey began, as ...
Spencer And My Journey
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Hi my name is Carra and I have the most beautiful son named Spencer. He is my life, my world. He saved my life. When I found out I was pregnant I was in ...
